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Dementialand™

There is another side to dementia that no one is talking about. My name is Suzka. I am an artist a painter and the last person you would think to be a caregiver. However, when my mother was diagnosed with dementia, I was suddenly left in charge. If you are living in or near Dementialand, you might find my story delightful and parts enlightening. Ahh, there are Wonders in Dementialand.

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Warning: This podcast is a series podcast

This means episodes are recommended to be heard in order from the very start. Here's the 10 best episodes of the series anyway though!

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About Dementialand™

Let me introduce myself. My name is Suzka. I am an artist, a painter and author, obsessed with a story that needed to be written. A story that begins the day I left my converted warehouse in California and moved into Dementialand located in Chicago where my mother lived. I moved myself to a place where I was no more a daughter but rather part of an oddball cast one would expect to see in a Fellini movie. That time was extraordinary. But it was actually during my flight back to the states when I first realized the enormity of the subject and how important it is to tell this story. There's another side of dementia that no one is talking about. I wrote the book I needed to read during that time caring for my mother titled, ‘Wonders In Dementialand’ and now it is a serial podcast.  Today more than 47.5 million are living with Dementia worldwide. Multiply that number by the family members and caregivers affected by dementia directly, day in and day out and you have a universe of people living in or near Dementialand. This is my story.

5mins

18 Oct 2019

Rank #1

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Dementialand Introduction

My thinking: Something happened to me during the time when I was living with my mother’s dementias that I can’t explain. Maybe it started when I dropped my daughterness and met this woman who use to be my mother.  Written and produced by Suzka. Check and Like on Facebook: Dementialand Channel And don’t forget to subscribe.

5mins

18 Oct 2019

Rank #2

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Episode#2: That Dreaded Phone Call

Everyone thinks about this day. Where you’re going to be, how you’re going to react, and under what circumstances will that phone call be made. A parent has an accident and you’re forced to make decisions that change everything. For myself, I remember clearly one night. I painted into the morning. I was deliriously happy and super creative. The call came at 6:27 am. My mother fell and I needed to get home. This episode follows the physical trip as well as my head trip from my studio to the front door of my mother’s home.   Written and produced by Suzka. Based on the book: Wonders In Dementialand Please RATE AND REVIEW this podcast ALSO: YouTube Channel: Dementialand Enjoy

32mins

18 Oct 2019

Rank #3

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Episode#12: The Residents

#wheeloffortune #caregivers #dementia There is light at the end of this tunnel. Violet decided to stay at the Aged Oaks Nursing Home Pavilion once she heard the game “Wheel of Fortune” was a scheduled event in the home’s main dining room every Sunday night. Hallelujah. Voices of Residents:  Albert Cristy, Yargo Duarte and his band (The Visitors)  and Charlie the dog Written and produced by Suzka. Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast Check and Like on YouTube: Dementialand Channel

9mins

18 Oct 2019

Rank #4

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Episode#14: We’re Roomies Now

I brought my mother home from the nursing home.  She had finished the 10 day antibiotic treatment for the meningitis-encephalitis.  We were now committed roommates.  I slipped off my shoes and sunk into the sofa, resting my head on the back cushion. My mother hardly noticed that I had surrendered myself to her stories and the tiny breath that separated them. We were unplugged from the world. What I thought was real just minutes ago had lost its grip. I allowed myself to be cradled in the nonsensical, cockeyed rhythm of my mother's chatter. The crazy babbling and chopped up sentences were more engaging than trying to interpret their meaning.  Written and produced by Suzka. Based on the book: Wonders In Dementialand available on Amazon Please RATE AND REVIEW this podcast ALSO: YouTube Channel: Dementialand Enjoy

10mins

28 Oct 2019

Rank #5

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Episode#7: Who Is Violet

“My mother’s name was Violet. She was the oldest of four children. Two girls came first and then two boys born twelve and thirteen years later. The first boy’s birth was difficult. According to my mother, the midwife had to use two gallons of lubricating oil.  My mother’s baby brother didn’t slide out like a pound cake from its pan, fresh out of the oven.” Written and produced by Suzka. Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast Check and Like on YouTube: Dementialand Channel And don’t forget to subscribe.

10mins

18 Oct 2019

Rank #6

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Episode#15: Happy Hour at the DMV

This was Violet's birthday month and the month her driver's license would expire. But she was more confused these day so I was concerned. She often didn’t remember my name or how many children she had. But she remembered the expiration date on her driver license. It was bitter sweet. This could change everything. She was exceptionally alert this day as if she exercised her brain all night long. Her wits were to be tested. The stakes were high.   Written and produced by Suzka. Voices of The Greeter, Bulldog Man, Lady Eye Tester, Whimpering Man and Frederick the Examiner were by Albert C. Based on the book: Wonders In Dementialand available on Amazon Please SUBSCRIBE and check ‘thumbs-up’ Enjoy iTunes: Dementialand YouTube Channel: Dementialand

12mins

9 Nov 2019

Rank #7

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Episode#5: She Cannot Live Alone

Thank you for listening to this podcast ‘She Cannot Live Alone’. For me, it is the most important episode, the turning point in my story.  My life in Dementialand started in 2007 and after a decade, I still remember the weight of those 4 words – 'she cannot live alone'. It was devastating to hear. I was scared to death. But I must tell you, moving in with my mother to that place I called Dementialand was more amazing than horrifying. There is a certain amount of freedom that comes with memory loss. I wrote a note on a paper napkin during that time, "I learned to see my mother with my eyes opened and not curtained by her motherhood or my ego. I let go of that daughter I thought I was suppose to be.  We met each other for the first time ....almost daily.”  To this day I try to carry a little bit of Dementialand with me.  My name is Suzka. The writer and producer of the Dementialand Podcasts Voice by Doctor: William McCray Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast ALSO, check out YouTube’s Dementialand’s Channel.  Enjoy

11mins

18 Oct 2019

Rank #8

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Dementialand™ UPDATE

For the past month I have been reorganizing the Dementialand podcast. Some previous episodes got merged into one and I added images to the early podcasts. I think you like them. The timing is perfect. In the following episodes, we will be moving officially move into Dementialand.  I’ll keep you posted. Check back and even better... subscribe. It’s easy, just click the button. See you in Episode #14 

2mins

22 Oct 2019

Rank #9

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Episode#9: The Bathhouse

#memories #painting #mentor A picturesque story about Suzka, the painter, whose struggle with life and its unpredictable conditions, led her decades later to Dementialand. Episode#9 Voice of snowplow engineer and Mentor: Albert Cristy Written and produced by Suzka. Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast Check and Like on YouTube: Dementialand Channel

10mins

18 Oct 2019

Rank #10

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Episode#11: The Linoleum Side of the A.O.P.

The Aged Oak Pavilion from the linoleum side. Not sure I ever told you how I started the Dementialand podcast. It is my version of the audio book Wonders In Dementialand. Episodes are short 10-15 minute in length created for the very, very busy listeners. Let me know your thoughts in the comment section or email me directly. Thank you. Suzka Written and produced by Suzka. Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast Check and Like on YouTube: Dementialand Channel

10mins

18 Oct 2019

Rank #11

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Episode#13: Birds of Paradise

#wheeloffortune #gameshows #dementia Activity Night at the Aged Oaks Nursing Pavilion takes a dark turn that banned Suzka from all social activities. Enjoy.  My name is Suzka. The writer, narrator and producer of the Dementialand Podcasts Voices of Residents:  Albert Cristy and friend inside myself. Written and produced by Suzka. Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast Check and Like on YouTube: Dementialand Channel

11mins

18 Oct 2019

Rank #12

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Episode#4: A Botticelli Moment

Botticelli's Birth of Venus is one of the most treasured artworks of the Renaissance.  It is a painting of a goddess named Venus. Venus emerges from the sea sitting on a shell.  Her shell is pushed to the shore from winds produced by the wind-gods in a shower of roses.  As Venus is about to step out of her shell and onto the shore, a Nymph reaches out to cover her with a cloak.  Suzka realizes her new role at this point might be a Nymph. Written and produced by Suzka. Based on the book: Wonders In Dementialand Check and Like on YouTube: Dementialand Channel And don’t forget to subscribe. Enjoy

12mins

18 Oct 2019

Rank #13

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Episode#6: The Transfer

The words that doctor told me regarding my mother.... 'she cannot live alone' piled up on top of each other and stuck in my head. I could not breathe. I felt faint and damp. I blinked fast as not to cry…. "If your name is chosen, there is no turning back. As from this moment, the Triwizard Tournament has begun."   – Albus Dumbledore My name is Suzka. The writer and producer of the Dementialand Podcasts Voice of Doctor: William McCray Voice of Dumbledore: Albert Cristy Voice of Nurse Lucy: Precious Mizell Voice of Miss Blanchard: Crystal Welch Based on the book: Wonders In Dementialand™ Please RATE AND REVIEW this podcast ALSO, check out YouTube’s Dementialand’s Channel.  Enjoy

10mins

18 Oct 2019

Rank #14

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Episode#3: Just A Month Ago

I replayed that night a million times over in my head.  Did I miss something? How sick was my mother.  All I know is, she wasn’t quite the mother I remembered.  And between you and me... I think liked this one better. Written and produced by Suzka. Based on the book: Wonders In Dementialand Check and Like on YouTube: Dementialand Channel And don’t forget to subscribe. Enjoy

10mins

18 Oct 2019

Rank #15