Cover image of IFOPA Podcast Series

IFOPA Podcast Series

The International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) serves families living with the ultra-rare genetic disease fibrodysplasia ossificans progressiva, as well as researche... Read more

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Ranked #1

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FOP is a Part of My Life, but it Isn't My Life

FOP is a Part of My Life, but it Isn't My Life

In our second episode of the 2022 Advocacy Series, IFOPA Family Services Manager, Hope Newport speaks with FOP community... Read more

5 May 2022

45mins

Ranked #2

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College, Careers and Pursuing a Vocation

College, Careers and Pursuing a Vocation

FOP community member Whitney Weldon speaks about her motivation to attend college, what she's learned in her career jour... Read more

13 Apr 2022

26mins

Ranked #3

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Advocating for Mobility and Independence

Advocating for Mobility and Independence

In our fourth episode of the 2021 Advocacy Series, IFOPA Family Services Coordinator Karen Kirchhoff speaks with FOP mom... Read more

1 Nov 2021

37mins

Ranked #4

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Feel It to Heal It

Feel It to Heal It

In this episode Sharon Neumann, Advanced Grief Recovery Specialist and IFOPA Family Services Manager Hope Newport explor... Read more

13 Aug 2021

40mins

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Ranked #5

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Advocating in the Medical Setting

Advocating in the Medical Setting

In our third episode of the 2021 Advocacy Series, IFOPA Family Services Manager Hope Newport speaks with FOP medical exp... Read more

16 Jul 2021

35mins

Ranked #6

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Your Personal FOP Journey—Why It’s So Important for FOP Research

Your Personal FOP Journey—Why It’s So Important for FOP Research

IFOPA Executive Director Michelle Davis chats with Sammi Kile, IFOPA's FOP Registry Project Manager about the FOP Regist... Read more

1 Jul 2021

24mins

Ranked #7

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Fighting FOP in the Land of the Midnight Sun

Fighting FOP in the Land of the Midnight Sun

In the May episode of the IFOPA Podcast Series, IFOPA Community Fundraising Manager Cathryn Roys chats with FOP advocate... Read more

6 May 2021

21mins

Ranked #8

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Advocacy At All Ages

Advocacy At All Ages

In our second podcast of the 2021 Advocacy Series, IFOPA Family Services Coordinator Karen Kirchhoff interviews Amanda C... Read more

19 Apr 2021

27mins

Ranked #9

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Oh yes, Honey!

Oh yes, Honey!

Turning hobbies and passions into a fundraising opportunity is the easiest way to raise money for FOP research and famil... Read more

5 Mar 2021

26mins

Ranked #10

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Creating a Story with Impact

Creating a Story with Impact

In our February episode of the IFOPA podcast series, IFOPA Family Services staff Hope Newport interviews Shannon von Fel... Read more

22 Feb 2021

20mins

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