In this episode, senior involvement and impact manager Shannon Winslade joins Chandos to talk about how you can help us to improve the treatment and care of people diagnosed with a brain tumour.  Shannon spoke about the importance of getting our community to share their experiences both good and bad so we can find out where the gaps in care are, what people's experiences are like in different treatment centres around the country and how we use this information to provide treatment centres essential insights into their patient's experiences and how they can make improvements. Some of you may have already completed the surveys when we ran them previously if you have had further treatment, at a different stage or experienced any change from the last time you took part you can still participate. You can find more information about the Improving Brain Tumour Surveys or take part in the surveys on our website here If you have any questions or would like to find out more about our Involvement Network you can email Shannon and the rest of the Involvement team by emailing involvement@thebraintumourcharity.org

In this episode, senior involvement and impact manager Shannon Winslade joins Chandos to talk about how you can help us to improve the treatment and care of people diagnosed with a brain tumour.  Shannon spoke about the importance of getting our community to share their experiences both good and bad so we can find out where the gaps in care are, what people's experiences are like in different treatment centres around the country and how we use this information to provide treatment centres essential insights into their patient's experiences and how they can make improvements. Some of you may have already completed the surveys when we ran them previously if you have had further treatment, at a different stage or experienced any change from the last time you took part you can still participate. You can find more information about the Improving Brain Tumour Surveys or take part in the surveys on our website <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/improving-brain-tumour-care-surveys/" rel="nofollow" target="_blank">here </a> If you have any questions or would like to find out more about our Involvement Network you can email Shannon and the rest of the Involvement team by emailing involvement@thebraintumourcharity.org

Episode 23 - Spotlight on Improving Brain Tumour Care

In this episode I talk to Kaz and Lauren about what it's like to loose a sibling to a brain tumour.  For those of us that having siblings we know that the relationship we have with our siblings is different from any other relatonship we have. Kaz and Lauren share what it's been like for them when they found out their siblings had a brain tumour.  They share how the loss has changed their lives and the gap that is left when a sibling dies.Kaz has set up a Facebook group called Grieflings to help other people who have lost a sibling as she struggled to find  a space where she could talk about her experiences with people who truly understood. You can find the group here. You can also find Grieflings on Instagram here You can also contact our support team by calling 0808 800 004 or emailing support@thebraintumourcharity.org

In this episode I talk to Kaz and Lauren about what it's like to loose a sibling to a brain tumour.  For those of us that having siblings we know that the relationship we have with our siblings is different from any other relatonship we have. Kaz and Lauren share what it's been like for them when they found out their siblings had a brain tumour.  They share how the loss has changed their lives and the gap that is left when a sibling dies. Kaz has set up a Facebook group called<a href="https://www.facebook.com/grieflings" rel="nofollow" target="_blank"> Grieflings </a>to help other people who have lost a sibling as she struggled to find  a space where she could talk about her experiences with people who truly understood. You can find the group <a href="https://www.facebook.com/grieflings" rel="nofollow" target="_blank">here.</a> You can also find Grieflings on Instagram <a href="https://www.instagram.com/the.grieflings/" rel="nofollow" target="_blank">here </a> You can also contact our support team by calling 0808 800 004 or emailing support@thebraintumourcharity.org

Episode 22 - Sibling Grief

In this episode, Chandos talks to Andy about his involvement with the new strategy the charity is co-creating with the community.  Andy is a volunteer that not only works on the podcast but is also part of the Steering group made up of members of the community, The Brain Tumour Charity and other organisations that are working to improve the treatment and care of people diagnosed with a brain tumour.Andy explains more about this process and what the new strategy aims to do.You can find out more about the new strategy here  and also ways you can get invovled hereYou can also contact the Involvement Team by email involvement@thebraintumourcharity.org

In this episode, Chandos talks to Andy about his involvement with the new strategy the charity is co-creating with the community.  Andy is a volunteer that not only works on the podcast but is also part of the Steering group made up of members of the community, The Brain Tumour Charity and other organisations that are working to improve the treatment and care of people diagnosed with a brain tumour. Andy explains more about this process and what the new strategy aims to do. You can find out more about the new strategy<a href="https://www.thebraintumourcharity.org/about-us/our-strategy/beyond-brain-tumours/" rel="nofollow" target="_blank"> here</a>  and also ways you can get invovled <a href="https://www.thebraintumourcharity.org/get-involved/" rel="nofollow" target="_blank">here</a> You can also contact the Involvement Team by email involvement@thebraintumourcharity.org

Episode 21 - Spotlight on Strategy Update - Beyond Brain Tumours

In this episode, Chandos and our guest Laura talk candidly about the reality of dating after a brain tumour diagnosis and the difficulties of online dating and telling a prospective partner.  They share their personal experiences and how they approach the world of dating and relationships whether online or in person.If you would like support around your relationship or you are single and would like support around some of the issues raised in this episode,   we have  partnered with relationship counsellors Relate to offer relationship counselling you can find out more hereYou can find out more about the support available from our support team hereYou can contact our support team by calling 0808 800 0004 or emailing support@thebraintumourcharity.org 

In this episode, Chandos and our guest Laura talk candidly about the reality of dating after a brain tumour diagnosis and the difficulties of online dating and telling a prospective partner.  They share their personal experiences and how they approach the world of dating and relationships whether online or in person. If you would like support around your relationship or you are single and would like support around some of the issues raised in this episode,   we have  partnered with relationship counsellors Relate to offer relationship counselling you can find out more <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/relationship-counselling-couples-affected-brain-tumour/" rel="nofollow" target="_blank">here</a> You can find out more about the support available from our support team <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/" rel="nofollow" target="_blank">here</a> You can contact our support team by calling 0808 800 0004 or emailing support@thebraintumourcharity.org

Episode 20 - Dating and relationships after a diagnosis

In this episode, we meet our newest co-host Anna Blyszko as she and Chandos talk to our new CEO, Alex Lochrane.  Alex joined the charity about 3 months ago and shares with Anna and Chandos some of his background, why he joined the charity and where he sees the charity going under his guidance.Alex also shares how our new strategy is being co-created with the community and how this may change the direction of the charity as we listen to you, our community about what you want from us as a charity and how excited he is about this.If you want to find out more about our new stratergy and how you can get involved head on over to our website or email our Involvement Team involvement@thebraintumourcharity.orgYou can find out more about Alex here 

In this episode, we meet our newest co-host Anna Blyszko as she and Chandos talk to our new CEO, Alex Lochrane.  Alex joined the charity about 3 months ago and shares with Anna and Chandos some of his background, why he joined the charity and where he sees the charity going under his guidance. Alex also shares how our new strategy is being co-created with the community and how this may change the direction of the charity as we listen to you, our community about what you want from us as a charity and how excited he is about this. If you want to find out more about our new stratergy and how you can get involved head on over to our <a href="https://www.thebraintumourcharity.org/get-involved/volunteering/use-your-experience/join-our-involvement-network/" rel="nofollow" target="_blank">website</a> or email our Involvement Team involvement@thebraintumourcharity.org You can find out more about Alex <a href="https://www.thebraintumourcharity.org/media-centre/news/charity-news/the-brain-tumour-charity-appoints-new-ceo/" rel="nofollow" target="_blank">here</a>

Episode 19 - Spotlight with Alex Lochrane (CEO)

In this episode, we talk to Lucy and Lauren who share what it means to be successfully treated following a brain tumour diagnosis.  They share the ongoing impacts caused by both the brain tumour itself and the treatments used to treat their tumours and how this affects all aspects of their lives. They also discuss what being 'cured' actually means from their perspective.If you would like to talk to a member of the support team you can email support@thebraintumourcharity.org or call 0808 800 0004. You can find out more about the support available by visiting our website hereIf you want to find out how you can support research into finding not only a cure for brain tumours but also better treatments to reduce the long term impacts of treatment such as those discussed in this episode you can find out more on our website here

In this episode, we talk to Lucy and Lauren who share what it means to be successfully treated following a brain tumour diagnosis.  They share the ongoing impacts caused by both the brain tumour itself and the treatments used to treat their tumours and how this affects all aspects of their lives. They also discuss what being 'cured' actually means from their perspective. If you would like to talk to a member of the support team you can email support@thebraintumourcharity.org or call 0808 800 0004. You can find out more about the support available by visiting our website <a href="https://www.thebraintumourcharity.org/about-us/our-research-strategy/our-progress/" rel="nofollow" target="_blank">here</a> If you want to find out how you can support research into finding not only a cure for brain tumours but also better treatments to reduce the long term impacts of treatment such as those discussed in this episode you can find out more on our website <a href="https://www.thebraintumourcharity.org/about-us/our-research-strategy/our-progress/" rel="nofollow" target="_blank">here</a>

Episode 18 - Life after active treatment

In this episode Chandos talks to Nicola about how she uses the BRIAN app to help her manage some of the side effects of her diagnosis, including using it to track side effects, to remember when she has a seizure and to keep a record so she can show her husband, family members and also her medical team.You can find out more about BRIAN here You can contact the support team by emailing support@thebraintumourcharity.org or calling 0808 800 0004You can find out more imformation about The Brain Tumour Charity on our website https://www.thebraintumourcharity.org/

In this episode Chandos talks to Nicola about how she uses the BRIAN app to help her manage some of the side effects of her diagnosis, including using it to track side effects, to remember when she has a seizure and to keep a record so she can show her husband, family members and also her medical team. You can find out more about BRIAN <a href="https://askbrian.org.uk/" rel="nofollow" target="_blank">here </a> You can contact the support team by emailing support@thebraintumourcharity.org or calling 0808 800 0004 You can find out more imformation about The Brain Tumour Charity on our website <a href="https://www.thebraintumourcharity.org/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/</a>

Episode 17 - Spotlight on 'How I use BRIAN'

In the second part of our interview with Kerry, she talks about life after treatment and moving forward to a new future.  Thinking about the services and support that have helped her and how having a brain tumour diagnosis can sometimes mean you are not always signposted to the right support.You can find more information about our Children and Families Service here.If you would like to talk to someone in our Children and Families team you can email childrenandfamilies@thebraintumourcharity.org or call out support line on 0808 800 004If you would like to join our Parents Facebook you can join here

In the second part of our interview with Kerry, she talks about life after treatment and moving forward to a new future.  Thinking about the services and support that have helped her and how having a brain tumour diagnosis can sometimes mean you are not always signposted to the right support. You can find more information about our Children and Families Service <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/" rel="nofollow" target="_blank">here.</a> If you would like to talk to someone in our Children and Families team you can email childrenandfamilies@thebraintumourcharity.org or call out support line on 0808 800 004 If you would like to join our Parents Facebook you can join <a href="https://www.facebook.com/groups/820149301400311" rel="nofollow" target="_blank">here</a>

Episode 16 - A Parent's Experience part 2 - Moving forward and looking to the future

In this, the first of two episodes, myself and Sara Challice talk to Kerry, whose son Rowan was diagnosed with a brain tumour shortly after he was born.  Kerry share's what it's like from a parent's perspective seeing your child in distress when other people can't see anything wrong and the journey a parent goes on once a diagnosis is made.If you are a parent listening to this and would like some support you can contact our Children and Families Team by emailing childrenandfamiles@thebraintumourcharity.org or calling our support line on 0808 800 0004You can find more information about the Children and Families Service here

In this, the first of two episodes, myself and Sara Challice talk to Kerry, whose son Rowan was diagnosed with a brain tumour shortly after he was born.  Kerry share's what it's like from a parent's perspective seeing your child in distress when other people can't see anything wrong and the journey a parent goes on once a diagnosis is made. If you are a parent listening to this and would like some support you can contact our Children and Families Team by emailing childrenandfamiles@thebraintumourcharity.org or calling our support line on 0808 800 0004 You can find more information about the Children and Families Service <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/" rel="nofollow" target="_blank">here</a>

Episode 15 - Part 1 - A Parent's Experience - Surviving Brain Surgery Day

We know that whilst Christmas can and often is a great time of year, it can also bring with it some challenges if you are living with a brain tumour or caring for someone who has a tumour. In this episode, Cam, Chandos and Sara share some of the things they have found have helped them cope during the Christmas break.  Kate Skinner our Support and Information manager also shares some information about the support available during the holiday break.If you need support over Christmas you can contact our support team by emailing support@thebraintumourcharity.org or calling 0808 800 0004.  You can also find information on our website https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/You can also call the Samaritains on 116 123, they are available 24 hours a day 7 days a week

We know that whilst Christmas can and often is a great time of year, it can also bring with it some challenges if you are living with a brain tumour or caring for someone who has a tumour. In this episode, Cam, Chandos and Sara share some of the things they have found have helped them cope during the Christmas break.  Kate Skinner our Support and Information manager also shares some information about the support available during the holiday break. If you need support over Christmas you can contact our support team by emailing support@thebraintumourcharity.org or calling 0808 800 0004.  You can also find information on our website <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/</a> You can also call the <a href="https://www.samaritans.org/" rel="nofollow" target="_blank">Samaritains </a>on 116 123, they are available 24 hours a day 7 days a week

Episode 14 - Spotlight on Coping At Christmas

Join us as we talk to those who have been diagnosed with a brain tumour, their friends, parents, partners and children as we talk about all things brain tumours.  Find out more about how we are working to change the outcomes for those who are diagnosed with this terrible disease.

In this episode we talk to Andy Tudor about how being diagnosed with a meningioma 5 years ago has impacted his life.  Andy shares some of the creative solutions to some of the side effects of his tumour that he has come up with since his diagnosis, including how copes at night as he is unable to sleep for long periods of time causing him to wake up several times during the night.  Andy shares how, in a bid to keep the night time thought demons away he set up a Twitter account and most nights when he wakes up at around 3am he posts on Twitter and has built up a following of over 26,000 which helps keep him occupied during the night as people join his 3am awake club.You can find Andy on Twitter here @AndyHTudor1You can contact our support team by emailing support@thebraintumourcharity.orgYou can find out more about volunteering at the charity here https://www.thebraintumourcharity.org/get-involved/volunteering/You can find more information about the side effects of a brain tumour here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/

In this episode we talk to Andy Tudor about how being diagnosed with a meningioma 5 years ago has impacted his life.  Andy shares some of the creative solutions to some of the side effects of his tumour that he has come up with since his diagnosis, including how copes at night as he is unable to sleep for long periods of time causing him to wake up several times during the night.  Andy shares how, in a bid to keep the night time thought demons away he set up a Twitter account and most nights when he wakes up at around 3am he posts on Twitter and has built up a following of over 26,000 which helps keep him occupied during the night as people join his 3am awake club. You can find Andy on Twitter here <a href="https://twitter.com/AndyHTudor1?ref_src=twsrc%5Egoogle%7Ctwcamp%5Eserp%7Ctwgr%5Eauthor" rel="nofollow" target="_blank">@AndyHTudor1</a> You can contact our support team by emailing support@thebraintumourcharity.org You can find out more about volunteering at the charity here <a href="https://www.thebraintumourcharity.org/get-involved/volunteering/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/get-involved/volunteering/</a> You can find more information about the side effects of a brain tumour here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/</a>

Episode 13 - 3am Awake Club

In this episode find out more about how the charity raises money for research into brain tumours and treatments as Chandos talks to  Sarah Castleman, Events Manager at the charity.  Sarah talks about how we had to change the way we had to do events in the wake of the Coronavirus pandemic, the impact of this and what this means for us as a charity and how we do events as we come out of the pandemic.  Sarah talks about the importance of these events both in terms of raising money for vital research into treatments for this terrible disease and also for the community to be able to come together and support each other and keep the memory of loved ones alive.To find out more about our events and how to get involved you can visit our website https://www.thebraintumourcharity.org/get-involved/events/or email Sarah and her team at events@thebraintumourcharity.org

In this episode find out more about how the charity raises money for research into brain tumours and treatments as Chandos talks to  Sarah Castleman, Events Manager at the charity.  Sarah talks about how we had to change the way we had to do events in the wake of the Coronavirus pandemic, the impact of this and what this means for us as a charity and how we do events as we come out of the pandemic.  Sarah talks about the importance of these events both in terms of raising money for vital research into treatments for this terrible disease and also for the community to be able to come together and support each other and keep the memory of loved ones alive. To find out more about our events and how to get involved you can visit our website <a href="https://www.thebraintumourcharity.org/get-involved/events/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/get-involved/events/</a> or email Sarah and her team at events@thebraintumourcharity.org

Episode 12 - Spotlight On Fundraising Events

In this episode we talk to Kaj Mistry who was just 22 when her dad was diagnosed with a brain tumour.  Kaj had moved away from the family home and was just starting her life in a new city when she found out about her dads diagnosis. Kaj decided to move back home to help look after him.  Kaj shares her experience of what it was like to  walk away from her new life to take on a caring role for her dad and how this experience has changed her.  If you are a young person aged between 16 - 30 and would like to connect with other young people who have been affected by a loved one's diagnosis you can join our Young Adult Carers Facebook Group here https://www.facebook.com/groups/thebraintumourcharityyoungadultcarerssupportgroupIf you are over 30 you can join our main Carers Facebook Group here https://www.facebook.com/groups/470978559740874You can contact our Young Adults Team by emailing YAS@thebraintumourcharity.orgor call out support line on 0808 800 0004You can find more information about our Young Adults Service here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/You can find more information about caring for someone with a brain tumour here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/caring-somebody/

In this episode we talk to Kaj Mistry who was just 22 when her dad was diagnosed with a brain tumour.  Kaj had moved away from the family home and was just starting her life in a new city when she found out about her dads diagnosis. Kaj decided to move back home to help look after him.  Kaj shares her experience of what it was like to  walk away from her new life to take on a caring role for her dad and how this experience has changed her.  If you are a young person aged between 16 - 30 and would like to connect with other young people who have been affected by a loved one's diagnosis you can join our Young Adult Carers Facebook Group here <a href="https://www.facebook.com/groups/thebraintumourcharityyoungadultcarerssupportgroup" rel="nofollow" target="_blank">https://www.facebook.com/groups/thebraintumourcharityyoungadultcarerssupportgroup</a> If you are over 30 you can join our main Carers Facebook Group here <a href="https://www.facebook.com/groups/470978559740874" rel="nofollow" target="_blank">https://www.facebook.com/groups/470978559740874</a> You can contact our Young Adults Team by emailing YAS@thebraintumourcharity.org or call out support line on 0808 800 0004 You can find more information about our Young Adults Service here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/</a> You can find more information about caring for someone with a brain tumour here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/caring-somebody/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/caring-somebody/</a>

Episode 11 - Caring for a parent - a young persons perspective

In this episode Amie Frayne talks about her role as the Volunteer Development Manager and what a vital role volunteers play in just about every aspect of the charity.  Amie talks about the types of things volunteers can do at the charity from supporting at events to supporting on our social media channels and much more.  You'll also hear from some of our volunteers about their experiences of volunteering at the charity as well as how you can go about finding out more about the volunteering roles available.You can find out more information about volunteering at the charity on our website here https://www.thebraintumourcharity.org/get-involved/volunteering/If you have any questions you can get in touch with Amie by emailing volunteering@thebraintumourcharity.org

In this episode Amie Frayne talks about her role as the Volunteer Development Manager and what a vital role volunteers play in just about every aspect of the charity.  Amie talks about the types of things volunteers can do at the charity from supporting at events to supporting on our social media channels and much more.  You'll also hear from some of our volunteers about their experiences of volunteering at the charity as well as how you can go about finding out more about the volunteering roles available. You can find out more information about volunteering at the charity on our website here <a href="https://www.thebraintumourcharity.org/get-involved/volunteering/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/get-involved/volunteering/</a> If you have any questions you can get in touch with Amie by emailing volunteering@thebraintumourcharity.org

Episode 10 -Spotlight on Volunteering for the Charity

In this episode we hear from Rosie who was diagnosed with a brain tumour when she was just 8 years old.  She shares what it was like to be a child going through treatment, how it affected her friendships, going to school and the long term impacts both mentally and physically of having a brain tumour at such a young age.If you would like more information about our Children and Families Service you can go to our website https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/   or contact the team directly by emailing childrenandfamilies@thebraintumourcharity.orgFor more information about our Young Adults Service https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/   or email the team at yas@thebraintumourcharity.org

In this episode we hear from Rosie who was diagnosed with a brain tumour when she was just 8 years old.  She shares what it was like to be a child going through treatment, how it affected her friendships, going to school and the long term impacts both mentally and physically of having a brain tumour at such a young age. If you would like more information about our Children and Families Service you can go to our website<a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/" rel="nofollow" target="_blank"> </a><a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/</a>   or contact the team directly by emailing childrenandfamilies@thebraintumourcharity.org For more information about our Young Adults Service <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/young-adult-service/</a>   or email the team at yas@thebraintumourcharity.org

Episode 9 - What's it like to get diagnosed as a child?

In this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses.  Lorcan talks you through what happens at a typical appointment, what your optician looks out for and some of the health conditions, including brain tumours that can be detected during these eye exams and also what happens if something is detected when you have an eye exam.You can find out more about how brain tumours can affect your vision on our website here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/sight-problems-and-brain-tumours/ If your need support with coping with sight loss you can find information on our website here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/sight-problems-and-brain-tumours/coping-sight-problems/You can contact our support team by calling 0808 800 0004 or emailing Support@thebraintumourcharity.orgFind out more about National Eye Health Week by visiting Vision Matters https://www.visionmatters.org.uk/

In this episode Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health than just if you need to wear glasses.  Lorcan talks you through what happens at a typical appointment, what your optician looks out for and some of the health conditions, including brain tumours that can be detected during these eye exams and also what happens if something is detected when you have an eye exam. You can find out more about how brain tumours can affect your vision on our website here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/sight-problems-and-brain-tumours/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/sight-problems-and-brain-tumours/</a> If your need support with coping with sight loss you can find information on our website here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/sight-problems-and-brain-tumours/coping-sight-problems/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/sight-problems-and-brain-tumours/coping-sight-problems/</a> You can contact our support team by calling 0808 800 0004 or emailing Support@thebraintumourcharity.org Find out more about National Eye Health Week by visiting Vision Matters <a href="https://www.visionmatters.org.uk/" rel="nofollow" target="_blank">https://www.visionmatters.org.uk/</a>

Episode 8 - Spotlight on National Eye Health Week 

In this episode, we talk to Diane Thomas about how a loved one's diagnosis changes life for everyone not just the person with the diagnosis and why creating a new 'normal' is so important. Diane talks about problem-solving and finding creative solutions to keep creating a new 'normal' as things changed.   Diane also talks about her experiences of having to deal with her husband's personality changes due to the location of his tumour and the importance of not being afraid to ask for help.Diane also shares suggestions on how friends can help and that these don't have to be big it can be as simple as cooking a bit extra and taking it over to a friend who is knee-deep in caring for someone.If you would like to speak to someone from our support team you can call 0808 800 0004 or email the team support@thebraintumourcharity.orgYou can find out more about personality changes due to a brain tumour here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/personality-changes/You can join our Carers Facebook Group here https://www.facebook.com/groups/470978559740874If you would like more information on being a carer you can find information on our website here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/caring-somebody/

In this episode, we talk to Diane Thomas about how a loved one's diagnosis changes life for everyone not just the person with the diagnosis and why creating a new 'normal' is so important. Diane talks about problem-solving and finding creative solutions to keep creating a new 'normal' as things changed.   Diane also talks about her experiences of having to deal with her husband's personality changes due to the location of his tumour and the importance of not being afraid to ask for help. Diane also shares suggestions on how friends can help and that these don't have to be big it can be as simple as cooking a bit extra and taking it over to a friend who is knee-deep in caring for someone. If you would like to speak to someone from our support team you can call 0808 800 0004 or email the team support@thebraintumourcharity.org You can find out more about personality changes due to a brain tumour here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/personality-changes/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/personality-changes/</a> You can join our Carers Facebook Group here <a href="https://www.facebook.com/groups/470978559740874" rel="nofollow" target="_blank">https://www.facebook.com/groups/470978559740874</a> If you would like more information on being a carer you can find information on our website here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/caring-somebody/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/caring-somebody/</a>

Episode 7 - Finding your new 'normal' after a loved ones diagnosis

In this Spotlight episode Chandos talks to Fiachra Woodman about BRIAN.BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour diagnosis. BRIAN can help you - and those supporting you – to understand how you are doing and to make better informed decisions.  Fiachra talks about some of the ways you or your loved one can use BRIAN such as carrying out challenges in the app, setting appointment and medication reminders and much more. One of the aims of BRIAN is to use the information provided by you and your loved ones to enable researchers to better understand brain tumours to improve treatments and ultimately find a cure for this terrible disease. You can find out more and download BRIAN here https://askbrian.org.uk/ or through Google Play or the App StoreIf you have already downloaded BRIAN could spare a minute or two to complete a short survey on how you have found using it.  As Fiachra says your feedback is really important to us in helping us make BRIAN into something that is really helpful for you.  You can find the survey here https://www.surveymonkey.co.uk/r/3Z6CFWV 

In this Spotlight episode Chandos talks to Fiachra Woodman about BRIAN. BRIAN (the Brain tumouR Information and Analysis Network) is an online app which has been developed by The Brain Tumour Charity to help people cope with a brain tumour diagnosis. BRIAN can help you - and those supporting you – to understand how you are doing and to make better informed decisions.  Fiachra talks about some of the ways you or your loved one can use BRIAN such as carrying out challenges in the app, setting appointment and medication reminders and much more. One of the aims of BRIAN is to use the information provided by you and your loved ones to enable researchers to better understand brain tumours to improve treatments and ultimately find a cure for this terrible disease. You can find out more and download BRIAN here <a href="https://askbrian.org.uk/" rel="nofollow" target="_blank">https://askbrian.org.uk/</a> or through Google Play or the App Store If you have already downloaded BRIAN could spare a minute or two to complete a short survey on how you have found using it.  As Fiachra says your feedback is really important to us in helping us make BRIAN into something that is really helpful for you.  You can find the survey here <a href="https://www.surveymonkey.co.uk/r/3Z6CFWV" rel="nofollow" target="_blank">https://www.surveymonkey.co.uk/r/3Z6CFWV</a>

Episode 6 - Spotlight on The Brain Tumour Charity app BRIAN 

Sunil Reddy

In this episode, we talk to Sunil Reddy about his diagnosis and the impact this has had on his life.  Sunil talks about how his memory has been affected due to his treatment and what this has been like for him both coming to terms with the long term effects of having a brain tumour but also how he is finding ways to cope with these changes.  Memory loss is a common side effect of brain tumours with Cam and Chandos also sharing how, like Sunil they have also suffered with memory problems as a result of their tumours.You can find out more about memory and brain tumours on our website https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/memory-difficulties-and-brain-tumours/We also have advice on coping wth memory issues on our website here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/memory-difficulties-and-brain-tumours/coping-memory-difficulties/You can also track how your brain tumour has affected your memory using our BRIAN app https://www.thebraintumourcharity.org/living-with-a-brain-tumour/brian/snap-challenge-memory/If you would like to talk to our support team you can call 0808 800 0004 or email support@thebraintumourcharity.org

In this episode, we talk to Sunil Reddy about his diagnosis and the impact this has had on his life.  Sunil talks about how his memory has been affected due to his treatment and what this has been like for him both coming to terms with the long term effects of having a brain tumour but also how he is finding ways to cope with these changes.  Memory loss is a common side effect of brain tumours with Cam and Chandos also sharing how, like Sunil they have also suffered with memory problems as a result of their tumours. You can find out more about memory and brain tumours on our website <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/memory-difficulties-and-brain-tumours/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/memory-difficulties-and-brain-tumours/</a> We also have advice on coping wth memory issues on our website here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/memory-difficulties-and-brain-tumours/coping-memory-difficulties/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/side-effects/memory-difficulties-and-brain-tumours/coping-memory-difficulties/</a> You can also track how your brain tumour has affected your memory using our BRIAN app <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/brian/snap-challenge-memory/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/brian/snap-challenge-memory/</a> If you would like to talk to our support team you can call 0808 800 0004 or email support@thebraintumourcharity.org

Episode 5 - Memory with Sunil Reddy

In this episode Chandos talks to Eve Kelleher, the Head of Services at the charity about some of the ways our Support Team can help people who have been affected by a brain tumour diagnosis.You can find out more about the 10 ways we can help here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/They talk about our online communities, from our Facebook support groups, Health unlocked to our Support Instagram  you can find out more about our online communities here https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/online-brain-tumour-support-groups/Eve explains how as well as our main support service for adults we also have a dedicated Children and Families Service  https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/ and a Young Adults Service https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/Eve also talks about some of the organisations we've partnered with to provide specialist support and advice to our community such as our Relationship Service https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/relationship-counselling-couples-affected-brain-tumour/ and our Benefits and Money Clinic https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/benefits-clinic/If you would like to make a donation to the Charity you can do so on our website https://www.thebraintumourcharity.org/donate/If you would like more information about the support available you can email support@thebraintumourcharity.org

In this episode Chandos talks to Eve Kelleher, the Head of Services at the charity about some of the ways our Support Team can help people who have been affected by a brain tumour diagnosis. You can find out more about the 10 ways we can help here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/</a> They talk about our online communities, from our Facebook support groups, Health unlocked to our Support Instagram  you can find out more about our online communities here <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/online-brain-tumour-support-groups/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/online-brain-tumour-support-groups/</a> Eve explains how as well as our main support service for adults we also have a dedicated Children and Families Service  <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/children-and-families-service/</a> and a Young Adults Service <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/</a> Eve also talks about some of the organisations we've partnered with to provide specialist support and advice to our community such as our Relationship Service <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/relationship-counselling-couples-affected-brain-tumour/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/relationships/relationship-counselling-couples-affected-brain-tumour/</a> and our Benefits and Money Clinic <a href="https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/benefits-clinic/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/living-with-a-brain-tumour/get-support/benefits-clinic/</a> If you would like to make a donation to the Charity you can do so on our website <a href="https://www.thebraintumourcharity.org/donate/" rel="nofollow" target="_blank">https://www.thebraintumourcharity.org/donate/</a> If you would like more information about the support available you can email support@thebraintumourcharity.org

Episode 4 - Spotlight on 10 Ways We Can Help

Let's Talk About Brain Tumours

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