This One Minute Monday is about distractions. One of my biggest pet peeves is folks on their phones while driving. Distractions can cause injury and harm, not just to ourselves but to those around us. Listen as Sarita shares 60 seconds of Being Rare: Distractions.--- Support this podcast: https://anchor.fm/beingrare/support

This One Minute Monday is about distractions. One of my biggest pet peeves is folks on their phones while driving. Distractions can cause injury and harm, not just to ourselves but to those around us. Listen as Sarita shares 60 seconds of Being Rare: Distractions.--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Mondays: Distractions - When "Your" Distractions Cause Someone Else Harm

This One Minute Monday is about patience. Traditional timelines don't accurately measure developmental milestones - at least not for all children. It's easy to become impatient and discouraged when our [rare] kiddos fall in the delayed development category. Listen to 60 seconds of Being Rare with Patience!--- Support this podcast: https://anchor.fm/beingrare/support

This One Minute Monday is about patience. Traditional timelines don't accurately measure developmental milestones - at least not for all children. It's easy to become impatient and discouraged when our [rare] kiddos fall in the delayed development category. Listen to 60 seconds of Being Rare with Patience!--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Monday: Patience - When Traditional Timelines Don't Accurately Measure Development

This One Minute Monday is about being delayed. After traveling several days for business I found myself delayed, stranded, and delayed again. Sometimes the road to our destination presents unforeseen challenges; but a delay is not an automatic denial. Listen to 60 seconds of Being Rare!--- Support this podcast: https://anchor.fm/beingrare/support

This One Minute Monday is about being delayed. After traveling several days for business I found myself delayed, stranded, and delayed again. Sometimes the road to our destination presents unforeseen challenges; but a delay is not an automatic denial. Listen to 60 seconds of Being Rare!--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Monday: Being Delayed - Delay Is Not Denied

This One Minute Monday is about poop, yep, poop! For the past few days, Elijah has kept us in an abundance of poopisodes. His GI system is determined to keep us on our toes and in the bathroom. Some poopisodes are very hard to endure, while others are adventurous and fun. Listen to 60 seconds of Being Rare: Poopisode edition.--- Support this podcast: https://anchor.fm/beingrare/support

This One Minute Monday is about poop, yep, poop! For the past few days, Elijah has kept us in an abundance of poopisodes. His GI system is determined to keep us on our toes and in the bathroom. Some poopisodes are very hard to endure, while others are adventurous and fun. Listen to 60 seconds of Being Rare: Poopisode edition.--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Monday: Poop - Finding Joy in Poopisodes

This One Minute Monday is about perception. Having a kid who requires a lot of hands-on care can be hard. One of the worse feelings is perceiving that someone [responsible for providing care] doesn't want to be bothered. Listen to 60 seconds of Being Rare: Perception--- Support this podcast: https://anchor.fm/beingrare/support

This One Minute Monday is about perception. Having a kid who requires a lot of hands-on care can be hard. One of the worse feelings is perceiving that someone [responsible for providing care] doesn't want to be bothered. Listen to 60 seconds of Being Rare: Perception--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Mondays: Perception - Perceiving That Your Kid Is A Burden [to Others]

Today’s conversation is a collaboration between the E.WE Foundation's LEAP Program and Being Rare Podcast. We're talking about Moms &amp; Mental Health: The Importance of Self Care. Self-care is taking all the steps you can to take care of your physical health and well-being, including hygiene, nutrition, managing stressors, and seeking medical care if needed. Self-care is important to maintaining a healthy relationship with yourself. Self-care is about the things we can do to look after our own mental health.Our panelists for today’s conversation are:Stephanie Allen, Licensed Professional Counselor &amp; Mental Health Services CoordinatorShane’ Jackson, Coordination of Benefits Analyst &amp; Parent AdvocateDr. Ashley Perkins, Doctor of Pharmacy &amp; Mental Health AdvocateParvathy Krishnan, Global Advocacy Alliance Director &amp; Parent AdvocateStay up to date on current conversations by subscribing to Being Rare wherever you listen to podcasts!The E.WE Foundation is a 501c3 healthcare advocacy organization. Learn more at www.theewefoundation.org.--- This episode is sponsored by · Anchor: The easiest way to make a podcast.  https://anchor.fm/appSupport this podcast: https://anchor.fm/beingrare/support

Today’s conversation is a collaboration between the E.WE Foundation's LEAP Program and Being Rare Podcast. We're talking about Moms &amp; Mental Health: The Importance of Self Care. Self-care is taking all the steps you can to take care of your physical health and well-being, including hygiene, nutrition, managing stressors, and seeking medical care if needed. Self-care is important to maintaining a healthy relationship with yourself. Self-care is about the things we can do to look after our own mental health. Our panelists for today’s conversation are: Stephanie Allen, Licensed Professional Counselor &amp; Mental Health Services Coordinator Shane’ Jackson, Coordination of Benefits Analyst &amp; Parent Advocate Dr. Ashley Perkins, Doctor of Pharmacy &amp; Mental Health Advocate Parvathy Krishnan, Global Advocacy Alliance Director &amp; Parent Advocate Stay up to date on current conversations by subscribing to Being Rare wherever you listen to podcasts! The E.WE Foundation is a 501c3 healthcare advocacy organization. Learn more at <a href="http://www.theewefoundation.org" rel="nofollow" target="_blank">www.theewefoundation.org</a>. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

Moms & Mental Health: The Importance of Self Care

In this One Minute Monday Sarita talks about shared spaces. Many of us started foundations, podcasts, and blogs because we needed or noticed something missing. In that, this spirit of competitiveness [sometimes] arises creating silent discord among the community - a community otherwise in alignment. The rare space, and any space, can be welcoming and full of love when you go in giving that which you're looking to receive. Listen to 60 seconds of Being Rare: Shared Spaces.--- Support this podcast: https://anchor.fm/beingrare/support

In this One Minute Monday Sarita talks about shared spaces. Many of us started foundations, podcasts, and blogs because we needed or noticed something missing. In that, this spirit of competitiveness [sometimes] arises creating silent discord among the community - a community otherwise in alignment. The rare space, and any space, can be welcoming and full of love when you go in giving that which you're looking to receive. Listen to 60 seconds of Being Rare: Shared Spaces. --- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Mondays: Shared Spaces - There's Enough Room For Us All

In this One Minute Monday Sarita talks about trust. Five days a week we send our children to school to be supervised by someone we don't know. They come home talking about their day; all except Elijah. Elijah is small, has limited mobility, and is nonverbal. Because he can't tell us about his day, we have to trust the system and the people responsible for him. Listen to 60 seconds of Being Rare: Trust.--- Support this podcast: https://anchor.fm/beingrare/support

In this One Minute Monday Sarita talks about trust. Five days a week we send our children to school to be supervised by someone we don't know. They come home talking about their day; all except Elijah. Elijah is small, has limited mobility, and is nonverbal. Because he can't tell us about his day, we have to trust the system and the people responsible for him. Listen to 60 seconds of Being Rare: Trust.--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Monday: Trust - Learning How to Trust Those Responsible For Your Nonverbal Child

Being Rare Podcast welcomes Kate Hart for this special Mother's Day edition episode. Kate is a Trisomy 18 Mom and advocate. Listen as Kate shares love and loss for sweet Hannah, her daughter who was diagnosed in utero with Trisomy 18. Hannah passed away after living 54 days.  Join the conversation by following Being Rare wherever you listen to your podcast! Connect with us on social media: IG: @beingrarepodcast TW: @beingrarepod   Email us: podcast@theewefoundation.org   Other ways to connect: linktr.ee/ewefoundation--- This episode is sponsored by · Anchor: The easiest way to make a podcast.  https://anchor.fm/appSupport this podcast: https://anchor.fm/beingrare/support

Being Rare Podcast welcomes Kate Hart for this special Mother's Day edition episode. Kate is a Trisomy 18 Mom and advocate. Listen as Kate shares love and loss for sweet Hannah, her daughter who was diagnosed in utero with Trisomy 18. Hannah passed away after living 54 days.  Join the conversation by following Being Rare wherever you listen to your podcast! Connect with us on social media: IG: @beingrarepodcast TW: @beingrarepod   Email us: podcast@theewefoundation.org   Other ways to connect: <a href="http://linktr.ee/ewefoundation" rel="nofollow" target="_blank">linktr.ee/ewefoundation</a>--- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

A Special Mother's Day Edition of the Being Rare Podcast

We all like new things because "new" brings an overwhelming sense of accomplishment. But, sometimes, we shy away from new experiences because the process to achieving "new" is difficult. It's easy to settle in the familiar when the process to newness is hard. Listen to 60 seconds of Being Rare: New Beginnings!--- Support this podcast: https://anchor.fm/beingrare/support

We all like new things because "new" brings an overwhelming sense of accomplishment. But, sometimes, we shy away from new experiences because the process to achieving "new" is difficult. It's easy to settle in the familiar when the process to newness is hard. Listen to 60 seconds of Being Rare: New Beginnings!--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

New Beginnings - Welcome to Season 2 of the Being Rare Podcast!

Being Rare is an online resource hub and community conversations platform. We'll have intimate and sometimes difficult conversations about living with rare disease, disability, medical complexities, and special health needs. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Hosted by Sarita Edwards, a world's top patient expert, award winning advocate, global speaker, and CEO. Email us podcast@theewefoundation.org.Follow us on social media! IG: @beingrarepodcastOther ways to connect: linktr.ee/ewefoundation Support this podcast: https://anchor.fm/beingrare/support

In the US, at least 1 in 7 children experience child abuse or neglect annually. Children with disabilities are at least three times more likely to be abused or neglected than their peers without disabilities, and they are more likely to be seriously injured or harmed by maltreatment. This episode is about child abuse prevention, resources, and support. Joining the conversation is Sallye Longshore, Director, Alabama Department of Child Abuse and Neglect Prevention, The Children’s Trust Fund and Stephanie Wright, Director of Family Services, UCP of Huntsville and Tennessee Valley, Inc.  The E.WE Foundation is a 501c3 healthcare advocacy organization and sponsor of the Being Rare Podcast. Learn more at www.theewefoundation.org. The Children's Trust Fund www.ctfalabama.gov UCP Huntsville and Tennessee Valley www.ucphuntsville.org *The video of this conversation can be found on our YouTube channel--- This episode is sponsored by · Anchor: The easiest way to make a podcast.  https://anchor.fm/appSupport this podcast: https://anchor.fm/beingrare/support

In the US, at least 1 in 7 children experience child abuse or neglect annually. Children with disabilities are at least three times more likely to be abused or neglected than their peers without disabilities, and they are more likely to be seriously injured or harmed by maltreatment. This episode is about child abuse prevention, resources, and support. Joining the conversation is Sallye Longshore, Director, Alabama Department of Child Abuse and Neglect Prevention, The Children’s Trust Fund and Stephanie Wright, Director of Family Services, UCP of Huntsville and Tennessee Valley, Inc.  The E.WE Foundation is a 501c3 healthcare advocacy organization and sponsor of the Being Rare Podcast. Learn more at <a href="http://www.theewefoundation.org" rel="nofollow" target="_blank">www.theewefoundation.org</a>. The Children's Trust Fund <a href="http://www.ctfalabama.gov" rel="nofollow" target="_blank">www.ctfalabama.gov</a> UCP Huntsville and Tennessee Valley <a href="http://www.ucphuntsville.org" rel="nofollow" target="_blank">www.ucphuntsville.org</a> *The video of this conversation can be found on our YouTube channel--- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

Child Abuse & Neglect Prevention

This One Minute Monday is about pressure. Sometimes we put way too much pressure on ourselves about almost everything. We've learned that living authentically is so much healthier than creating a perfectly false environment for ourselves or those around us. Listen as Sarita shares 60 seconds of Being Rare!--- Support this podcast: https://anchor.fm/beingrare/support

This One Minute Monday is about pressure. Sometimes we put way too much pressure on ourselves about almost everything. We've learned that living authentically is so much healthier than creating a perfectly false environment for ourselves or those around us. Listen as Sarita shares 60 seconds of Being Rare!--- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Mondays - Pressure

In this One Minute Monday Sarita talks about celebrating Elijah's birthday today along with every other day, adventure and new milestone! Listen to 60 seconds of Being Rare!--- Support this podcast: https://anchor.fm/beingrare/support

In this One Minute Monday Sarita talks about celebrating Elijah's birthday today along with every other day, adventure and new milestone! Listen to 60 seconds of Being Rare! --- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Mondays - Celebrations

This Being Rare episode is about financial advocacy. Financial advocacy in the context of health involves the ability to assess, understand, and use financial information in ways that support good health and financial outcomes. Understanding Financial Advocacy will explore financial concepts and enhance awareness about best practice financial solutions. Today's guest is Dustin Mayo, Vice President, Retail Market Manager, Synovus Bank. Connect with Dustin: linkedin.com/in/dustinbmayo | instagram.com/dustinbmayo | dustinbmayo@gmail.com Connect with Sarita: linkedin.com/in/saritakedwards | twitter.com/saritaedwards | facebook.com/edwards4real | instagram.com/therealedwards | sarita@theewefoundation.org Connect with the E.WE Foundation: www.theewefoundation.org | facebook.com/everyoneiswe | instagram.com/everyone.is.we | twitter.com/everyoneiswe | linkedin.com/company/e-wefoundation   ---   This episode is sponsored by  · Anchor: The easiest way to make a podcast.  https://anchor.fm/app  Support this podcast: https://anchor.fm/beingrare/support

This Being Rare episode is about financial advocacy. Financial advocacy in the context of health involves the ability to assess, understand, and use financial information in ways that support good health and financial outcomes. Understanding Financial Advocacy will explore financial concepts and enhance awareness about best practice financial solutions. Today's guest is Dustin Mayo, Vice President, Retail Market Manager, Synovus Bank. Connect with Dustin: <a href="http://linkedin.com/in/dustinbmayo" rel="nofollow" target="_blank">linkedin.com/in/dustinbmayo</a> | <a href="http://instagram.com/dustinbmayo" rel="nofollow" target="_blank">instagram.com/dustinbmayo</a> | dustinbmayo@gmail.com Connect with Sarita: <a href="http://linkedin.com/in/saritakedwards" rel="nofollow" target="_blank">linkedin.com/in/saritakedwards</a> | <a href="http://twitter.com/saritaedwards" rel="nofollow" target="_blank">twitter.com/saritaedwards</a> | <a href="http://facebook.com/edwards4real" rel="nofollow" target="_blank">facebook.com/edwards4real</a> | <a href="http://instagram.com/therealedwards" rel="nofollow" target="_blank">instagram.com/therealedwards</a> | sarita@theewefoundation.org Connect with the E.WE Foundation: <a href="http://www.theewefoundation.org" rel="nofollow" target="_blank">www.theewefoundation.org</a> | <a href="http://facebook.com/everyoneiswe" rel="nofollow" target="_blank">facebook.com/everyoneiswe</a> | <a href="http://instagram.com/everyone.is.we" rel="nofollow" target="_blank">instagram.com/everyone.is.we</a> | <a href="http://twitter.com/everyoneiswe" rel="nofollow" target="_blank">twitter.com/everyoneiswe</a> | <a href="http://linkedin.com/company/e-wefoundation" rel="nofollow" target="_blank">linkedin.com/company/e-wefoundation</a> --- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

Understanding Financial Advocacy

March is Trisomy Awareness Month! Kareem and Sarita sat down with Joe Ott, Inspirational Radio Host for WACE AM 730 to talk about Trisomy 18 and how the E.WE Foundation is raising awareness, providing support, and shifting the conversation surrounding the diagnosis. --- This episode is sponsored by · Anchor: The easiest way to make a podcast.  https://anchor.fm/appSupport this podcast: https://anchor.fm/beingrare/support

March is Trisomy Awareness Month! Kareem and Sarita sat down with Joe Ott, Inspirational Radio Host for WACE AM 730 to talk about Trisomy 18 and how the E.WE Foundation is raising awareness, providing support, and shifting the conversation surrounding the diagnosis. --- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

Trisomy Awareness Month with WACE AM 730 Inspirational Radio

In this One Minute Monday episode Sarita talks about emotions. We sometimes shelter our emotions for fear of looking weak. Likewise, sometimes we shelter our emotions for fear of looking angry. Emotions aren't bad and how we express them doesn't have to be pretty. Listen to 60 seconds of Being Rare!--- Support this podcast: https://anchor.fm/beingrare/support

In this One Minute Monday episode Sarita talks about emotions. We sometimes shelter our emotions for fear of looking weak. Likewise, sometimes we shelter our emotions for fear of looking angry. Emotions aren't bad and how we express them doesn't have to be pretty. Listen to 60 seconds of Being Rare! --- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Monday - Emotions

In this One Minute Monday episode Sarita talks about community. Today is Rare Disease Day - a day for the rare disease community to raise awareness about the more than 7,000 rare diseases affecting 300 million individuals globally. Listen as Sarita shares 60 seconds of Being Rare! --- Support this podcast: https://anchor.fm/beingrare/support

In this One Minute Monday episode Sarita talks about community. Today is Rare Disease Day - a day for the rare disease community to raise awareness about the more than 7,000 rare diseases affecting 300 million individuals globally. Listen as Sarita shares 60 seconds of Being Rare! --- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Mondays - Community 

Sarah Tompkins

Being Rare Podcast is excited to welcome Sarah Tompkins, patient advocate and Ms. Wheelchair Washington USA 2022! Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose. This exclusive Rare Disease Day episode is about advocacy, pageantry, and finding confidence as a rare disease patient.    To connect with Sarah, Ms. Wheelchair Washington USA 2022 or to learn more about sponsorship opportunities, email Sarah at Sarestbearest@gmail.com.     Ms. Wheelchair USA: Ms. Wheelchair USA Website www.mswheelchairusa.org The Dane Foundation (Nonprofit Sponsor of Ms. Wheelchair USA Pageant and works and services for the Disability Community: The Dane Foundation's Website www.thedanefoundation.org To donate:  http://thedanefoundation.org/eventsprograms/sponsormwusafinalists.html  Select Sarah Tompkins from the list of Sponsors to click for the PayPal Link  TEXT TO DONATE: Dial the numbers 44321 and in the message type MWWUSA for Ms. Wheelchair Washington USA Sarah Tompkins    Connect with Sarita on social media:  LinkedIn: linkedin.com/in/saritakedwards  Twitter: twitter.com/saritaedwards  Instagram: instagram.com/the.real.edwards  Facebook: facebook.com/edwards4real  Follow The E.WE Foundation:  Website: www.theewefoundation.org  Facebook: facebook.com/everyoneiswe  Instagram: instagram.com/everyone.is.we  Twitter: twitter.com/everyoneiswe  LinkedIn: linkedin.com/company/e-wefoundation  ---   This episode is sponsored by  · Anchor: The easiest way to make a podcast.  https://anchor.fm/app  Support this podcast: https://anchor.fm/beingrare/support

Being Rare Podcast is excited to welcome Sarah Tompkins, patient advocate and Ms. Wheelchair Washington USA 2022! Rare Disease Day is a day to raise awareness of the over 7,000 rare diseases that impact over 300 million people globally! Since its creation in 2008, Rare Disease Day has played a critical part in building an international rare disease community that is multi-disease, global, and diverse– but united in purpose. This exclusive Rare Disease Day episode is about advocacy, pageantry, and finding confidence as a rare disease patient.    To connect with Sarah, Ms. Wheelchair Washington USA 2022 or to learn more about sponsorship opportunities, email Sarah at Sarestbearest@gmail.com.     Ms. Wheelchair USA: Ms. Wheelchair USA Website <a href="http://www.mswheelchairusa.org" rel="nofollow" target="_blank">www.mswheelchairusa.org</a> The Dane Foundation (Nonprofit Sponsor of Ms. Wheelchair USA Pageant and works and services for the Disability Community: The Dane Foundation's Website <a href="http://www.thedanefoundation.org" rel="nofollow" target="_blank">www.thedanefoundation.org</a> To donate:  <a href="http://thedanefoundation.org/eventsprograms/sponsormwusafinalists.html" rel="nofollow" target="_blank">http://thedanefoundation.org/eventsprograms/sponsormwusafinalists.html</a> Select Sarah Tompkins from the list of Sponsors to click for the PayPal Link  TEXT TO DONATE: Dial the numbers 44321 and in the message type MWWUSA for Ms. Wheelchair Washington USA Sarah Tompkins   Connect with Sarita on social media:  LinkedIn: <a href="http://linkedin.com/in/saritakedwards" rel="nofollow" target="_blank">linkedin.com/in/saritakedwards</a> Twitter: <a href="http://twitter.com/saritaedwards" rel="nofollow" target="_blank">twitter.com/saritaedwards</a> Instagram: <a href="http://instagram.com/the.real.edwards" rel="nofollow" target="_blank">instagram.com/the.real.edwards</a> Facebook: <a href="http://facebook.com/edwards4real" rel="nofollow" target="_blank">facebook.com/edwards4real</a> Follow The E.WE Foundation:  Website: <a href="http://www.theewefoundation.org" rel="nofollow" target="_blank">www.theewefoundation.org</a> Facebook: <a href="http://facebook.com/everyoneiswe" rel="nofollow" target="_blank">facebook.com/everyoneiswe</a> Instagram: <a href="http://instagram.com/everyone.is.we" rel="nofollow" target="_blank">instagram.com/everyone.is.we</a> Twitter: <a href="http://twitter.com/everyoneiswe" rel="nofollow" target="_blank">twitter.com/everyoneiswe</a> LinkedIn: <a href="http://linkedin.com/company/e-wefoundation" rel="nofollow" target="_blank">linkedin.com/company/e-wefoundation</a> --- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

Rare Disease Day with Sarah Tompkins, Ms. Wheelchair Washington USA 2022

February is National Parent Leadership Month, dedicated to recognizing the important role of parents and caregivers in their homes and community. Join us as we discuss parent leadership and why it is an important concept to gaining valuable insight into healthcare and community programs benefiting children and families. Today's guests: Molly Martzke and Ebone Kimber *Sponsored by the E.WE Foundation's LEAP program.     Connect with Sarita: linkedin.com/in/saritakedwards | twitter.com/saritaedwards | facebook.com/edwards4real | instagram.com/therealedwards | sarita@theewefoundation.org Connect with the E.WE Foundation: www.theewefoundation.org | facebook.com/everyoneiswe | instagram.com/everyone.is.we | twitter.com/everyoneiswe | linkedin.com/company/e-wefoundation Connect with Molly: Molly Martzke, Senior Program Manager, National Genetics Education and Family Support Center, a division of Expecting Health | https://nationalfamilycenter.org | https://expectinghealth.org | mmartzke@expectinghealth.org Connect with Ebone: Ebone Kimber, Licensed Master Social Worker, Professional Development with Ebone Kimber | https://www.facebook.com/watch/prodevwithek/ | prodevwithek@gmail.com--- This episode is sponsored by · Anchor: The easiest way to make a podcast.  https://anchor.fm/appSupport this podcast: https://anchor.fm/beingrare/support

February is National Parent Leadership Month, dedicated to recognizing the important role of parents and caregivers in their homes and community. Join us as we discuss parent leadership and why it is an important concept to gaining valuable insight into healthcare and community programs benefiting children and families. Today's guests: Molly Martzke and Ebone Kimber *Sponsored by the E.WE Foundation's LEAP program.     Connect with Sarita: <a href="http://linkedin.com/in/saritakedwards" rel="nofollow" target="_blank">linkedin.com/in/saritakedwards</a> | <a href="http://twitter.com/saritaedwards" rel="nofollow" target="_blank">twitter.com/saritaedwards</a> | <a href="http://facebook.com/edwards4real" rel="nofollow" target="_blank">facebook.com/edwards4real</a> | <a href="http://instagram.com/therealedwards" rel="nofollow" target="_blank">instagram.com/therealedwards</a> | sarita@theewefoundation.org Connect with the E.WE Foundation: <a href="http://www.theewefoundation.org" rel="nofollow" target="_blank">www.theewefoundation.org</a> | <a href="http://facebook.com/everyoneiswe" rel="nofollow" target="_blank">facebook.com/everyoneiswe</a> | <a href="http://instagram.com/everyone.is.we" rel="nofollow" target="_blank">instagram.com/everyone.is.we</a> | <a href="http://twitter.com/everyoneiswe" rel="nofollow" target="_blank">twitter.com/everyoneiswe</a> | <a href="http://linkedin.com/company/e-wefoundation" rel="nofollow" target="_blank">linkedin.com/company/e-wefoundation</a> Connect with Molly: Molly Martzke, Senior Program Manager, National Genetics Education and Family Support Center, a division of Expecting Health | <a href="https://nationalfamilycenter.org" rel="nofollow" target="_blank">https://nationalfamilycenter.org</a> | <a href="https://expectinghealth.org" rel="nofollow" target="_blank">https://expectinghealth.org</a> | mmartzke@expectinghealth.org Connect with Ebone: Ebone Kimber, Licensed Master Social Worker, Professional Development with Ebone Kimber | <a href="https://www.facebook.com/watch/prodevwithek/" rel="nofollow" target="_blank">https://www.facebook.com/watch/prodevwithek/</a> | prodevwithek@gmail.com--- This episode is sponsored by · Anchor: The easiest way to make a podcast. <a href="https://anchor.fm/app" rel="nofollow" target="_blank">https://anchor.fm/app</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

Understanding Parent Leadership: What Is Parent Leadership and Why Is It Important?

In this One Minute Monday episode Sarita talks about being fulfilled. We all take on new projects or tasks with the hope of making something or someone better. But what happens when the projects and tasks no longer fulfill us? Listen as Sarita shares 60 seconds of Being Rare! --- Support this podcast: https://anchor.fm/beingrare/support

In this One Minute Monday episode Sarita talks about being fulfilled. We all take on new projects or tasks with the hope of making something or someone better. But what happens when the projects and tasks no longer fulfill us? Listen as Sarita shares 60 seconds of Being Rare! --- Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

One Minute Monday - Being Fulfilled 

Being Rare is an online resource hub and community conversations platform. We'll have intimate and sometimes difficult conversations about living with rare disease, disability, medical complexities, and special health needs. Popular for our 1 minute episodes, Being Rare offers insight, perspective, and positive reinforcement. Hosted by Sarita Edwards, a world's top patient expert, award winning advocate, global speaker, and CEO. Email us podcast@theewefoundation.org. Follow us on social media! IG: @beingrarepodcast Other ways to connect: <a href="http://linktr.ee/ewefoundation" rel="nofollow" target="_blank">linktr.ee/ewefoundation</a> Support this podcast: <a href="https://anchor.fm/beingrare/support" rel="payment nofollow" target="_blank">https://anchor.fm/beingrare/support</a>

Being Rare Podcast

The best self improvement podcast episodes. From improving productivity, to finding purpose in your life to what constitutes freedom, this topic is on anything and everything that can help people to improve their lives. Add episodes you're interested into your queue below!

Best Episodes on Self Improvement, Growth & Development

The best episodes for anyone looking to learn more about topics such as happiness, fulfillment, depression and psychology/mental health in general. With interviews with industry experts, personal stories of individuals, this topic has lessons applicable to everyone. Add episodes you're interested into your queue below!