Ranked #1
Ep. 33: Paradigm Shift in Hemophilia Treatment w/ - Dr. Michael Wang, M.D.
Ep. 33: Paradigm Shift in Hemophilia Treatment w/ - Dr. Michael Wang, M.D.
As we enter into a new phase of hemophilia treatments and products, the questions continue to grow and become more compl... Read more
25 Nov 2019
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52mins
Ranked #2
Ep. 24: Copay Accumulator Adjustment Programs Episode w/ Kollet Koulianos - February 25, 2019
Ep. 24: Copay Accumulator Adjustment Programs Episode w/ Kollet Koulianos - February 25, 2019
Do you use copay cards to access your clotting factor? What if those cards were used by your insurance company but didn’... Read more
25 Feb 2019
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1hr 10mins
Ranked #3
Ep. 13: Gene Therapy Episode - w/ Dr. Marilyn Manco-Johnson - March 26, 2018
Ep. 13: Gene Therapy Episode - w/ Dr. Marilyn Manco-Johnson - March 26, 2018
The concept of gene therapy has been floating around the hemophilia community for decades, but with recent success in cl... Read more
26 Mar 2018
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31mins
Ranked #4
Ep. 17: Mental Health - w/ Debbie de la Riva - July 23, 2018
Ep. 17: Mental Health - w/ Debbie de la Riva - July 23, 2018
Mental illness in the bleeding disorders community is a challenging topic to discuss, but given that approximately one-t... Read more
23 Jul 2018
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1hr 4mins
Ranked #5
Ep. 28: Gender Bias in Healthcare w/ - Christie VanHorne - June 24, 2019
Ep. 28: Gender Bias in Healthcare w/ - Christie VanHorne - June 24, 2019
Did you know that women are twice as likely as men to be diagnosed with a mental health condition when presenting cardio... Read more
24 Jun 2019
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56mins
Ranked #6
Ep. 20: Women with Bleeding Disorders - w/ Tammy Davenport - October 29, 2018
Ep. 20: Women with Bleeding Disorders - w/ Tammy Davenport - October 29, 2018
Imagine having all the symptoms, and even the diagnosis of hemophilia, but you constantly hear that it’s impossible for ... Read more
29 Oct 2018
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35mins
Ranked #7
Ep. 9: The Great Outdoors- w/ Pat Torrey - November 27, 2017
Ep. 9: The Great Outdoors- w/ Pat Torrey - November 27, 2017
“I can’t do that.” “That’s not for me.” “I’m not able to do that.” Thinking about the outdoors and outdoor activities c... Read more
27 Nov 2017
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37mins
Ranked #8
Ep. 11: Inhibitors and New Therapies - w/ Dr. Guy Young - January 22, 2018
Ep. 11: Inhibitors and New Therapies - w/ Dr. Guy Young - January 22, 2018
The management of inhibitors continues to be one of the greatest challenges facing researchers, clinicians, and patients... Read more
21 Jan 2018
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44mins
Ranked #9
Ep. 32: Surprise Billing 101 w/ Miriam Goldstein and Sonji Wilkes - October 28, 2019
Ep. 32: Surprise Billing 101 w/ Miriam Goldstein and Sonji Wilkes - October 28, 2019
Imagine doing your due diligence for an upcoming medical procedure by double checking your facility and providers are in... Read more
28 Oct 2019
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56mins
Ranked #10
Ep. 29: Does Treatment Adherence Mean Healthy Joints? w/ - Cindy Bailey, Ph.D - July 22, 2019
Ep. 29: Does Treatment Adherence Mean Healthy Joints? w/ - Cindy Bailey, Ph.D - July 22, 2019
Is a healthy joint an active joint or a stagnant joint? How many bleeds does it take to create damage? How does treatmen... Read more
22 Jul 2019
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50mins
Ranked #11
Ep. 31: MyBDC w/ Michelle Witkop and Maria Santaella - September 23, 2019
Ep. 31: MyBDC w/ Michelle Witkop and Maria Santaella - September 23, 2019
As a member of the rare disease community, bleeding disorder patients and their families are used to taking surveys, sig... Read more
23 Sep 2019
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1hr 3mins
Ranked #12
Ep. 27: Creator and Founder of "Parents Empowering Parents" - Danna Merritt - May 27, 2019
Ep. 27: Creator and Founder of "Parents Empowering Parents" - Danna Merritt - May 27, 2019
The latest episode of Ask the Expert features a conversation with Danna Merritt, a chronic disease social worker with ov... Read more
27 May 2019
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1hr 27mins
Ranked #13
Ep. 34: vWD Research Update - w/ Dr. Christopher Ng, M.D.
Ep. 34: vWD Research Update - w/ Dr. Christopher Ng, M.D.
von Willebrand disease is the most common bleeding disorder affecting 1% of our population and yet, it is the most unkno... Read more
23 Dec 2019
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59mins
Ranked #14
Ep. 14: Physical Therapy Episode - w/ Sharon Funk - April 22, 2018
Ep. 14: Physical Therapy Episode - w/ Sharon Funk - April 22, 2018
There are many different healthcare providers that make up the the comprehensive care model at hemophilia treatment cent... Read more
22 Apr 2018
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44mins
Ranked #15
Ep. 23: Global Health w/ Chris Bombardier - January 28, 2019
Ep. 23: Global Health w/ Chris Bombardier - January 28, 2019
New Ask the Expert host, Amy Board, sits down with previous ATE host Chris Bombardier! We ask Chris about his next adven... Read more
28 Jan 2019
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34mins
Ranked #16
Ep. 12: Community Advocates - w/ Rich Pezzillo - February 26, 2018
Ep. 12: Community Advocates - w/ Rich Pezzillo - February 26, 2018
Advocacy has long been a hot topic in the bleeding disorders community, but beyond office visits with state and federal ... Read more
25 Feb 2018
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37mins
Ranked #17
Ep. 18: Career Counselor Episode - w/ Don Molter - August 27, 2018
Ep. 18: Career Counselor Episode - w/ Don Molter - August 27, 2018
Summer is already coming to a close and for many families that means their kids are heading back to school or off to col... Read more
27 Aug 2018
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38mins
Ranked #18
Ep. 35: New Year’s Resolutions Watch-Outs - w/Debbie de la Riva
Ep. 35: New Year’s Resolutions Watch-Outs - w/Debbie de la Riva
As we begin the new year many of us are encouraged to follow through on goals we have set for ourselves, but the stress ... Read more
27 Jan 2020
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43mins
Ranked #19
Ep. 26: Value of Board Services w/ Jorge de la Riva - April 22, 2019
Ep. 26: Value of Board Services w/ Jorge de la Riva - April 22, 2019
Are you considering board service with your local chapter or a national organization? Maybe you are currently serving on... Read more
22 Apr 2019
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42mins
Ranked #20
Ep. 19: The Model Volunteer - w/ Maryann May - September 24, 2018
Ep. 19: The Model Volunteer - w/ Maryann May - September 24, 2018
Non-profit organizations couldn’t function without the critical work of VOLUNTEERS. Whether on the national or local lev... Read more
24 Sep 2018
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29mins