Cover image of The National Fragile X Foundation Podcast
Health & Fitness
Medicine

The National Fragile X Foundation Podcast

Updated about 12 hours ago

Health & Fitness
Medicine
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Podcasts from Fragile X professionals and experienced family members. If you have any questions or suggestions, email NATLFX[at]fragilex[dot]org

Read more

Podcasts from Fragile X professionals and experienced family members. If you have any questions or suggestions, email NATLFX[at]fragilex[dot]org

Cover image of The National Fragile X Foundation Podcast

The National Fragile X Foundation Podcast

Latest release on Jul 05, 2012

The Best Episodes Ranked Using User Listens

Updated by OwlTail about 12 hours ago

Rank #1: Self-Regulation Through the Lifespan

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What is self-regulation and how do we modify it for Fragile X?

Join the NFXF's Robert Miller and Jayne Dixon Weber as they interview LINKS Leader/Parent Laureen Majeske and Developmental FX's Tracy Stackhouse and Sarah "Mouse" Scharfenaker for a discussion on how self-regulation makes things work for Fragile X.

Note: We apologize for some technical difficulties throughout much of this Podcast. We promise that we are doing our best to find a good way to record our calls so that it is much clearer and has less echo. Please bear with us as we get used to these new technologies!

Oct 25 2011

40mins

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Rank #2: Maximizing Your Child's Educational Experience with Individualized Education Plans

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Join us as we speak with Vicki Sudhalter, PhD, about Individualized Education Plans. The Individualized Education Plan (IEP) is a very influential document in the academic life of any child with special needs. In this session we will discuss how to help create an IEP which addresses and helps to ameliorate behavioral challenges confronting children with fragile X syndrome (FXS). This presentation will address the importance of a child's IEP and the IEP writing and approval process, with an emphasis on the importance of including accommodations for hyperarousal as part of the IEP for any child with FXS.

Sep 22 2011

1hr

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Rank #3: Surviving the Holidays

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We speak with the Foundation's Support Services Coordinator Jayne Dixon Weber about her holiday experiences with her FXS-diagnosed son Ian. She gives a few tips on how to deal with the holidays, which can also be applied to other situations.

You can reach Jayne Dixon Weber at treatment@fragilex.org

Dec 15 2010

33mins

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Rank #4: Preparing Yourself for the 13th International Fragile X Conference Part 3 of 3

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Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami. Featuring Jayne Dixon Weber Arlene Cohen Michele Kaplan Part 3 The Emotional Aspect of the Conference Taking Care of Yourself Meeting New Friends and Reconnecting Questions and Concerns

Jul 05 2012

11mins

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Rank #5: Preparing Yourself for the 13th International Fragile X Conference Part 2 of 3

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Experienced parents and conference-goers, give you the lowdown on how to prepare for the 13th International Fragile X Conference in Miami. Featuring Jayne Dixon Weber Arlene Cohen Michele Kaplan Part 2 When are Most People Arriving? What Kinds of People will be There? The Wednesday 3:45 Session Other Things to Know Spotlight on Extra Conference Activities

Jul 05 2012

24mins

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