Cover image of A Close Look at Sanfilippo

A Close Look at Sanfilippo

Questions/Comments: Email Contact@CureSanfilippoFoundation.orgFollow and/or support Cure Sanfilippo FoundationWebsite: www.CureSanfilippoFoundation.orgFacebook: https://www.facebook.com/CureSanfilippo... Read more

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WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more

WORLD Symposium highlights Anakinra early results; upcoming gene therapy trial; + more

Episode 11: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more

28 Mar 2022

8mins

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Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more

Kicking off 2022; upcoming key meeting with FDA; recent grants, WORLD conference, & more

Episode 10: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more

26 Jan 2022

9mins

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Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more

Anakinra Trial update, Collaboration with UNC, other research updates, Help Simon, & more

EPISODE 9: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more

20 Dec 2021

10mins

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BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more

BIG WEEK! World Sanfilippo Day & viral campaign, Trivia Gala, All Stripes & more

EPISODE 8: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more

16 Nov 2021

12mins

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Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more

Sanfilippo & accelerated approval; newly-diagnosed guide; World Sanfilippo Awareness Day & more

Episode 7.  “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more

28 Oct 2021

13mins

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Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more

Why a podcast?; Photobiomodulation research; the costs of pioneering research; + more

Episode 6. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more

6 Oct 2021

11mins

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Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more

Patient Needs & Culture of the Laboratory; Kickoff 2021 StepUp fundraiser; families milestone & more

Episode 5: “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more

22 Sep 2021

10mins

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Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more

Get-to-know your child worksheet for school; Sanfilippo on TikTok; Inclusion + more

Episode 4:  “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Sy... Read more

8 Sep 2021

11mins

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Free Educator Guide; Dopamine & Reducing Autism Behaviors + more

Free Educator Guide; Dopamine & Reducing Autism Behaviors + more

Episode 3. In this episode Glenn O’Neill, president and co-founder of Cure Sanfilippo Foundation, talks about publicatio... Read more

25 Aug 2021

12mins

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Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more

Chan Zuckerberg, Sanfilippo biomarkers & FDA; Anakinra trial update; + more

Episode 1. “A Close Look At Sanfilippo” is a regular 10-minute podcast covering five hot topics regarding Sanfilippo Syn... Read more

25 Aug 2021

10mins

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