WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more
WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more
Episode 11: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more
28 Mar 2022
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8mins
Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more
Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more
Episode 10: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more
26 Jan 2022
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9mins
Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more
Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more
EPISODE 9: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more
20 Dec 2021
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10mins
BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more
BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more
EPISODE 8: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more
16 Nov 2021
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12mins
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Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more
Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more
Episode 7. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more
28 Oct 2021
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13mins
Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more
Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more
Episode 6. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more
6 Oct 2021
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11mins
Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more
Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more
Episode 5: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more
22 Sep 2021
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10mins
Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more
Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more
Episode 4: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more
8 Sep 2021
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11mins
Free Educator Guide; Dopamine & Reducing Autism Behaviors + more
Free Educator Guide; Dopamine & Reducing Autism Behaviors + more
Episode 3. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about publicatio... Read more
25 Aug 2021
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12mins
Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more
Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more
Episode 1. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more
25 Aug 2021
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10mins
