Kristyn shares her perspective on the adventure of being our first season-long podcast guest-host.If you have enjoyed this season and would like to share some words of gratitude and a story about the impact it has had on you, I encourage you to send us a recording. HERE you will find a link that will allow you to record a short message. I would like to share these messages in the approaching season finale, so I ask that you please record your message before July 30th.

Kristyn shares her perspective on the adventure of being our first season-long podcast guest-host.If you have enjoyed this season and would like to share some words of gratitude and a story about the impact it has had on you, I encourage you to send us a recording. <a href="https://www.speakpipe.com/AtypicalTruth" rel="nofollow" target="_blank">HERE</a> you will find a link that will allow you to record a short message. I would like to share these messages in the approaching season finale, so I ask that you please record your message before July 30th.

Storytelling - The Power of Sharing and Listening to the Stories of Others

This episode focuses on the support and perspective of grandparents. Dr. Donna Carthwright shares about the love and pride she feels for her daughter and the family that Kristyn and Kevin have fought hard to build. Prepare to fall in love with this mother/daughter duo.If you have enjoyed this season and would like to share some words of gratitude and a story about the impact it has had on you, I encourage you to send us a recording. HERE you will find a link that will allow you to record a short message. I would like to share these messages in the approaching season finale, so I ask that you please record your message before July 1st.

This episode focuses on the support and perspective of grandparents. Dr. Donna Carthwright shares about the love and pride she feels for her daughter and the family that Kristyn and Kevin have fought hard to build. Prepare to fall in love with this mother/daughter duo.If you have enjoyed this season and would like to share some words of gratitude and a story about the impact it has had on you, I encourage you to send us a recording. <a href="https://www.speakpipe.com/AtypicalTruth" rel="nofollow" target="_blank">HERE</a> you will find a link that will allow you to record a short message. I would like to share these messages in the approaching season finale, so I ask that you please record your message before July 1st.

Grandparents, Infinite Love for Our Children and Endless Support to Us

A storied dedication to those special people in our lives who exist beyond the microphone, those who have shown up in more ways than we can count, the people we have yet to interview but whose conversations and connections mean the world to us. If you have enjoyed this season and would like to share some words of gratitude and a story about the impact it has had on you, I encourage you to send us a recording. HERE you will find a link that will allow you record a short message. I would like to share these messages in the approaching season finale, so I ask that you please record your message before July 1st.

A storied dedication to those special people in our lives who exist beyond the microphone, those who have shown up in more ways than we can count, the people we have yet to interview but whose conversations and connections mean the world to us. If you have enjoyed this season and would like to share some words of gratitude and a story about the impact it has had on you, I encourage you to send us a recording. <a href="https://www.speakpipe.com/AtypicalTruth" rel="nofollow" target="_blank">HERE</a> you will find a link that will allow you record a short message. I would like to share these messages in the approaching season finale, so I ask that you please record your message before July 1st.

Lasting Impact: Honoring Those Who Have Made a Profound Difference In Our Lives

Kristyn is joined by two close friends, Alice and Lauren, who share what it was like to support their friends through a difficult prognosis. They discuss how this experience has shaped their approach to inclusive parenting and the challenges they anticipate facing as their children continue to grow up together. They also provide some insightful advice to other friends and family members who may find themselves trying to show support from the sidelines. And finally, Kristyn shares a heartfelt letter to her friends, one that I think will resonate with many parents of children with rare diseases and disabilities.

Kristyn is joined by two close friends, Alice and Lauren, who share what it was like to support their friends through a difficult prognosis. They discuss how this experience has shaped their approach to inclusive parenting and the challenges they anticipate facing as their children continue to grow up together. They also provide some insightful advice to other friends and family members who may find themselves trying to show support from the sidelines. And finally, Kristyn shares a heartfelt letter to her friends, one that I think will resonate with many parents of children with rare diseases and disabilities.

The Best of Friends, Growing Together Through Thick and Thin

Pediatric therapists become lifelines in the lives of parents and caregivers, teaching them how to empower their children with disabilities. If you are someone who has had the experience of interacting with an early childhood therapist, you likely already know just how special these people are. Today’s episode will remind you of the hard work these professionals have signed up for.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Pediatric therapists become lifelines in the lives of parents and caregivers, teaching them how to empower their children with disabilities. If you are someone who has had the experience of interacting with an early childhood therapist, you likely already know just how special these people are. Today’s episode will remind you of the hard work these professionals have signed up for.Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Physical Therapy

Today’s episode is dedicated to honoring the beautiful life of our little friend, Josie Fernandez. Josie’s life was filled with so much love. Love for her family, love for her friends, and so much love for her four-legged friends. To honor all the love that she brought into this world, I put together a montage of love for our little Rapunzel. Our hearts are with Josie’s family as they navigate the unimaginable. Please keep this family in your prayers. For those who would like to help them through this challenging time, I will be sure to add a link to their donation page as soon as it is ready.You can listen to Josie’s full story in all of its beauty in the episode “Love Needs No Words” from Season One.

Today’s episode is dedicated to honoring the beautiful life of our little friend, Josie Fernandez. Josie’s life was filled with so much love. Love for her family, love for her friends, and so much love for her four-legged friends. To honor all the love that she brought into this world, I put together a montage of love for our little Rapunzel. Our hearts are with Josie’s family as they navigate the unimaginable. Please keep this family in your prayers. For those who would like to help them through this challenging time, I will be sure to add a link to their donation page as soon as it is ready.You can listen to Josie’s full story in all of its beauty in the episode “Love Needs No Words” from Season One.

Little Slice of Heaven

Once again, Nichole Rosenberger has joined Kristyn and Erica to discuss everything from finding solace in the connections we have made with other rare disease families, the change in our perspective regarding our identity as parents of children with disabilities, the burden that mothers feel with the societal pressure of having a "healthy baby," our experiences concealing a second pregnancy, and the challenging decisions we came to when each learned that we were carriers of a life-threatening genetic disease. Finally, Kristyn and Nichole share their thoughts on how they one day plan to explain these decisions to their children. This episode is the finale of this 3 part series which has centered around the subject of IVF and Preimplantation Genetic Testing (or PGT).Into and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Once again, Nichole Rosenberger has joined Kristyn and Erica to discuss everything from finding solace in the connections we have made with other rare disease families, the change in our perspective regarding our identity as parents of children with disabilities, the burden that mothers feel with the societal pressure of having a "healthy baby," our experiences concealing a second pregnancy, and the challenging decisions we came to when each learned that we were carriers of a life-threatening genetic disease. Finally, Kristyn and Nichole share their thoughts on how they one day plan to explain these decisions to their children. This episode is the finale of this 3 part series which has centered around the subject of IVF and Preimplantation Genetic Testing (or PGT).Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Conversations We Avoid Having

Kristyn is joined by genetics counselor, Marisa Andrews, to discuss  IVF with PGT, which is just one of many family planning options that couples have if there's a known risk of passing down a severe or life-threatening genetic disease.  Marisa helps to explain the process you might experience on this journey. First, she touches on genetic testing, the different types of genetic results, and then she explains the process of pre-implantation genetic testing or PGT, and in vitro fertilization, also called IVF.Helpful Links:National Society of Genetic CounselorsPreimplantation Genetic Testing (PGT)In vitro Fertilizat ion (IVF)Genetic Testing 101 Into and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Kristyn is joined by genetics counselor, Marisa Andrews, to discuss  IVF with PGT, which is just one of many family planning options that couples have if there's a known risk of passing down a severe or life-threatening genetic disease.  Marisa helps to explain the process you might experience on this journey. First, she touches on genetic testing, the different types of genetic results, and then she explains the process of pre-implantation genetic testing or PGT, and in vitro fertilization, also called IVF.Helpful Links:<a href="https://www.nsgc.org/" rel="nofollow" target="_blank">National Society of Genetic Counselors</a><a href="https://fertility.wustl.edu/treatments-services/genetic-counseling/preimplantation-genetic-testing-pgt/" rel="nofollow" target="_blank">Preimplantation Genetic Testing (PGT)</a><a href="https://www.mayoclinic.org/tests-procedures/in-vitro-fertilization/about/pac-20384716" rel="nofollow" target="_blank">In vitro Fertilizat</a> <a href="https://www.mayoclinic.org/tests-procedures/in-vitro-fertilization/about/pac-20384716" rel="nofollow" target="_blank">ion (IVF)</a><a href="https://www.chop.edu/news/health-tip/genetic-testing-101-what-parents-need-know" rel="nofollow" target="_blank">Genetic Testing 101</a> Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Building a Family Through IVF and PGT (with Genetic Counselor, Marisa Andrews)

This is the story of a very rare friendship. A friendship that has traveled familiar scary paths, faced many of the same medical challenges, had the same hard conversations, trusted the same surgeons with the lives of their children, waited in the same family room, stared at the same hospital walls, listened to the same alarms of beeping machines and blaring monitors. All this, while wondering how to move forward with all that they both came to know. This is the story of Kristyn and Nichole.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

This is the story of a very rare friendship. A friendship that has traveled familiar scary paths, faced many of the same medical challenges, had the same hard conversations, trusted the same surgeons with the lives of their children, waited in the same family room, stared at the same hospital walls, listened to the same alarms of beeping machines and blaring monitors. All this, while wondering how to move forward with all that they both came to know. This is the story of Kristyn and Nichole.Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Rare Friends

Unlike the conversations that usually take place on this show, today, you are going to hear two versions of the same story. A story about surgery day. Through the perspectives of both a mother and a child, Kristyn and Erica narrate their time spent preparing for, undergoing, and recovering from high-risk operations.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Unlike the conversations that usually take place on this show, today, you are going to hear two versions of the same story. A story about surgery day. Through the perspectives of both a mother and a child, Kristyn and Erica narrate their time spent preparing for, undergoing, and recovering from high-risk operations.Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Surgery Day

Humans are storytelling beings. Atypical Truth amplifies the stories of people who identify with the community of rare diseases, disabilities, and complex medical conditions. Not only will you hear from our peers in this community, but you will also hear stories from family, friends, and professionals who advocate with us. Each season features a new guest co-host who shares with us a glimpse into their lives joined by people and professionals within their tribe.

Dr. Reddy takes us through a day in her heels as she travels throughout Cardinal Glennon Children's Hospital helping her Pediatric Cardiology patients. In this episode, we get to learn more about the many layers of communication that take place before the doctor ever appears in your room. We also get to learn more about the importance of hearing a patient's story as opposed to reading it in a medical chart - two very different approaches to learning about the medical history, both equal in importance. Dr. Reddy shares with us the unexpected joys she has found in her role in helping older pediatric patients and her hopes for the future of medicine. Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Dr. Reddy takes us through a day in her heels as she travels throughout Cardinal Glennon Children's Hospital helping her Pediatric Cardiology patients. In this episode, we get to learn more about the many layers of communication that take place before the doctor ever appears in your room. We also get to learn more about the importance of hearing a patient's story as opposed to reading it in a medical chart - two very different approaches to learning about the medical history, both equal in importance. Dr. Reddy shares with us the unexpected joys she has found in her role in helping older pediatric patients and her hopes for the future of medicine. Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Pediatric Cardiology

Hi there, it's Erica with the Atypical Truth podcast. I am interrupting our regularly scheduled program this week to bring to you a public service announcement of sorts.I don’t know about y’all, but I am tired. Here is a bit of self-disclosure that I have hesitated being open about…Just after the exciting launch of season 2, our kids became sick and they have struggled to recover ever since. Despite having so much of this season already recorded and ready to go for me to edit and produce, it has been a struggle to balance everything while also taking care of myself. And taking care of myself is honestly something I have not been doing a very good job of.  I believe my body, my heart, and my mind have reached a non-negotiable breaking point.And with that said, I have decided to take a short pause from releasing episodes. Perhaps what I am about to say is really just meant for me, something that I can refer back to and replay when I need the reminder, but maybe there is also someone else out there who needs this reminder too. So here are my words of advice to everyone, but especially myself.Take care of yourself. Don’t be afraid to put yourself and your family first. Everything that is worthwhile will be there when you return. You don’t get these moments back somewhere down the road. These moments are happening now. So listen to your body when it says - enough is enough.Don’t be afraid to rest. Take the break. Sleep in longer than usual. Drink plenty of water. Dance. Listen to music that makes you feel nostalgic. Or binge that show that everyone is talking about. You do you, period.Ok, my public service rant is over and I hope that helps beyond just myself.We have some very special episodes lined up for you, so please be patient as I try to rest and recover. Meanwhile, no matter how you manifest love into the world - I ask that you make a point to send love and spread kindness to one another right now. I think the world, in general, just needs like one giant warm hug. Be that hug.Goodness, I sound really cheesy. Sorry, I am just feeling it right now.

Hi there, it's Erica with the Atypical Truth podcast. I am interrupting our regularly scheduled program this week to bring to you a public service announcement of sorts.I don’t know about y’all, but I am tired. Here is a bit of self-disclosure that I have hesitated being open about…Just after the exciting launch of season 2, our kids became sick and they have struggled to recover ever since. Despite having so much of this season already recorded and ready to go for me to edit and produce, it has been a struggle to balance everything while also taking care of myself. And taking care of myself is honestly something I have not been doing a very good job of.  I believe my body, my heart, and my mind have reached a non-negotiable breaking point.And with that said, I have decided to take a short pause from releasing episodes. Perhaps what I am about to say is really just meant for me, something that I can refer back to and replay when I need the reminder, but maybe there is also someone else out there who needs this reminder too. So here are my words of advice to everyone, but especially myself.Take care of yourself. Don’t be afraid to put yourself and your family first. Everything that is worthwhile will be there when you return. You don’t get these moments back somewhere down the road. These moments are happening now. So listen to your body when it says - enough is enough.Don’t be afraid to rest. Take the break. Sleep in longer than usual. Drink plenty of water. Dance. Listen to music that makes you feel nostalgic. Or binge that show that everyone is talking about. You do you, period.Ok, my public service rant is over and I hope that helps beyond just myself.We have some very special episodes lined up for you, so please be patient as I try to rest and recover. Meanwhile, no matter how you manifest love into the world - I ask that you make a point to send love and spread kindness to one another right now. I think the world, in general, just needs like one giant warm hug. Be that hug.Goodness, I sound really cheesy. Sorry, I am just feeling it right now.

Public Service Announcement - Take Care of Yourself

Reflecting on last week's episode with Katie Palmer, in this Afterthoughts Episode, Kristyn and Erica spent an evening discussing the power of connecting through hearing a person's story, the lack of disability representation in our society, and how certain privileges influence all these themes - even in the rare disease community. Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Reflecting on last week's episode with Katie Palmer, in this Afterthoughts Episode, Kristyn and Erica spent an evening discussing the power of connecting through hearing a person's story, the lack of disability representation in our society, and how certain privileges influence all these themes - even in the rare disease community. Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Reflection

One day, Katie decided to do a hashtag search of her rare condition. Expecting to find only a few posts about the disease she lives with, Katie was surprised to find an entire community of caregivers sharing about their experiences.In hopes of providing parents with a new outlook on their child’s condition, Katie began to share her adult perspective of growing up with Noonan Syndrome. Fast forward two years later and she is helping families from all over the world. Katie is now an international family and child advocate for those impacted by Noonan Syndrome. Katie touches on her experience of growing up with a rare disease and how that has inspired her to help families navigate a rare diagnosis. Katie answers questions from members of the Noonan Syndrome Facebook group and we chat a bit about the responsibility that comes with sharing our story in hopes of helping others.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

One day, Katie decided to do a hashtag search of her rare condition. Expecting to find only a few posts about the disease she lives with, Katie was surprised to find an entire community of caregivers sharing about their experiences.In hopes of providing parents with a new outlook on their child’s condition, Katie began to share her adult perspective of growing up with Noonan Syndrome. Fast forward two years later and she is helping families from all over the world. Katie is now an international family and child advocate for those impacted by Noonan Syndrome. Katie touches on her experience of growing up with a rare disease and how that has inspired her to help families navigate a rare diagnosis. Katie answers questions from members of the Noonan Syndrome Facebook group and we chat a bit about the responsibility that comes with sharing our story in hopes of helping others.Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Family Advocate

Growing a family does not look the same for everyone. Kristyn shares about the difficult decisions, obstacles, and challenges they faced in their pursuit to grow into a family of four. Kristyn details the stark and perhaps even painful acknowledgment of the differences between newborn-Luke and newborn-Ozzie. We discuss how eye-opening it is as parents to see our children developing with two distinctly different personalities. Kristyn opens up about learning to trust that Ozzie is healthy and she shares the differences in her worries for them both. Finally, Kristyn leaves us with some really powerful advice for any parent who is facing a complex medical journey.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Growing a family does not look the same for everyone. Kristyn shares about the difficult decisions, obstacles, and challenges they faced in their pursuit to grow into a family of four. Kristyn details the stark and perhaps even painful acknowledgment of the differences between newborn-Luke and newborn-Ozzie. We discuss how eye-opening it is as parents to see our children developing with two distinctly different personalities. Kristyn opens up about learning to trust that Ozzie is healthy and she shares the differences in her worries for them both. Finally, Kristyn leaves us with some really powerful advice for any parent who is facing a complex medical journey.Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Luke & Ozzie

In this episode, we get to hear about who Luke is today and how Kristyn is navigating parenthood, in a world that isn't always as inclusive as it should be. Kristyn shares about her concerns that come with parenting a child whose medical condition isn't very visible, along with both the internal and external challenges that come with deciding on how to voice those concerns. We discuss the fears that come with relinquishing the care of our children in the trust and new professionals who enter their lives. And I share a bit about how we as parents are modeling for our children how to interact with society, which then influences how they choose to introduce themselves, to their peers and the rest of the world. And just like in previous episodes, once again, we have the pleasure of being able to hear from Luke as well.Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

In this episode, we get to hear about who Luke is today and how Kristyn is navigating parenthood, in a world that isn't always as inclusive as it should be. Kristyn shares about her concerns that come with parenting a child whose medical condition isn't very visible, along with both the internal and external challenges that come with deciding on how to voice those concerns. We discuss the fears that come with relinquishing the care of our children in the trust and new professionals who enter their lives. And I share a bit about how we as parents are modeling for our children how to interact with society, which then influences how they choose to introduce themselves, to their peers and the rest of the world. And just like in previous episodes, once again, we have the pleasure of being able to hear from Luke as well.Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Raising Luke

Today we learn more about Luke's complex medical journey, as Kristyn shares her experience navigating his rare diagnosis. Not only did Luke's diagnosis involve many interconnected and moving parts, so did Kristyn's evolution into life as a mother and caregiver to a child with complex medical conditions. In this episode, we touch on the challenges of that evolution, as we share some of the lessons we have come to learn and some of the beliefs or assumptions that we've had to unlearn. Transcription and Merch can be found at www.atypicaltruth.orgInto and Outro Music by AmiinaEpisode Cover Art by Eric McJilton

Today we learn more about Luke's complex medical journey, as Kristyn shares her experience navigating his rare diagnosis. Not only did Luke's diagnosis involve many interconnected and moving parts, so did Kristyn's evolution into life as a mother and caregiver to a child with complex medical conditions. In this episode, we touch on the challenges of that evolution, as we share some of the lessons we have come to learn and some of the beliefs or assumptions that we've had to unlearn. Transcription and Merch can be found at <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">www.atypicaltruth.org</a>Into and Outro Music by <a href="https://www.amiina.com" rel="nofollow" target="_blank">Amiina</a>Episode Cover Art by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>

Kristyn & Luke

Meet Kristyn and Luke - lovers of space, music, and a very special dog named Charlotte. We will be spending an entire season traveling through the story of Kristyn and Luke’s life, but I first felt that we deserved an episode dedicated to getting to know the Newbern family. For those of you who have been with me since season one, you will know that I like opening every conversation with a set of random personal questions. I call these questions the “humanizing questions” because they allow us to connect simply as people - complete with our unique set of likes and dislikes.  These were initially designed to be answered rapidly, but I quickly learned that there was always a story to accompany the brief answer - and it is in that story where the real magic of connection happens. Today, we will be spending our time learning more about the Newbern family - and the origin stories that lend to their rapid-fire answers. If you can relate to this content, and you're interested in guest hosting a season of your own, don't hesitate to reach out to me, you can reach me on the website at www.atypicaltruth.org. Or you can also find me Atypical Truth on Facebook and Instagram.One way to help promote this podcast more widely is by sharing it with as many people as possible. By taking a few minutes to subscribe rate and review. It'll become more visible to those who are searching it out. The beautiful music that greets us at the beginning and end of each episode is performed by my favorite contemporary music collective Amiina. The cover art for Atypical Truth was designed by Eric McJilton.

Meet Kristyn and Luke - lovers of space, music, and a very special dog named Charlotte. We will be spending an entire season traveling through the story of Kristyn and Luke’s life, but I first felt that we deserved an episode dedicated to getting to know the Newbern family. For those of you who have been with me since season one, you will know that I like opening every conversation with a set of random personal questions. I call these questions the “humanizing questions” because they allow us to connect simply as people - complete with our unique set of likes and dislikes.  These were initially designed to be answered rapidly, but I quickly learned that there was always a story to accompany the brief answer - and it is in that story where the real magic of connection happens. Today, we will be spending our time learning more about the Newbern family - and the origin stories that lend to their rapid-fire answers. If you can relate to this content, and you're interested in guest hosting a season of your own, don't hesitate to reach out to me, you can reach me on the website at <a href="http://www.atypicaltruth.org/" rel="nofollow" target="_blank">www.atypicaltruth.org</a>. Or you can also find me Atypical Truth on <a href="https://www.facebook.com/atypicaltruth/" rel="nofollow" target="_blank">Facebook</a> and<a href="https://www.instagram.com/atypicaltruth/" rel="nofollow" target="_blank"> Instagram</a>. One way to help promote this podcast more widely is by sharing it with as many people as possible. By taking a few minutes to subscribe rate and review. It'll become more visible to those who are searching it out. The beautiful music that greets us at the beginning and end of each episode is performed by my favorite contemporary music collective <a href="https://amiina.bandcamp.com/" rel="nofollow" target="_blank">Amiina</a>. The cover art for Atypical Truth was designed by <a href="https://www.instagram.com/selfokcmo/" rel="nofollow" target="_blank">Eric McJilton</a>.

Get to Know the Newbern Family

Kristyn is a fellow medical mom to her son Luke, born with a congenital heart defect and later diagnosed with a rare genetic disorder called Noonan Syndrome. Throughout this season, Kristyn shares her journey into life as a heart-mom and the conversations she had with many people who have made a lasting impression throughout their complex medical journey. Together, we will learn more about living with Noonan Syndrome, the life of a cardiologist, “sci-fi-style” family planning options, the importance of early childhood therapy services, the beautiful evolution of friendships, the power of love, and the strength of Luke’s tribe.

Kristyn is a fellow medical mom to her son Luke, born with a congenital heart defect and later diagnosed with a rare genetic disorder called Noonan Syndrome. Throughout this season, Kristyn shares her journey into life as a heart-mom and the conversations she had with many people who have made a lasting impression throughout their complex medical journey. Together, we will learn more about living with Noonan Syndrome, the life of a cardiologist, “sci-fi-style” family planning options, the importance of early childhood therapy services, the beautiful evolution of friendships, the power of love, and the strength of Luke’s tribe.

Season Two Preview

Wrapping up the research bonus episodes, I steer away from what outside research has to offer and present the information I obtained in my examination of utilizing a podcast for disability community-building. I detail the intention behind asking the miracle question at the end of every episode in this episode. You will also hear from our listeners, as some of our audience were participants and might be curious to listen to their contribution to this research. I have also included some vital feedback for disability podcasters, some vulnerable information about myself to consider when criticizing the efforts of others, and how this entire experience has transformed me. Getting a bit vulnerable, I share about challenges I have faced in the process of podcasting and my concerns about how those same challenges might present barriers to others. VOTE HERE for "Disability" to be a podcast categoryBe sure to visit our Website or Shop for Atypical Truth swag!Music by amiinaCover-art by Kendall BellTranscription provided HEREResearch can be found HERE

Wrapping up the research bonus episodes, I steer away from what outside research has to offer and present the information I obtained in my examination of utilizing a podcast for disability community-building. I detail the intention behind asking the miracle question at the end of every episode in this episode. You will also hear from our listeners, as some of our audience were participants and might be curious to listen to their contribution to this research. I have also included some vital feedback for disability podcasters, some vulnerable information about myself to consider when criticizing the efforts of others, and how this entire experience has transformed me. Getting a bit vulnerable, I share about challenges I have faced in the process of podcasting and my concerns about how those same challenges might present barriers to others. <a href="https://community.spotify.com/t5/Live-Ideas/Podcasts-DISABILITY-as-a-Podcast-Category-with-Subcategories/idi-p/5272811" rel="nofollow" target="_blank">VOTE HERE</a> for "Disability" to be a podcast categoryBe sure to visit our <a href="https://www.atypicaltruth.org" rel="nofollow" target="_blank">Website</a> or <a href="https://www.bonfire.com/store/atypical-truth/" rel="nofollow" target="_blank">Shop</a> for Atypical Truth swag!Music by<a href="https://www.amiina.com/" rel="nofollow" target="_blank"> amiina</a>Cover-art by <a href="https://www.instagram.com/littlebellin/" rel="nofollow" target="_blank">Kendall Bell</a>Transcription provided <a href="https://www.atypicaltruth.org/podcast" rel="nofollow" target="_blank">HERE</a>Research can be found <a href="https://opensiuc.lib.siu.edu/cgi/viewcontent.cgi?article=1492&amp;context=uhp_theses" rel="nofollow" target="_blank">HERE</a>

Part 5 - Telling the Atypical Truth: Disability Community-Building Through Podcasting

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