Firefly Chat Episode 7 (Part 2): NPC Moms React to Adrabetadex News
Firefly Chat Episode 7 (Part 2): NPC Moms React to Adrabetadex News
A continuation of Firefly Fund co-founder Pam Andrews' discussion with NPC moms, highlighting the benefits of Adrabetade... Read more
2 Mar 2021
•
34mins
Firefly Chat Episode 7(Part 1): NPC Moms React to Adrabetadex News
Firefly Chat Episode 7(Part 1): NPC Moms React to Adrabetadex News
Firefly Fund co-founder Pam Andrews has a heartfelt and candid conversation with nine other NPC moms from around the wor... Read more
25 Feb 2021
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38mins
Firefly Chat Episode 6: Mallinckrodt Pharmaceuticals
Firefly Chat Episode 6: Mallinckrodt Pharmaceuticals
Firefly Fund founders Pam and Chris Andrews chat with the Mallinckrodt team. Dr. Steve Romano, Elissa Cote, and Sheila T... Read more
2 Dec 2020
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53mins
Firefly Chat Episode 5: NNPDF
Firefly Chat Episode 5: NNPDF
Firefly Fund founders Pam and Chris Andrews celebrate NPC Awareness Month by having a conversation with National Niemann... Read more
28 Oct 2020
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1hr 37mins
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Firefly Chat Episode 4: Newborn Screening
Firefly Chat Episode 4: Newborn Screening
This month's episode of Firefly Chat focuses on Newborn Screening Awareness Month. The podcast was repurposed from a dis... Read more
26 Sep 2020
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48mins
Firefly Chat Episode 3 Part 2: Orphazyme
Firefly Chat Episode 3 Part 2: Orphazyme
Tune in for the second installation of Firefly Fund Co-Founders Pam & Chris Andrews' conversation with Thomas Kirkeg... Read more
25 Aug 2020
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35mins
Firefly Chat Episode 3 (Part 1): Orphazyme
Firefly Chat Episode 3 (Part 1): Orphazyme
Firefly Fund Co-Founders Pam & Chris Andrews enjoyed their recent Firefly Chat with Thomas Kirkegaard Jensen Ph.D., ... Read more
22 Jul 2020
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33mins
Firefly Chat Episode 2: John Crowley, Chairman & CEO of Amicus Therapeutics
Firefly Chat Episode 2: John Crowley, Chairman & CEO of Amicus Therapeutics
Join Firefly Fund founders Pam and Chris Andrews as they speak about the future of rare disease treatment with John Crow... Read more
15 Jul 2020
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43mins
Firefly Chat Episode 1: Welcome to Firefly Chat
Firefly Chat Episode 1: Welcome to Firefly Chat
Join Firefly Fund founders Pam and Chris Andrews as they share about their own personal rare disease journey that led th... Read more
15 Jul 2020
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26mins
