Eva Abley joined Paul and Chantal at Disability Expo to share her life experience of living with cerebral palsy.Eva is 15 years old and a 2022 Britain’s Got Talent finalist who endeared the country when she took to the stage to entertain, amuse and delight with her quick-witted and observant humour and comedy routines.Close to Eva's heart is her work as a disability activist, and in this conversation, we talk about her lived experience of cerebral palsy, mental health, social exclusion and her activisit work.This is a live recording.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.Watch Eva's BBC programme - My Life Eva's Having a BallHosted by Chantal Boyle and Paul White, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Eva Abley joined Paul and Chantal at <a href="https://www.thedisabilityexpo.com/" rel="nofollow" target="_blank">Disability Expo</a> to share her life experience of living with cerebral palsy. Eva is 15 years old and a 2022 Britain’s Got Talent finalist who endeared the country when she took to the stage to entertain, amuse and delight with her quick-witted and observant humour and comedy routines. Close to Eva's heart is her work as a disability activist, and in this conversation, we talk about her lived experience of cerebral palsy, mental health, social exclusion and her activisit work. This is a live recording. If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner. <ul><li><a href="https://www.bbc.co.uk/iplayer/episode/m001hytj/my-life-evas-having-a-ball" rel="nofollow" target="_blank">Watch Eva's BBC programme - My Life Eva's Having a Ball</a></li></ul>Hosted by Chantal Boyle and Paul White, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hdsunflower.com">conversations@hdsunflower.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Cerebral Palsy with Eva Abley

 Liz Jewell is the Family Support Counsellor at Fragile X Australia, and Monique Mitchell is the mum of two children with Fragile X Syndrome. This conversation teaches us about Fragile X characteristics and the difference between boys and girls. We also include a Q&amp;A from the Sunflower community, which is very insightful.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.For support and informationFragile X AustraliaFragile X UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.com Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Liz Jewell is the Family Support Counsellor at Fragile X Australia, and Monique Mitchell is the mum of two children with Fragile X Syndrome. This conversation teaches us about Fragile X characteristics and the difference between boys and girls. We also include a Q&amp;A from the Sunflower community, which is very insightful. If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner. For support and information<ul><li><a href="https://www.fragilex.org.au/" rel="nofollow" target="_blank">Fragile X Australia</a></li><li><a href="https://www.fragilex.org.uk/" rel="nofollow" target="_blank">Fragile X UK</a></li></ul> Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hdsunflower.com">conversations@hdsunflower.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Fragile X Syndrome with Monique Mitchell and Liz Jewell, Fragile X Australia

Solène joined Ruth and Chantal at Disability Expo to share her life experiences of living with BPD and ADHD.  It was a deep and meaningful conversation where Solène revealed the highs and lows, including how her therapy has given her the tools to accept and embrace her mental health and ADHD. This is a live recording.If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner.For support and information BDP BunchMindBe Beyond Borders Hosted by Chantal Boyle and Ruth Rabét, Hidden Disabilities Sunflower. Want to share your story? email conversations@hdsunflower.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Solène joined Ruth and Chantal at <a href="https://www.facebook.com/disabilityexpo?__cft__[0]=AZXlSuc-nCcNMCK39EY0VZXUb26Wd8gT889spnw0Bj2h1K0vvzbmItY1TjaDSKtbw3Kbw1_3hJi6ca2k-T_WFbIPqwjSEJ7iEgci-qZDnjPi8Vmd-UMzlNj-HYR_KpRv63ZuQxb3gBL8TrBAhVcqcElmH6mkvy4AmRhYV-BI7IAVZwzygVUICBxLGyX4PINLwcXxa9VZucl3vrxUW9mKkWo8&amp;__tn__=-]K-R" rel="nofollow" target="_blank">Disability Expo</a> to share her life experiences of living with BPD and ADHD.  It was a deep and meaningful conversation where Solène revealed the highs and lows, including how her therapy has given her the tools to accept and embrace her mental health and ADHD. This is a live recording. If you are experiencing any issues discussed in this podcast please contact your healthcare practitioner. For support and information <ul><li><a href="https://linktr.ee/thebpdbunch" rel="nofollow" target="_blank">BDP Bunch</a></li><li><a href="https://www.mind.org.uk/information-support/types-of-mental-health-problems/borderline-personality-disorder-bpd/about-bpd/" rel="nofollow" target="_blank">Mind</a></li><li><a href="https://bebeyondborders.com/" rel="nofollow" target="_blank">Be Beyond Borders</a></li></ul> Hosted by Chantal Boyle and Ruth Rabét, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hdsunflower.com">conversations@hdsunflower.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Borderline Personality Disorder (BPD) and ADHD with Solène Anglaret

For our first-ever face-to-face Sunflower Conversations recording, Chantal was joined by Patrick Fopma, who is autistic and who describes himself as having Aspergers. In our conversation, we discussed his differences, including how he wanted to fit in when he was at school. We cover his journey through education and the barriers he faced to gaining employment. Patrick offers some great advice to young autistic people but also to employers.This was a live recording, and as such, the sound isn't the best quality.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportNational Autistic SocietyHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

For our first-ever face-to-face Sunflower Conversations recording, Chantal was joined by Patrick Fopma, who is autistic and who describes himself as having Aspergers. In our conversation, we discussed his differences, including how he wanted to fit in when he was at school. We cover his journey through education and the barriers he faced to gaining employment. Patrick offers some great advice to young autistic people but also to employers. This was a live recording, and as such, the sound isn't the best quality. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support<ul><li><a href="https://www.autism.org.uk/" rel="nofollow" target="_blank">National Autistic Society</a></li></ul> Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Autism with Patrick Fopma

Karen is a beauty pageant queen who joins the conversation to discuss her diagnosis, treatment and recovery.Karen shares intimate details of her health journey in a humorous and endearing way. After coming to terms with her post-surgery body,  Karen enters beauty pageants to build her self-confidence and help support other women and raise cancer awareness.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For supportMacmillanBowel Cancer UKColostomy UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Karen is a beauty pageant queen who joins the conversation to discuss her diagnosis, treatment and recovery. Karen shares intimate details of her health journey in a humorous and endearing way. After coming to terms with her post-surgery body,  Karen enters beauty pageants to build her self-confidence and help support other women and raise cancer awareness. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support<ul><li><a href="https://www.macmillan.org.uk/" rel="nofollow" target="_blank">Macmillan</a></li><li><a href="https://www.bowelcanceruk.org.uk/" rel="nofollow" target="_blank">Bowel Cancer UK</a></li><li><a href="https://www.colostomyuk.org/" rel="nofollow" target="_blank">Colostomy UK</a></li></ul> Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Bowel and Vaginal Cancer and Acoustic Neuroma with Karen Bucknall

Ambar Zenteno, Miss Chile, has dysautonomia and is shining her light on the condition through the beauty pageant Miss World - Beauty with a Purpose platform. Dysautonomia is a term used to describe any disorder of the autonomic (automatic) nervous system. Ambar advocates for the Hidden Disabilities Sunflower in Chile and plans to raise the profile of invisible disabilities and dysautonomia as she heads to compete in Miss World this year.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support:Dysautonomia International Brain Charity UKTurquoise Heart - InstagramAmbar Zenteno - InstagramHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Ambar Zenteno, Miss Chile, has dysautonomia and is shining her light on the condition through the beauty pageant Miss World - Beauty with a Purpose platform. Dysautonomia is a term used to describe any disorder of the autonomic (automatic) nervous system. Ambar advocates for the Hidden Disabilities Sunflower in Chile and plans to raise the profile of invisible disabilities and dysautonomia as she heads to compete in Miss World this year. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support:<ul><li><a href="http://www.dysautonomiainternational.org/" rel="nofollow" target="_blank">Dysautonomia International </a></li><li><a href="https://www.thebraincharity.org.uk/condition/dysautonomia/" rel="nofollow" target="_blank">Brain Charity UK</a></li><li><a href="https://www.instagram.com/corazonturquoise/?hl=en" rel="nofollow" target="_blank">Turquoise Heart</a> - Instagram</li><li><a href="https://www.instagram.com/ambarzenteno/?hl=en" rel="nofollow" target="_blank">Ambar Zenteno</a> - Instagram</li></ul> Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Dysautonomia with Miss Chile Ambar Zenteno

Justin has ADHD, Developmental Coordination Disorder, and Sensory processing issues. A graduate at the University of Wisconsin-Whitewater, in Wisconsin, which has a special focus for students with disabilities.Justin explains how each of his disabilities affects him and what accommodations his college has made so that the barriers to his education and work are removed.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Justin has ADHD, Developmental Coordination Disorder, and Sensory processing issues. A graduate at the University of Wisconsin-Whitewater, in Wisconsin, which has a special focus for students with disabilities. Justin explains how each of his disabilities affects him and what accommodations his college has made so that the barriers to his education and work are removed. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

ADHD, Developmental Coordination Disorder, and Sensory processing with Justin Wesolek

Anna Ballreich joins us from the Special Olympics World Games Berlin 2023 to explain the history of the games and what visitors can expect to see and experience.The Special Olympics is from the 17th – 25th June 2023. 7,000 Special Olympics athletes with intellectual disabilities from 190 delegations will compete in 26 sports. The athletes will be supported by more than 3,000 coaches and 20,000 volunteers.For support:Special Olympics World Games Berlin 2023 information and ticketsGet your Sunflower before you travel  🌻 Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Anna Ballreich joins us from the Special Olympics World Games Berlin 2023 to explain the history of the games and what visitors can expect to see and experience. The Special Olympics is from the 17th – 25th June 2023. 7,000 Special Olympics athletes with intellectual disabilities from 190 delegations will compete in 26 sports. The athletes will be supported by more than 3,000 coaches and 20,000 volunteers. For support:<ul><li><a href="https://www.berlin2023.org/en" rel="nofollow" target="_blank">Special Olympics World Games Berlin 2023 information and tickets</a></li><li><a href="https://hiddendisabilitiesstore.com/" rel="nofollow" target="_blank">Get your Sunflower before you travel</a>  🌻 </li></ul> Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Special Olympics World Games Berlin 2023 with Anna Ballreich

Murray Goulder has epilepsy and joins us with Daniel Jennings from charity, Epilepsy Action, to talk about absence seizures, treatment, public misconceptions and access to venues.Murray campaigns for greater awareness of epilepsy using his lived experiences. An avid music lover, he regularly attends concerts and is passionate about ensuring access for all.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support:Epilepsy Action and the Seizure First Aid videoCall Epilepsy Action 0808 800 5050 Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Murray Goulder has epilepsy and joins us with Daniel Jennings from charity, Epilepsy Action, to talk about absence seizures, treatment, public misconceptions and access to venues. Murray campaigns for greater awareness of epilepsy using his lived experiences. An avid music lover, he regularly attends concerts and is passionate about ensuring access for all. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support:<ul><li><a href="https://www.epilepsy.org.uk/" rel="nofollow" target="_blank">Epilepsy Action and the Seizure First Aid video</a></li><li>Call Epilepsy Action 0808 800 5050 </li></ul> Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Epilepsy with Murray Goulder and Daniel Jennings, Epilepsy Action

Jade Godier joins us to share exciting news about Disability Expo, a free person-focused event for people with lived experience of disability. Showcasing the latest developments on the disability market, relevant services and information, and a full programme of inclusive activities, performances and presentations from engaging relatable people. More informationDisability Expo information and free ticketsHosted by Chantal Boyle, Hidden Disabilities Sunflower. Music by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Jade Godier joins us to share exciting news about Disability Expo, a free person-focused event for people with lived experience of disability. Showcasing the latest developments on the disability market, relevant services and information, and a full programme of inclusive activities, performances and presentations from engaging relatable people. More information<ul><li><a href="https://www.eventbrite.co.uk/e/disability-expo-tickets-365871119367?aff=HiddenDisabilities" rel="nofollow" target="_blank">Disability Expo information and free tickets</a></li></ul>Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Disability Expo with Jade Godier

The Sunflower Conversations are where we explore hidden disabilities through the prism of the Hidden Disabilities Sunflower.In a world where it can be hard to feel like your story matters, we want to give you a space to share your experience. Whether you or someone you care about wears the Sunflower lanyard, we hope that by giving voice to these experiences, we can empower others and encourage more people to support people with invisible disabilities. 

Meegan Winters is the Hidden Disabilities Sunflower program regional partner in the US and co-founder of AbleVu and Able Eyes.Meegan talks about her life experiences and why she decided to create the AbleVu, - which provides a detailed preview of an organisation's accessibility features. Access virtual walk-through tours, accessibility checklists, and other details to ensure the location is accessible prior to visiting. More informationAbleVuHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Meegan Winters is the Hidden Disabilities Sunflower program regional partner in the US and co-founder of AbleVu and Able Eyes. Meegan talks about her life experiences and why she decided to create the AbleVu, - which provides a detailed preview of an organisation's accessibility features. Access virtual walk-through tours, accessibility checklists, and other details to ensure the location is accessible prior to visiting.  More information <ul><li><a href="https://ablevu.com/" rel="nofollow" target="_blank">AbleVu</a></li></ul>Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website </a>

AbleVu and Meegan Winters

Claire-Louise has Congenital Anosmia and is severely visually impaired. Since birth, Claire-Louise hasn't had a sense of smell, but only discovered this when she was 11 years old. We talk about how Claire-Louise navigates through life without two of her senses and what effect that has on her anxiety.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support:Fifth SenseHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.comMusic by "The Emerald Ruby" Emerald Ruby Bandcamp and Emerald Ruby website

Claire-Louise has Congenital Anosmia and is severely visually impaired. Since birth, Claire-Louise hasn't had a sense of smell, but only discovered this when she was 11 years old. We talk about how Claire-Louise navigates through life without two of her senses and what effect that has on her anxiety. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support:<ul><li><a href="https://www.fifthsense.org.uk/" rel="nofollow" target="_blank">Fifth Sense</a></li></ul>Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> Music by "The Emerald Ruby" <a href="https://theemeraldruby.bandcamp.com/" rel="nofollow" target="_blank">Emerald Ruby Bandcamp</a> and <a href="https://theemeraldruby.com/" rel="nofollow" target="_blank">Emerald Ruby website</a>

Congenital Anosmia and visual impairment with Claire-Louise Pitman

Helen Eftekhari is a specialist nurse in Postural Tachycardia Syndrome (PoTS), and Jasmeet Kaur has lived experience of the health condition.Our conversation discovers what PoTS is and how it affects the body, including the impact it has physically and mentally on patients who can be left with chronic pain, fatigue and anxiety.Helen and Jasmeet share their joint knowledge to inform ways to care for and manage flare-ups,  and advice on how others can support patients. They also respond to questions about PoTS from the Sunflower community.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support:PoTS UKHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.com

Helen Eftekhari is a specialist nurse in Postural Tachycardia Syndrome (PoTS), and Jasmeet Kaur has lived experience of the health condition. Our conversation discovers what PoTS is and how it affects the body, including the impact it has physically and mentally on patients who can be left with chronic pain, fatigue and anxiety. Helen and Jasmeet share their joint knowledge to inform ways to care for and manage flare-ups,  and advice on how others can support patients. They also respond to questions about PoTS from the Sunflower community. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support:<ul><li><a href="https://www.potsuk.org/" rel="nofollow" target="_blank">PoTS UK</a></li></ul>Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a>

Postural Tachycardia Syndrome (PoTS) with Jasmeet Kaur and Helen Eftekhari, PoTS UK

We are joined by colleagues Holly Tyrer, Hidden Disabilities Sunflower USA, and Scott Casson-Rennie Hidden Disabilities Sunflower Ireland. It is Holly’s 4th anniversary of her brain injury and Scott’s first anniversary of his Aneurysm.The brain is at the heart of our every action and thought, and so we talk about how their ABIs occurred, the effects that they have had on their lives, and their health journeys so far. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support:The Brain Trust - UK Speakeasy and Aphasia- UKHeadway - IrelandBrain Trauma - USABrain Injury Association of America - USAHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.com

We are joined by colleagues Holly Tyrer, Hidden Disabilities Sunflower USA, and Scott Casson-Rennie Hidden Disabilities Sunflower Ireland. It is Holly’s 4th anniversary of her brain injury and Scott’s first anniversary of his Aneurysm. The brain is at the heart of our every action and thought, and so we talk about how their ABIs occurred, the effects that they have had on their lives, and their health journeys so far. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support:<ul><li><a href="https://brainstrust.org.uk/" rel="nofollow" target="_blank">The Brain Trust</a> - UK </li><li><a href="https://speakeasy-aphasia.org.uk/" rel="nofollow" target="_blank">Speakeasy and Aphasia</a>- UK</li><li><a href="https://headway.ie/" rel="nofollow" target="_blank">Headway </a>- Ireland</li><li><a href="https://braintrauma.org/" rel="nofollow" target="_blank">Brain Trauma</a> - USA</li><li><a href="https://www.biausa.org" rel="nofollow" target="_blank">Brain Injury Association of America</a> - USA</li></ul>Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a>

Brain injury with Holly Tyrer and Scott Casson-Rennie, Hidden Disabilities Sunflower

Russell joins us from the ME Association to discuss Myalgic Encephalopathy and Chronic Fatigue Syndrome (ME/CFS), including what it is, and how it affects people.ME/CFS is a chronic, complex, multisystem disease that can produce a wide-range of disabling symptoms, dramatically impacting a person's ability to initiate or complete everyday tasks and to mobilise normally.We also talk about the similarities between ME and Long Covid. Russell shares his health journey with ME and his progress over the past 23 years. The conversation is full of insightful information for support and clinical pathways.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support:ME AssociationInformation and resources:ME Association: Long Covid and ME/CFS: Are they the same?ME Association: Diagnosing ME/CFSME Association: Managing ME/CFSME Association: Summary of the NICE Guideline on ME/CFSME Association: Care and Support Plans Surviving ME/CFS by Russell Fleming part 1Surviving ME/CFS by Russell Fleming part 2The Complete NICE Guideline on ME/CFSThe NICE Rapid Guideline on Long CovidHosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.com

Russell joins us from the ME Association to discuss Myalgic Encephalopathy and Chronic Fatigue Syndrome (ME/CFS), including what it is, and how it affects people. ME/CFS is a chronic, complex, multisystem disease that can produce a wide-range of disabling symptoms, dramatically impacting a person's ability to initiate or complete everyday tasks and to mobilise normally. We also talk about the similarities between ME and Long Covid. Russell shares his health journey with ME and his progress over the past 23 years. The conversation is full of insightful information for support and clinical pathways. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support:<ul><li><a href="https://meassociation.org.uk/" rel="nofollow" target="_blank">ME Association</a></li></ul>Information and resources:<ul><li><a href="https://meassociation.org.uk/product/long-covid-me-cfs-are-they-the-same/" rel="nofollow" target="_blank">ME Association: Long Covid and ME/CFS: Are they the same?</a></li><li><a href="https://meassociation.org.uk/product-category/medical-and-management/diagnosis/" rel="nofollow" target="_blank">ME Association: Diagnosing ME/CFS</a></li><li><a href="https://meassociation.org.uk/product-category/medical-and-management/medical-management/" rel="nofollow" target="_blank">ME Association: Managing ME/CFS</a></li><li><a href="https://meassociation.org.uk/product/nice-guideline-mecfs-me-association-summary/" rel="nofollow" target="_blank">ME Association: Summary of the NICE Guideline on ME/CFS</a></li><li><a href="https://meassociation.org.uk/product/care-and-support-plans/" rel="nofollow" target="_blank">ME Association: Care and Support Plans</a> </li><li><a href="https://meassociation.org.uk/2022/03/surviving-me-cfs-by-russell-fleming-part-1/" rel="nofollow" target="_blank">Surviving ME/CFS by Russell Fleming part 1</a></li><li><a href="https://meassociation.org.uk/2022/03/surviving-me-cfs-by-russell-fleming-part-2/" rel="nofollow" target="_blank">Surviving ME/CFS by Russell Fleming part 2</a> </li><li><a href="https://www.nice.org.uk/guidance/ng206/chapter/Recommendations" rel="nofollow" target="_blank">The Complete NICE Guideline on ME/CFS</a></li><li><a href="https://www.nice.org.uk/guidance/ng188/chapter/Recommendations" rel="nofollow" target="_blank">The NICE Rapid Guideline on Long Covid</a></li></ul>Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a>

ME/CFS and Long Covid with Russell Fleming, ME Association

Paul Howard

We discuss the autoimmune disease Lupus, with Paul Howard, the CEO of Lupus UK. And Rachel Hall, who has lived experience of Lupus. Paul talks us through what the disease is and the symptoms to look out for and Rachel shares how Lupus has affected her, and the health journey she has been on. The conversation is packed with ways to support your career and where to turn to for support.Rachel has created an online group to offer support to other people with Lupus.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support and resourcesLupus UK Lupus UK Twitter Lupus UK Facebook Lupus UK Instagram Lupus UK Employment Guidance  Lupus_gurl:Rachel’s blogRachel’s TwitterRachel’s Instagram Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email conversations@hiddendisabilitiesstore.com

We discuss the autoimmune disease Lupus, with Paul Howard, the CEO of Lupus UK. And Rachel Hall, who has lived experience of Lupus. Paul talks us through what the disease is and the symptoms to look out for and Rachel shares how Lupus has affected her, and the health journey she has been on. The conversation is packed with ways to support your career and where to turn to for support.Rachel has created an online group to offer support to other people with Lupus. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support and resources<a href="https://www.lupusuk.org.uk/" rel="nofollow" target="_blank">Lupus UK</a> <a href="https://twitter.com/LUPUSUK" rel="nofollow" target="_blank">Lupus UK Twitter</a> <a href="https://www.facebook.com/LUPUSUK" rel="nofollow" target="_blank">Lupus UK Facebook</a> <a href="https://www.instagram.com/lupus_uk/?hl=en" rel="nofollow" target="_blank">Lupus UK Instagram</a> <a href="https://www.lupusuk.org.uk/working-with-lupus/" rel="nofollow" target="_blank">Lupus UK Employment Guidance</a> Lupus_gurl:<a href="https://lupusgurl.wordpress.com/" rel="nofollow" target="_blank">Rachel’s blog</a><a href="https://twitter.com/Lupus_Gurl" rel="nofollow" target="_blank">Rachel’s Twitter</a><a href="https://www.instagram.com/lupus_gurl/?hl=en" rel="nofollow" target="_blank">Rachel’s Instagram</a> Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a>

Lupus with Paul Howard, Lupus UK and Rachel Hall

“Functional neurological disorder is a really common neurological condition. It happens because of a problem with brain signalling. So, it's involving brain networks rather than specific anatomical damage and it can affect any part of the nervous system.”Dr Chris Symeon, is a consultant neuropsychiatrist at St George’s University Hospital NHS Foundation Trust and the clinical lead for the FND rehabilitation programme. Dawn Golder, is a National Advocate of FND Hope UK and has lived experience with FND.In this conversation we get answers to the questions raised by Sunflower wearers about FND. Advice about diagnosis and access to treatment pathways.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support and resourcesFND Hope UKFND Hope USWorkplace Adjustments WebinarmyFND AppFND Hope UK online movement and wellbeing classesNewsletterHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com  Hidden Disabilities Sunflower

“Functional neurological disorder is a really common neurological condition. It happens because of a problem with brain signalling. So, it's involving brain networks rather than specific anatomical damage and it can affect any part of the nervous system.” Dr Chris Symeon, is a consultant neuropsychiatrist at St George’s University Hospital NHS Foundation Trust and the clinical lead for the FND rehabilitation programme. Dawn Golder, is a National Advocate of FND Hope UK and has lived experience with FND.In this conversation we get answers to the questions raised by Sunflower wearers about FND. Advice about diagnosis and access to treatment pathways. If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support and resources <ul><li><a href="https://www.fndhope.org.uk/" rel="nofollow" target="_blank">FND Hope UK</a></li><li><a href="https://fndhope.org/" rel="nofollow" target="_blank">FND Hope US</a></li><li><a href="https://www.youtube.com/watch?v=FvrKXQo9_x8" rel="nofollow" target="_blank">Workplace Adjustments Webinar</a></li><li><a href="https://myfnd.co.uk/" rel="nofollow" target="_blank">myFND App</a></li><li><a href="https://www.fndhope.org.uk/about-fnd-hope/fnd-hope-uk/online-classes/" rel="nofollow" target="_blank">FND Hope UK online movement and wellbeing classes</a></li><li><a href="https://fndhope.org/get-involved/join/" rel="nofollow" target="_blank">Newsletter</a></li></ul>Hosted by Chantal Boyle, Hidden Disabilities Sunflower. Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> <a href="https://hiddendisabilitiesstore.com/" rel="nofollow" target="_blank">Hidden Disabilities Sunflower </a>

Functional Neurological Disorder (FND) with Dr Chris Symeon and Dawn Golder, FND Hope UK

“But you can end up in a coma if your sugar levels are too high because your body just can't function with so much sugar.”We are joined by Sunflower Friend - Emma Cathro. Emma has recently graduated with a First Class Honours in German and Sociology at the University of Aberdeen and is now a research associate. Emma has type 1 diabetes and shares her story of living life with the condition. We cover the main symptoms and what to look out for prior to getting a diagnosis. Emma explains her daily routine of how she ensures that she maintains safe levels of insulin and the technology she uses to do that.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportJuvenile Diabetes Research Foundation, JDRFDiabetes UKResources/technologyFreeStyle Libre glucose sensor Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com   Hidden Disabilities Sunflower

“But you can end up in a coma if your sugar levels are too high because your body just can't function with so much sugar.”We are joined by Sunflower Friend - Emma Cathro. Emma has recently graduated with a First Class Honours in German and Sociology at the University of Aberdeen and is now a research associate. Emma has type 1 diabetes and shares her story of living life with the condition. We cover the main symptoms and what to look out for prior to getting a diagnosis. Emma explains her daily routine of how she ensures that she maintains safe levels of insulin and the technology she uses to do that.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support<a href="https://jdrf.org.uk/" rel="nofollow" target="_blank">Juvenile Diabetes Research Foundation, JDRF</a><a href="https://www.diabetes.org.uk/" rel="nofollow" target="_blank">Diabetes UK</a>Resources/technology<a href="https://www.freestylelibre.co.uk/libre/" rel="nofollow" target="_blank">FreeStyle Libre glucose sensor</a> Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> <a href="https://hiddendisabilitiesstore.com/" rel="nofollow" target="_blank">Hidden Disabilities Sunflower</a>

Type 1 Diabetes with Emma Cathro

Andrew Whittamore

Dr Andrew Whittamore of Asthma and Lung UK and Felicity Payne join us to talk about Chronic obstructive pulmonary disease, COPD which is the name for a group of lung conditions that cause breathing difficulties. Felicity has emphysema which comes under the umbrella of COPD, and explains how she has grown used to the condition, after initially finding herself feeling isolated with many unanswered questions. Felicity shares the activities she does to keep her lungs as strong and healthy as she can.Dr Andrew Whittamore provides us with a wealth of knowledge about the condition and the different pathways to support.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportAsthma and Lung UK COPD SupportBreathe Easy Support GroupsAsthma and Lung UK Helpline 0300 222 5800. Lines open 9am-5pm, Monday to Friday.Asthma and Lung Email helpline@asthmaandlung.org.uk Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com

Dr Andrew Whittamore of Asthma and Lung UK and Felicity Payne join us to talk about Chronic obstructive pulmonary disease, COPD which is the name for a group of lung conditions that cause breathing difficulties. Felicity has emphysema which comes under the umbrella of COPD, and explains how she has grown used to the condition, after initially finding herself feeling isolated with many unanswered questions. Felicity shares the activities she does to keep her lungs as strong and healthy as she can.Dr Andrew Whittamore provides us with a wealth of knowledge about the condition and the different pathways to support.If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For support<a href="https://www.blf.org.uk/support-for-you/copd" rel="nofollow" target="_blank">Asthma and Lung UK COPD Support</a><a href="https://www.blf.org.uk/support-for-you/breathe-easy" rel="nofollow" target="_blank">Breathe Easy Support Groups</a>Asthma and Lung UK Helpline 0300 222 5800. Lines open 9am-5pm, Monday to Friday.Asthma and Lung Email <a href="mailto:helpline@asthmaandlung.org.uk">helpline@asthmaandlung.org.uk</a> Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a>

COPD with Dr Andrew Whittamore Asthma & Lung UK and Felicity Payne

Dyslexia and Dyspraxia with Dayna HalliwellDayna is a digital content creator and actor and uses her lived experience of dyslexia and dyspraxia to raise awareness on her platforms of her learning difficulties. We talk through Dayna’s education experiences in primary school and university and the support that exists, but, also the needless and endless barriers to support from the Disabled Student Allowance, DSA.There are some great tips from Dayna on how to ‘take up space’ and not be apologetic for who you are. We talk about assistive technology including Natural Reader and Grammarly. We touch on language and the Equalities Act too as well as Reading Train Station for being accessible and Sunflower-friendly! If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner.For supportBritish Dyslexia AssociationResourceGrammarlyDyslexicdayna My Mind is a Series of Unfinished Doodles PlannerNatural ReaderHosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email conversations@hiddendisabilitiesstore.com   Hidden Disabilities Sunflower

Dyslexia and Dyspraxia with Dayna Halliwell Dayna is a digital content creator and actor and uses her lived experience of dyslexia and dyspraxia to raise awareness on her platforms of her learning difficulties. We talk through Dayna’s education experiences in primary school and university and the support that exists, but, also the needless and endless barriers to support from the Disabled Student Allowance, DSA.There are some great tips from Dayna on how to ‘take up space’ and not be apologetic for who you are. We talk about assistive technology including Natural Reader and Grammarly. We touch on language and the Equalities Act too as well as Reading Train Station for being accessible and Sunflower-friendly! If you are experiencing any issues discussed in this podcast please contact your GP or healthcare practitioner. For support<a href="https://www.bdadyslexia.org.uk/" rel="nofollow" target="_blank">British Dyslexia Association</a>Resource<a href="https://www.grammarly.com/" rel="nofollow" target="_blank">Grammarly</a><a href="https://socolo.co.uk/products/dyslexicdayna-my-mind-is-a-series-of-unfinished-doodles-planner" rel="nofollow" target="_blank">Dyslexicdayna My Mind is a Series of Unfinished Doodles Planner</a><a href="https://www.naturalreaders.com/" rel="nofollow" target="_blank">Natural Reader</a> Hosted by Chantal Boyle, Hidden Disabilities Sunflower.Want to share your story? email <a href="mailto:conversations@hiddendisabilitiesstore.com">conversations@hiddendisabilitiesstore.com</a> <a href="https://hiddendisabilitiesstore.com/" rel="nofollow" target="_blank">Hidden Disabilities Sunflower</a>

Dyslexia and Dyspraxia with Dayna Halliwell

The Sunflower Conversations are where we explore hidden disabilities through the prism of the Hidden Disabilities Sunflower. In a world where it can be hard to feel like your story matters, we want to give you a space to share your experience. Whether you or someone you care about wears the Sunflower lanyard, we hope that by giving voice to these experiences, we can empower others and encourage more people to support people with invisible disabilities.

The Sunflower Conversations

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Best Episodes: Personal Stories & Great Interviews

The best podcast episodes about true crime. For any thrill seeking podcast listeners who just can't get enough of the captivating stories of murderers and criminals. This topic has all the best episodes from many different true crime podcasts.  Add episodes you're interested into your queue below!