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Long Covid Podcast

The Podcast by and for Long Covid sufferers. Long Covid is estimated to affect at around 1 in 5 people infected with Covid-19. Some of these people recover within a few months, but there are many who have been suffering for well over a year.​There is currently no cure for Long Covid, and the thousands of people still ill have been searching for answers for a long time. In this podcast I hope to explore some of the problems and possible solutions, mixed with personal experience from those who know it best - the Long Haulers. The Long Covid Podcast is currently self-funded. This podcast will always remain free, but if you like what you hear and are able to, please head along to www.buymeacoffee.com/longcovidpod to help me cover costs. ~ Follow me on: Facebook @longcovidpodcast ~ Instagram @longcovidpod ~ Twitter @longcovidpod ~ Website www.LongCovidPodcast.com ~ Please do get in touch with feedback and suggestions, either via the social media links or at longcovidpodcast@gmail.com - I'd love to hear from you. The Long Covid podcast is entirely self-funded and relies on donations - if you've found it useful and are able to, please go to www.buymeacoffee.com/longcovidpod to help me cover the costs of hosting.

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43 - Mohammad Bashashati - GI issues in Covid & Long Covid

Episode 43 of the Long Covid Podcast is a chat with Dr Mohammad Bashashati, Clinician Scientist & Internist  and Senior GI Fellow at Texas Tech University Health Sciences Center in El Paso, Texas. We chat about GI issues in both acute and Long Covid, and the huge numbers of people who present with these issues, despite it being a topic that isn't talked about enough. We chat about DGBI (disorders of the gut brain interaction), what this means and what might help to treat and manage them.Published studyRome Foundation - more information about COVID-19 and GI symptoms hereTwitter hashtag for DGBI  #PostCovid19DGBI~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com Support the show

43mins

13 Jul 2022

Rank #1

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42 - Dr Alison Twycross - LCNMUK

Episode 42 of the Long Covid Podcast is a chat with Dr Alison Twycross, founder of Long Covid Nurses & Midwives UK. We chat through her experiences with Covid & then Long Covid as well as her work in employment and specifically with nurses & midwives. There are a lot of employers who are treating their staff well, but sadly there seem to be more that aren't and we chat about some of the problems & possible solutions to helping people with Long Covid (& other chronic conditions) to recover whilst remaining in work.LCNMUK websiteSocial links – Twitter/FaceBook/InstagramAlison's blogs:BMJ - "Support for healthcare professionals with Long Covid returning to work a national disgrace"BMJ - The rise & fall of our NHS heroesBMJ - Disability is not what you think it isBMJ - Is a lack of knowledge about Long Covid a reason to dodge people's needs?"Living with Long Covid - some reflections 14 months down the line"Financial Times articleEvidence based podcast with Elaine Maxwell (NIHR) ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com Support the show

48mins

6 Jul 2022

Rank #2

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41 - Joachim Gerlach - Vedicinals-9

Episode 41 of the Long Covid Podcast is a chat with Joachim Gerlach about Vedicinals-9 - a nutraceutical developed to help Covid and Long Covid. We chat about how this differs to pharmaceuticals and a bit about how it was developed. We also chat a little about the Long Covid Foundation (link below) and what it is hoping to achieve. Vedicinals Website  (can be ordered from here - also lots of info about Vedicinals & link to clinical trial) Long Covid Foundation3rd Long Covid Coalition Conference (Thrombosis & Coagulation)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com Support the show

42mins

30 Jun 2022

Rank #3

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40 - Dr Boon Lim - autonomic dysfunction, the heart & Long Covid

Episode 40 of the Long Covid Podcast is a chat with the wonderful Dr Boon Lim. We talk about the heart and how it's connected to the rest of the body, what can go wrong when something like Long Covid affects the body and how we can help ourselves and get better (what more could we want?!)I have already listened to this episode several times myself and actually felt instantly slightly better after hearing it! It's quite a long listen but it's really worth getting to the end, even if you need to take a break. Keeping your heart healthy by Dr Boon Lim https://stopfainting.com/long-covid-resources/ Suzy Bolt - 360 Mind Body Soul ENO breatheUK PoTS resource – PoTS UK.org Dr Boom Lim & Suzy Bolt in conversation about how Dysautonomia can affect the body Dr Boon Lim discussing recovery with his patient Nataliehttps://stopfainting.com/breathe-yourself-better/https://stopfainting.com/wp-content/uploads/2021/03/Long-Covid-Autonomic-Dysfunction-Patient-Sheet.pdfAutonomic dysfunction in LC, rationale for treatment & management for LC – Paper Jan 2021~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at LongCovidPodcast@gmail.com Support the show

1hr 12mins

22 Jun 2022

Rank #4

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39 - Lynn Laidlaw & Tracy Ibbotson - PPI & Research Involvement

Episode 39 of the Long Covid Podcast is a chat with Lynn Laidlaw & Tracy Ibbotson who are very involved in research involvement and PPI (Patient & Public Involvement) but they have had very different journeys to this point.We chat through some of their experiences, why it is really worthwhile to get involved and how this might be possible in different ways.If you'd like to know more, you can get involved with Tracy at Glasgow uni or the UK research involvement groups via the links below, or drop me a message if you would like to know more about other countries and I'll do my best to find out.Links:Glasgow Univeristy PPI infoUK Research InvolvementFrom diagnostic odyssey to involvement odyssey – an emotional journey | UCL UCL Public Engagement Blog (By Lynn Laidlaw)Co-production and involvement in health research: why aren’t we showing our working? | UCL UCL Public Engagement Blog (by Lynn Laidlaw)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.com Support the show

1hr 7mins

15 Jun 2022

Rank #5

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38 - Dr Tina Peers - MCAS & Long Covid

Episode 38 of the Long Covid Podcast is a chat with Dr Tina Peers who is a leading expert in MCAS - Mast Cell Activation Syndrome, a little known condition which seems to be intertwined with Long Covid. As people with Long Covid struggle to learn about the condition, Dr Peers shares her knowledge about MCAS, some treatment/management options and some of the experiences she has had with it. We also talk about a few other things she has found that can help with MCAS and Long Covid. It's a fascinating chat and hopefully everyone can take something useful from it! Links:Bergamaschi et al (Oxford Uni) StudyGreat Plains Mycotoxin test (mould exposure)SIGHI low histamine diet listARC Microtech device (use discount code TP6PHP for money off)TreatLongCovid.com – LC conference World counsel for health.org ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.com Support the show

50mins

8 Jun 2022

Rank #6

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37 - Dr Asad Khan

Episode 37 of the Long Covid Podcast is a chat with Dr Asad Khan who has become well-known among the Long Covid communities. Asad caught Covid whilst working as a respiratory doctor on Covid wards, and has since developed Long Covid.We chat through this experiences as well as what he has done in terms of treatments & managing symptoms. There is loads of really useful stuff in here - it was a pleasure chatting and I hope some of it is useful to you too.Links:Microbiome testingVagus nerve stimulation Placement and Settings Vagus nerve exercises (Sukie Baxter) Unlocking the healing power of the vagus nerveFundraiser for Resia Pretorius clot detection methodVedicinalsGez 2 year video~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.com Support the show

54mins

1 Jun 2022

Rank #7

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36 - Dr Mark Faghy

Episode 36 of the Long Covid Podcast is a chat with Dr Mark Faghy about the work he and his team are doing to support rehabilitation for Long Covid, based at the university of Derby.The project has many arms and he explains all the different bits they are looking into, and how important listening to the patient voice is. Although all things take time - it's good that Mark & his team are looking to do things right - and I'm looking forward to seeing how things go forward.~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.com Support the show

43mins

25 May 2022

Rank #8

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35 - Axcella Therapeutics - AXA1125

Episode 35 of the Long Covid Podcast is a chat with Dr. Margaret Koziel, Chief Medical Officer and Bill Hinshaw, CEO from Axcella Therapeutics. Axcella Therapeutics is a biotech company based in Boston and they are currently working in collaboration with Oxford University on a clinical trial testing the impact of Long Covid on overall mitochondrial function, particularly the ongoing fatigue and brain fog symptoms.Links:Axcella Therapeutics Announces Initiation of AXA1125 Long COVID Phase 2a Clinical Trial – Axcella Therapeutics (axcellatx.com)Axcella Therapeutics Launches Clinical Program to Develop Treatment for Patients with Long COVID – Axcella Therapeutics (axcellatx.com)~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.com Support the show

36mins

18 May 2022

Rank #9

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34 - Sam Munslow - author & the "Covid Coach"

Episode 34 of the Long Covid Podcast is a chat with Sam Munslow about her experiences with Covid and then Long Covid, and how that led to her new book "We Will Covive" and her becoming The Covid Coach.Sam's book is written with diary entries followed by reflections and it was fascinating reading it because I saw so many parallels from my own experiences, and had had similar reflections myself! We also talk about how our thoughts can be harmful and how "mental self-harming" adds even more nastiness on top of the physical experience of Long Covid.Links:Check out Sam's book "We Will Covive" Website HERE & buy the book HERE Sam's Blue Monkey Coaching website HERE~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please go to www.buymeacoffee.com/longcovidpod to help cover costs.Share the podcast, website & blog: www.LongCovidPodcast.comFacebook @LongCovidPodcastInstagram & Twitter @LongCovidPodFacebook Support GroupSubscribe to mailing listPlease get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at LongCovidPodcast@gmail.com Support the show

38mins

11 May 2022

Rank #10