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Society & Culture
Personal Journals

Talking Life

Updated 5 days ago

Society & Culture
Personal Journals
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Created Out of Mind presents Talking Life, a series of podcast conversations with a person, or people, experiencing a dementia about their relationships with topics such as beauty, willpower, purpose, connection, and sleep. This series aims to engage listeners in collective conversations with people experiencing dementias about everyday subjects, challenging them to reconsider their initial assumptions about dementia. Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper. Created Out of Mind is a team aiming to explore, challenge and shape perceptions and understanding of dementias through science and the creative arts. They are the second residents of The Hub at Wellcome Collection.

Read more

Created Out of Mind presents Talking Life, a series of podcast conversations with a person, or people, experiencing a dementia about their relationships with topics such as beauty, willpower, purpose, connection, and sleep. This series aims to engage listeners in collective conversations with people experiencing dementias about everyday subjects, challenging them to reconsider their initial assumptions about dementia. Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper. Created Out of Mind is a team aiming to explore, challenge and shape perceptions and understanding of dementias through science and the creative arts. They are the second residents of The Hub at Wellcome Collection.

Cover image of Talking Life

Talking Life

Latest release on Oct 10, 2017

The Best Episodes Ranked Using User Listens

Updated by OwlTail 5 days ago

Warning: This podcast has few episodes.

This means there isn't enough episodes to provide the most popular episodes. Here's the rankings of the current episodes anyway, we recommend you to revisit when there's more episodes!

Rank #1: Episode 1 - Purpose

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Rukiya Mukadam. Photo: Ben Gilbert/Wellcome Collection

‘Previously my purpose was to look after family and raise my children to the best of my ability… now since I have got this dementia I wish people would be more aware of what dementia is about. In our community - the Asian community - it is more of a taboo subject, because we think once she is over 60 she is old, so she is “just like that.” You become hesitant and don’t trust yourself.’

Rukiya Mukadam’s sense of purpose has always been centred on her family. Since being diagnosed, she feels her purpose is now to raise more awareness of dementia, both in her community and society in general. Rukiya lives with Alzheimer’s Disease.

Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper. 

Object featured: Audrey Amiss, Scrapbook. Credit: Wellcome Library/Courtesy of Audrey Amiss’ family

Oct 10 2017

30mins

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Rank #2: Episode 2- Obsession

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‘It is hard to stop me. I say that of myself! I struggle to do balance. I know advocacy is good for me, to demand of myself but making the judgment is hard. I actually got such a buzz in my professional life – playing a role in one theatre and directing in another and having meetings about another. And I have to balance because I want a certain amount of challenge; I do not want to become passive.’

Ronan Smith’s ambition and work ethic has driven his professional life, which is still a huge part of his identity. Now this drive has manifested itself in his dementia advocacy work. Ronan lives with Familial Alzheimer’s Disease (fAD).

Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper.

Ronan Smith. Photo: Ben Gilbert/Wellcome Collection.

Oct 10 2017

30mins

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Rank #3: Episode 3 - Prejudice and Discrimination

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Tom Hughes and Mike Parish. Photo: Ben Gilbert/Wellcome Collection

‘I think the message is “We are here, we are not invisible”. As LGBT people like anybody else we need help, love and support. Our being LGBT is an important part of our life and goes with us wherever we are and if that can be respected in older life, in all aspects of life - we can’t ask for anything more.’

Mike Parish and partner Tom Hughes’ experiences as part of the LGBT community have shaped their lives and are still very much part of their identity. Tom lives with a dementia caused by HIV-associated neurological disorder (HAND).

Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper. 

Object featured: Rumi Clinton, Where Do I Go? Credit: Rumi Clinton

Oct 10 2017

31mins

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Rank #4: Episode 4 - Self-expression

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‘I was feeling low, shell shocked from having the diagnosis. I started writing at home as a way to exercise my brain. Poetry was quite cathartic. Some of the poems are about my dementia, about how I felt. Then suddenly I thought I don’t want to write about my dementia anymore, it was boring and I’d got it out of my system! So I started talking about life and other things in my life.’

Tracey Shorthouse is resolved to live positively with dementia. She decided not to shy away from expressing her experiences and writing became a powerful vehicle for her to share her voice.  Tracey lives with an early-onset dementia called Posterior Cortical Atrophy (PCA).

Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper. 

Object featured: JJ Beegan, Three Quadrupeds, c.1946. Credit: Adamson Collection/Wellcome Library

Tracey Shorthouse.  Photo: Ben Gilbert/Wellcome Collection

Oct 10 2017

25mins

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Rank #5: Episode 5 - Willpower

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Veronica Williams-Laing. Photo: Ben Gilbert/Wellcome Collection

‘I believe in my willpower. So many places I get lost and if I don’t sit and remind myself in the morning before I leave the house - you got to do this and do that and come back home…you got to use your willpower to remember to do your thing. Even if you have to make two or three trips. You’re not going to get up off your bed if you don’t have the willpower - I’ve been there.’

Veronica Williams-Laing’s willpower got her through tougher times when she came to the UK at nine years old, and she has harnessed this in the face of dementia.  

Presented by Susanna Howard, Music by Hannah Peel and edited by Erland Cooper. 

Object featured: Alexandra Georgiou, The Dowry, 2011-2015. Credit: Wellcome Library

Oct 10 2017

24mins

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