OwlTail

Cover image of Hand in Hand
(4)
Health & Fitness

Hand in Hand

Updated 25 days ago

Health & Fitness
Read more

Hand in Hand Show is a Strokefocus Podcast. It is a show telling stories of stroke survivors, caregivers, their support groups and institutions that support them.

Read more

Hand in Hand Show is a Strokefocus Podcast. It is a show telling stories of stroke survivors, caregivers, their support groups and institutions that support them.

iTunes Ratings

4 Ratings
Average Ratings
3
0
0
0
1

iTunes Ratings

4 Ratings
Average Ratings
3
0
0
0
1
Cover image of Hand in Hand

Hand in Hand

Latest release on Sep 13, 2020

Read more

Hand in Hand Show is a Strokefocus Podcast. It is a show telling stories of stroke survivors, caregivers, their support groups and institutions that support them.

Rank #1: Episode 3, What Should a Stroke or Brain Injury Caregiver Know?

Podcast cover
Read more
Cam and Nancy talk about the things that a Caregiver needs to know to be an effective Caregiver.

Nancy’s first recommendation is to know exactly what makes their survivor happy to provide quality of life.

Awareness of one’s own personal skills is an important tool in the caregiver’s pocket for being a better caregiver.

Nancy describes the value of respite and several other tools. Nancy’s belief in staying positive at all times is what allows her to maintain her caregiving role for now, 26 years.

Apr 22 2017

13mins

Play

Rank #2: Episode 83: Brain Aneurysm - What Do You Need to Know?

Podcast cover
Read more
A brain aneurysm occurs when a weak spot in your brain’s arterial wall bulges and fills with blood. It may also be called an intracranial aneurysm or cerebral aneurysm.

A brain aneurysm is a potentially life-threatening condition that can affect a person at any age. If a brain aneurysm bursts, it’s an emergency situation that can result in a stroke, brain damage, and even death if not treated immediately.

Listen to Tracy Faulkner, a pharmacist and an aneurysm survivor tell you what she knows about aneurysm.

Oct 01 2018

17mins

Play

Rank #3: Episode 55 From Wheelchair to Dance Floor

Podcast cover
Read more
Lucie Legaare is a champion Latin and Ballroom dancer in her category from Quebec. But do you know that she suffered a stroke at the age of 27. Doctors said she would not be able to walk again and would remain blind for the rest of her life.

She She has not only fully recovered from her stroke, but also earned her MBA and started her own business, CHANGE Pyramid Solutions. The business offers training to Healthcare professionals on the benefit and practice of self-healing.

Lucie owes her amazing recovery to the great power of self healing. She discovered her own method including meditation and sound therapy. Our body has a great potential to heal itself.

Let Lucie tell you how she got it done.

Jan 20 2018

23mins

Play

Rank #4: Episode 95, Post Stroke Psychological Challenges

Podcast cover
Read more
This is a special episode.

Dr Ayesha Hunter, who is a prime expert in post stroke trauma, met with survivors and support group leaders to discuss post stroke psychological challenges.

Strokefocus will work with Healings In Motion to offer a series of such discussions. If you would like to participate and meet the professionals directly, sign up at https://discovery.strokefocus.net/him

Oct 15 2019

36mins

Play

Rank #5: Episode 50 Maureen Harrington and Her Book Project

Podcast cover
Read more
Maureen Harrington is currently writing a book about the role of resilience and neuroplasticity in stroke recovery. The stories of survivors, caregivers, therapists and medical professionals show the way to, not only survive, but thrive post stroke.

After over twenty years in journalism (TIME and PEOPLE magazines, Reuters and The Denver Post among others) Maureen found a passion project in the stroke community. She had first-hand experience with stroke. Her mother had a mild stroke with good recovery, but her paternal grandfather died from an aneurysm in his early thirties. "Stroke has always been a shadow hanging over my family".

Listen to this interview. Mareen will discuss her unique book project, and how she connects to survivors and what she has learned about neuroplasticity and stroke recovery.

Dec 17 2017

23mins

Play

Rank #6: Episode 92 - A Journey of Inspiration - Dr Paul Coyne and Inspiren

Podcast cover
Read more
At age 26, Paul Coyne had to leave Goldman Sachs because of the residual of the stroke that happened to him.

Undeterred, Paul returned to school to prove that despite a challenging stroke recovery and a congenital heart disease, he is still capable of great success.

In the next 4-years, Paul obtained 5 degrees including a Doctorate from Columbia University School of Nursing as well as an MBA in Healthcare Management and a MS, Finance from Northeastern University. In addition, with his friend Michael Wang, Paul launched Inspiren, which is rapidly gaining traction in the medical world, leveraging Artificial Intelligence to revolutionize the nursing process.

Today, Dr. Coyne is a board-certified nurse practitioner in Adult-Gerontology with sub-specialty in palliative care and his writings on end-of-life care have been published in academic journals. Columbia named him one of 9 great graduates of their entire university of 2016 upon completion of his doctorate.

Listen to his remarkable story and get to know Dr Coyne.

Jun 05 2019

34mins

Play

Rank #7: Episode 89, Bob Mandell - Pillars of Successful Stroke Recovery

Podcast cover
Read more
Bob Mandell’s dedication to helping others stricken by stroke has led to a new career path as author, stroke coach, speaker and founder of the Stroke Recovery Foundation, whose mission is to improve post-stroke lifestyles through education, awareness, activism, advocacy, and knowledgeable resource navigation. In his prior life, he was a corporate marketing executive, partner in an international management consulting firm, an adjunct professor at Fairfield University, and an entrepreneur in the telecommunications field. He earned his M.S. in Business from Penn State and his B.B.A. from Pace University in New York.

Feb 03 2019

30mins

Play

Rank #8: Episode 57 Manny's Story - Reinventing Himself After Stroke

Podcast cover
Read more
In 2003, when Manny Gigante was 29, he suffered a stroke. He was playing paintball as a referee and suddenly felt weak. Manny tried to drive a stickshift car back home 10 miles away from where he was playing. He had no idea how he made it home. By the time he opened the door, Manny lost the strength in his leg and collapsed. Manny’s wife rushed him to the Emergency Room.
Before the stroke, he was a network engineer and technology consultant in the Silicon Valley. He worked so hard that his working hours sometimes exceed 23 hours a day.
After stroke, Manny spent 2 years in a wheelchair. In 2005, Manny lost his son due to an accident.
Although he was supported by his wife and three other kids, Manny found it hard to adjust to this sequence of tragedy. He disconnected himself from his old friends and even family members. Manny sank into deep depression. However, he later realized there were so many things to be grateful for. Instead of playing sports with his kids, he could coach them to be better human beings. Local support groups turned out to be very helpful.
Many years later, Manny has totally reinvented himself. He entered real estate business. Now he is working as a social network specialist for a number of startups in Silicon Valley. Manny is devoting a lot of time to help the local stroke community.
Manny’s daughter who is 18, wants to become an Occupational Therapist because of her dad’s experience.

Let Manny share his story with Cam. Connect with Manny on Twitter: @MannyGigante

Feb 04 2018

19mins

Play

Rank #9: Episode 88 - Kris Tucker, We Have A Lot To Share

Podcast cover
Read more
Kris Tucker is a 49 year old stroke survivor from Sydney, Australia.

Kris suffered a stroke 6 years ago at the age of 43. He was in a rain aneurysm surgery to clip the aneurysm when he suffered a stroke. Kris would like to share all the things he has learned in the last 6 years with other people affected by stroke. Kris believes that if someone had done this with him, his marathon journey would have been a lot easier. He is putting together a stroke survivor's guide to life after stroke. The guide touches mobility, balance, essential life skills and how to stimulate the cognitive thinking.

Jan 13 2019

18mins

Play

Rank #10: Episode 56 A Battle Over Aphasia - The Story of Susan Grimstead

Podcast cover
Read more
On Nov 16, 2016 Susan Grimstead suffered a severe stroke. She did not feel well that day, and went upstairs after dinner to rest before she noticed something seriously wrong. She was rushed to hospital in ambulance. Since then her life has completely changed.

Before stroke, Susan was always on the go. A lot of her time was spent with her 90 year old dad and my family. She would see them 4 out of 5 days a week. She never stayed at home during the day and spent most of her time out and about, specifically bargain shopping.

The stroke left Susan with aphasia and numbness on the right. She learned how to drive with left foot pushing accelerator. She has been fighting to keep her on speech therapy.

Susan has found it really hard to get information to help survivors recover.

Susan’s family did a lot of research after her stroke and found a program in Chicago that was specific for Aphasia patients. The program is offered by Shirley Ryan AbilityLab.

In April 2017, she went to the program, which helped her more than anything thus far with her speech. Susan was in therapy 8am-5pm five days a week for a month. The program hooked her up with many in the same boat. It also gave her a reason to keep going and try harder. Susan wants people in my area that have Aphasia to have a program like she did in Chicago. Her goal is to have more resources for adults with Aphasia especially for the Wilmington, NC area.

Listen to her story. As Susan said it, never give up. Keep going!

Jan 28 2018

11mins

Play

Rank #11: Episode 77 - Living With A New Perspective

Podcast cover
Read more
Clem Sudder is a stroke survivor, a member of the Unlimited Possibilities. A local stroke and TBI support group in Georgia and a flagship group in Brain Injury Association of Georgia.

Clem has played a very important role in helping Unlimited Possibilities grow. He offers some very unique perspectives on many issues around Stroke and TBI recovery. Encouraged by his fellow group members, Clem started a vlog.

Currently, Clem is running an online support group. You can join Clem each Friday at 3 pm Eastern Standard Time. There is no cost. As long as you have a good internet connection, you can join via a smartphone, a tablet or a computer connected with a webcam and a microphone.

Jul 01 2018

28mins

Play

Rank #12: Episode 97, Make The Voice Heard - Interview With Vince Holland

Podcast cover
Read more
Vince is a fitness enthusiast and an olympic weightlifter hobbyist.

At 28 years old he suffered an ischemic stroke that left him with hemiparesis on the 4th of July 2016.

Vince credits being extremely blessed and remaining focused on positivity throughout rehab and onto recovery outside of the facility with making progress over the 3 years since his stroke.

Vince views recovery as an ongoing challenge and sees this as an opportunity to share his story. With an emphasis on community, Vince has participated in online campaigns to raise awareness for stroke.

Vince is learning to share what he believes are words of positivity and encouragement. He even says that this hurdle was given to him to show others what a survivor can beat with resolve.

Dec 19 2019

23mins

Play

Rank #13: Episode 82, A 17 Year Journey, The Story of Marc and Harriet

Podcast cover
Read more
17 years ago, Marc and Harriet had a peaceful and beautiful life in Florida. Marc worked for Disney. He is also a broadcast enthusiast. He loved his studio. Harriet is a Pharm D in Pharmacy and a well-seasoned pharmacist.
Their beautiful life was disrupted by Marc’s stroke, which happened totally out of blue.
After that, they faced many challenges, including loss of job and lack of support. They never gave up. They tried out many things that can be helpful for other survivors and caregivers to know.
Today, Marc and Harriet help out with the Young Stroke Organization to help spread what they have learned.

Sep 16 2018

32mins

Play

Rank #14: Episode 76 Naomi Beigel - Live Life To The Fullest

Podcast cover
Read more
Naomi Beigel is a stroke survivor. On April 8 of 2010, she went in for a full hip replacement. This was not the first surgery she had after having aortic valve replacement done in 1989.
Naomi was in critical condition for three days. Doctors were very concerned that she would not make it. Naomi realized her left side didn't work at all. But she was able to talk.
During that time, a nurse who came to do her vitals asked if she was a stroke patient. Naomi said no. And the nurse told her she was now. A male nurse asked Naomi to tell her husband she had a stroke. NO doctor visited him for several hours when he arrived at the hospital.
Initially, doctors told her husband she wouldn’t able to drive. They even canceled her car insurance.
Naomi never gave up. She was very aggressive with therapies. She staid in the hospital for over six weeks.
Since 2010 Naomi took on all kinds of occupational and physical therapies. She learned to set small and achievable goals. She worked through a lot of frustration and anger. Naomi is determined that she would live the lives the best she could. As her husband was nearing retirement, she didn't want him to have to push a wheelchair around so she tried everything she could to learn to walk again. She even found a volunteering position at the local police department. This volunteer work helped her speech improve noteably.
Naomi and her husband traveled at least three times to Hawaii then Aruba and St. Martin and a lot of family gatherings they had learned how to set up a bathroom so she could be safe in it.

In April 2017, she went on a 15-day cruise through the Panama Canal. She did not know that her husband would fall sick after they landed back in LA May 4. Naomi started to take care of him until he passed September 2 my life was taking care of him.
Naomi is now working to deal with the stroke and loss of her best friend for 52 years, her late husband, Rich.
Naomi has learned when she gets frustrated, she could say to herself three things she is grateful for that she can do. It does help. She is a firm believer where there is a will there is a way.

Listen to her interview with Cam.

Jun 24 2018

22mins

Play

Rank #15: Episode 91 - A Remarkable Trial - Sharon and the treatment that changed her

Podcast cover
Read more
Sharon Thomas was a road construction worker in Oregon, whose life took an unexpected turn at age 45 when she collapsed with a massive stroke that left her unable to walk, talk or even swallow. Her stroke struck one night while she was clearing dishes after dinner at her parents' house near Roseburg, Oregon.

Her father noted that something was wrong with Sharon and that she may be having a stroke. She felt herself falling--knowing she was going to fall but not why--and was caught by John, her husband.

Sharon was airlifted from a nearby hospital to OHSU in Portland. John was told to prepare for a long period of rehab for Sharon and that life would never return to normal.

Fortunately, doctors at OHSU told John about a trial for a cell therapy from Athersys, Inc., called MultiStem. The study was double blind and it was disclosed after the Phase 2 trial ended that Sharon did not receive a placebo. She did receive MultiStem.

After a period of physical, occupational and speech therapy, Sharon returned to work, which required lifting 30-pound sandbags and driving heavy road construction equipment. She returned to coaching basketball and because of her continued recovery, Sharon felt confident enough to change jobs recently to work in an all-new field.

May 23 2019

14mins

Play

Rank #16: Episode 93 Multistem A Game Changer - Interview With Gil Van Bokkelen, CEO of Athersys

Podcast cover
Read more
Multistem®, a drug-like cell therapy to treat stroke with adult stem cells is developed by Athersys (ATH-er-sis), a clinical-stage biotechnology company founded by a group of leading scientists in 1995. In Episode 91, we interviewed Sharon Thomas, a survivor who experienced miraculous recovery after given multistem.

Athersys is conducting the Phase 3 clinical trials for MultiStem®. During Phase 2 trials in the U.S, the studies showed that MultiStem® could extend the treatment window for ischemic stroke patients to 36 hours, compared to the 3 or 4 hour window to treat patients with TPA. That meant individuals who may have had a stroke in their sleep, or patients who did not recognize the symptoms right away, might still have a favorable outcome with MultiStem® versus TPA.

Multistem® has obtained FDA’s Fast Track designation. It is also in Phase 3 studies in Japan. Our guest today is Gil Van Bokkelen, CEO of Athersys, who will share with us exciting progress of Multistem®.

Jul 05 2019

25mins

Play

Rank #17: Episode 94, Mark Vega - I am a runner

Podcast cover
Read more
Mark Vega is an attorney and a runner. He suffered a major ischemic on 6/22/15 and a second major ischemic on 1/11/16. Luckily, Mark recovered extremely well from both incidents. He even ran marathons after that and has run longer distances too. He is a practicing lawyer and still does that working in technology, entertainment and media. He is an Army Veteran and volunteers as the Judge Advocate for American Legion Hollywood Post 43. Since the strokes he sees his work and volunteer life center around people in transition. These include Stroke Survivors, Veterans, Trans and LGBTQ people and members of 12-Step Recovery programs.

Oct 03 2019

27mins

Play

Rank #18: Episode 79: Healing Into Possibility - Interview With Alison Shapiro, Strokefocus Cofounder

Podcast cover
Read more
Alison Shapiro was a successful business woman and a visual artist when she was hit by 2 devastating brain stem strokes in 2002 at the age of 55. This life changing event turned her into a leader, an author and educator in the stroke community.
Alison not only recovered from the injury but published her inspiring book, Healing into Possibilities and her DVD, What Now?: Sharing Brain Recovery Lessons. A strong believer of neuroplasticity, Alison runs a website healingintopossibiliy.com and provides coaching information to people who are interested in leveraging mindfulness to recover from stroke.
Alison is the cofounder of Strokefocus. In Sept 2012, Daniel suffered a brain stem stroke. Through the internet, Daniel found Alison who has been mentoring and coaching Daniel ever since. Daniel recovered remarkably well from the injury. In order to turn their experience into something that can help many people, Alison encouraged Daniel to start Strokefocus in 2014.
Alison has been involved in a number of recovery focused research projects. She created a successful stroke recovery training program which she teaches in California and Virginia.

Jul 29 2018

25mins

Play

Rank #19: Episode 80, Relentless - Ted Baxter, the story of a former banker

Podcast cover
Read more
Ted Baxter has an extraordinary life.

With his scholastic achievement, he managed to fund his own college education. He then built his new financial services consulting practice in Japan.
All this changed when Ted was hit by a stroke at the age of 41. He had no warning signs, no TIA. He was healthy as a horse, an avid exerciser, and took great care of himself. But due to his job, he spent a lot of time on airplanes and including long airplane trips, and this could be a major cause of his stroke - which as he tells his story in the book, unbeknownst to him, he had a deep vein thrombosis or DVT in his right shin that broke loose.

Listen to his story

Aug 12 2018

29mins

Play

Rank #20: Episode 78 Denise and Her Service Dog

Podcast cover
Read more
Denise Bourne is a member of the Unlimited Possibilities. A local stroke and TBI support group in Atlanta which is the flagship group in Brain Injury Association of Georgia.

Denise’s life took an unexpected turn 31 years ago. She was a Ph.D. student when suddenly everything was derailed by a Traumatic Brain Injury.

Things were very hard. It seemed that no one could understand what Denise was going through. One day, Denise found the Unlimited Possibilities which changed her life.

Today, Denise is very heavily involved in running the local group with friends who had similar experience. She is a strong advocate of local support groups to stroke and brain injury community. They are making a great difference.

Jul 15 2018

27mins

Play

Episode 103: Caregiving With a Holistic Approach

Podcast cover
Read more
Traveling Caregivers, a grassroots hope-faith based organization, is bridging the gap between self care while navigating a multitude of Caregiving concerns with a holistic lifestyle and advocacy.

Dawn Renee founder of the Traveling Caregivers, a holistic caregiver, Reiki energy and Ayurvedic practitioner struggled for most of her life to understand the triggers that were causing her to experience migraines, allergies, Endometriosis, auto immune disorder, Diabetes II, Lyme, Epstein Bar, mold exposure, gallstones and chronic fatigue. Over the past decade with a holistic nature based lifestyle approach she has devoted her life to uncovering ways to self care and healing her own disorders while holding space for others and helping them find their own recipe to self care, balance, healing, and hope.

For the last 5.5 years she has been a live in caregiver caring for a friend with stage 4 ALS, Amyotrophic Lateral Scloerosis (aka Lou Gherig’s disease). Her friend is bedridden, on a ventilator, feeding tube, catheter requiring 24/7 care and support. Navigating caregiving at whatever level you are needing can easily be one of the most challenging tasks you may experience. Currently there are 54 million unpaid caregivers in the United States many of whom are just now trying to figure out how to manage their new challenges to living their lives while caring for a friend or loved one. Traveling Caregivers was created as a way to bring light to caregivers, to be a source of hope, encouragement and resources for those seeking holistic solutions to balance self care while they are caring for others.

Dawn brings a creative and innovative approach to caregiving and is passionate about sharing her message of self care through her own personal caregiving experiences to inspire hope for others.

Sep 13 2020

30mins

Play

Episode 102: A Determined Journey - Mark Garman

Podcast cover
Read more
Mark Garman went through a traumatic event at the age of 15 that altered my life forever. Mark had brain surgery to remove an arteriovenous malformation (AVM) that was causing him to have seizures. During that surgery he suffered a stroke- along with other complications that changed his life forever. With any drastic, life altering change, in one’s life- it came with some getting used to. Mark took it in stride, overcame the odds, and conquered all obstacles in my way. As the years went by, it became apparent that everything happens for a reason. Not only was that embedded in his mind, but his motto became "My Choices Determine My Future."

Aug 03 2020

36mins

Play

Episode 101 - Enjoy the recovery process. Bill shares his journey

Podcast cover
Read more
Bill just celebrated the fact that his stroke occurred 17 years ago when he was 68 and still working every day to improve, even though most people see him as someone who has made a complete recovery. Bill had a career as a teacher, a salesman, and an executive in two different food companies. And now his life is devoted to helping other stroke survivors to be inspired with their own recovery.

Listen to Bill and Professor Patricia Geist-Martin share this wonderful story.

Jul 18 2020

30mins

Play

Episode 100: Deborah’s back with Cam: Simple Ways to Move Forward

Podcast cover
Read more
Deborah & Cam discuss how easily anyone can make simple adjustments to improve their life while in the process of recovery and beyond. Life after TBI may not be what you had envisioned; it can be better, a new normal - taking you places, meeting people you never dreamed, living a happy, healthy life.

Deborah’s award winning book Becoming the Healer The Miracle of Brain Injury is packed full of helpful ideas for those going through medical trauma and those who care for them. She has moved to North Carolina where she founded Awakenings: Center for Inner Healing & Empowerment – a non-profit spiritual retreat & healing center as well as developing healing tools like Pocket Change to help others with positive change in a fun and easy way.

You may contact Deborah through the center at deborah@AwakeningsCenterNC.com or by phone at 828-645-9711 or through her Facebook page.

May 23 2020

25mins

Play

Episode 99: Mary Nicholson and Healings In Motion

Podcast cover
Read more
Mary Nicholson, Founder of Healings in Motion, was a successful businesswoman. After suffering a life-altering stroke, her biggest venture became the reclamation of her life.

Her journey of change began with a broken heart, after the devastating loss of her newlywed husband to Pancreatic Cancer. Her mourning was so severe and painful that Mary was hospitalized twice. She could not believe that the love that swept her off her feet was now gone.

While grieving, Mary had a brain aneurysm and was rushed to the hospital. While on the operating table, she then suffered an ischemic stroke, grand mal seizure and a frozen shoulder.

Her injuries left her without the ability to drive, walk or even make a complete sentence. But Mary knew that her body, mind and soul were her #1 business and priority.

With this focus, she worked relentlessly to gain back her strength and engaged with organizations that worked with others with disabilities. This led to her to coordinate and sponsor the 1st Central Valley Learning Disability Fair. The success of this event, her love of helping others and bringing people together led Mary to establish Healings in Motion.

Mar 29 2020

19mins

Play

Episode 98: George Scola, Founder and CEO Stroke Survivors Foundation

Podcast cover
Read more
George Scola is a stroke survivor.

Many years ago, stroke disrupted his thriving career in finance. Undeterred, he started the Stroke Survivors Foundation to champion the cause for stroke survivors. He now also serves on the board of the World Stroke Organization.

George has long held the vision that post discharge support is crucial to stroke survivors and a better stroke care. He is now working with Strokefocus to roll out a PDSS program in South Africa and beyond.

Mar 07 2020

36mins

Play

Episode 97, Make The Voice Heard - Interview With Vince Holland

Podcast cover
Read more
Vince is a fitness enthusiast and an olympic weightlifter hobbyist.

At 28 years old he suffered an ischemic stroke that left him with hemiparesis on the 4th of July 2016.

Vince credits being extremely blessed and remaining focused on positivity throughout rehab and onto recovery outside of the facility with making progress over the 3 years since his stroke.

Vince views recovery as an ongoing challenge and sees this as an opportunity to share his story. With an emphasis on community, Vince has participated in online campaigns to raise awareness for stroke.

Vince is learning to share what he believes are words of positivity and encouragement. He even says that this hurdle was given to him to show others what a survivor can beat with resolve.

Dec 19 2019

23mins

Play

Episode 96 Art Therapy - Panel Discussion with Dr Wilson

Podcast cover
Read more
Today, our panel of stroke and brain injury survivors will talk to Dr Cynthia Wilson, an art therapist with 15 years of experience on what art therapy can do to stroke recovery.

According to Dr Wilson, art Therapists are masters level trained individuals who use the combination of the creative arts and mental health counseling to promote the positive mental health of people of all ages. Art Therapy has been proven to reduce stress and increase confidence.

Dr Wilson believes art is a universal language that can be very healing for even those individuals experiencing the greatest depths of hopelessness. She has created the founder of the Unique Imaging Art Therapy Program which enables individuals to express themselves in a way that expands their vision of their place in the world. Her clientele has included children, adults and geriatrics in group, family and individual settings. Her solutions include art therapy, play therapy, and photo therapy techniques to children, adolescents, adults, older adults and families.

Dec 04 2019

36mins

Play

Episode 95, Post Stroke Psychological Challenges

Podcast cover
Read more
This is a special episode.

Dr Ayesha Hunter, who is a prime expert in post stroke trauma, met with survivors and support group leaders to discuss post stroke psychological challenges.

Strokefocus will work with Healings In Motion to offer a series of such discussions. If you would like to participate and meet the professionals directly, sign up at https://discovery.strokefocus.net/him

Oct 15 2019

36mins

Play

Episode 94, Mark Vega - I am a runner

Podcast cover
Read more
Mark Vega is an attorney and a runner. He suffered a major ischemic on 6/22/15 and a second major ischemic on 1/11/16. Luckily, Mark recovered extremely well from both incidents. He even ran marathons after that and has run longer distances too. He is a practicing lawyer and still does that working in technology, entertainment and media. He is an Army Veteran and volunteers as the Judge Advocate for American Legion Hollywood Post 43. Since the strokes he sees his work and volunteer life center around people in transition. These include Stroke Survivors, Veterans, Trans and LGBTQ people and members of 12-Step Recovery programs.

Oct 03 2019

27mins

Play

Episode 93 Multistem A Game Changer - Interview With Gil Van Bokkelen, CEO of Athersys

Podcast cover
Read more
Multistem®, a drug-like cell therapy to treat stroke with adult stem cells is developed by Athersys (ATH-er-sis), a clinical-stage biotechnology company founded by a group of leading scientists in 1995. In Episode 91, we interviewed Sharon Thomas, a survivor who experienced miraculous recovery after given multistem.

Athersys is conducting the Phase 3 clinical trials for MultiStem®. During Phase 2 trials in the U.S, the studies showed that MultiStem® could extend the treatment window for ischemic stroke patients to 36 hours, compared to the 3 or 4 hour window to treat patients with TPA. That meant individuals who may have had a stroke in their sleep, or patients who did not recognize the symptoms right away, might still have a favorable outcome with MultiStem® versus TPA.

Multistem® has obtained FDA’s Fast Track designation. It is also in Phase 3 studies in Japan. Our guest today is Gil Van Bokkelen, CEO of Athersys, who will share with us exciting progress of Multistem®.

Jul 05 2019

25mins

Play

Episode 92 - A Journey of Inspiration - Dr Paul Coyne and Inspiren

Podcast cover
Read more
At age 26, Paul Coyne had to leave Goldman Sachs because of the residual of the stroke that happened to him.

Undeterred, Paul returned to school to prove that despite a challenging stroke recovery and a congenital heart disease, he is still capable of great success.

In the next 4-years, Paul obtained 5 degrees including a Doctorate from Columbia University School of Nursing as well as an MBA in Healthcare Management and a MS, Finance from Northeastern University. In addition, with his friend Michael Wang, Paul launched Inspiren, which is rapidly gaining traction in the medical world, leveraging Artificial Intelligence to revolutionize the nursing process.

Today, Dr. Coyne is a board-certified nurse practitioner in Adult-Gerontology with sub-specialty in palliative care and his writings on end-of-life care have been published in academic journals. Columbia named him one of 9 great graduates of their entire university of 2016 upon completion of his doctorate.

Listen to his remarkable story and get to know Dr Coyne.

Jun 05 2019

34mins

Play

Episode 91 - A Remarkable Trial - Sharon and the treatment that changed her

Podcast cover
Read more
Sharon Thomas was a road construction worker in Oregon, whose life took an unexpected turn at age 45 when she collapsed with a massive stroke that left her unable to walk, talk or even swallow. Her stroke struck one night while she was clearing dishes after dinner at her parents' house near Roseburg, Oregon.

Her father noted that something was wrong with Sharon and that she may be having a stroke. She felt herself falling--knowing she was going to fall but not why--and was caught by John, her husband.

Sharon was airlifted from a nearby hospital to OHSU in Portland. John was told to prepare for a long period of rehab for Sharon and that life would never return to normal.

Fortunately, doctors at OHSU told John about a trial for a cell therapy from Athersys, Inc., called MultiStem. The study was double blind and it was disclosed after the Phase 2 trial ended that Sharon did not receive a placebo. She did receive MultiStem.

After a period of physical, occupational and speech therapy, Sharon returned to work, which required lifting 30-pound sandbags and driving heavy road construction equipment. She returned to coaching basketball and because of her continued recovery, Sharon felt confident enough to change jobs recently to work in an all-new field.

May 23 2019

14mins

Play

Episode 90 A Totally Different Game - Scott Kim, CEO of Neofect

Podcast cover
Read more
Scott is the CEO of NEOFECT USA, and one of the founders of its parent company, NEOFECT. The med tech company creates gamified rehabilitation solutions for patients recovering from or living with stroke, dementia, aer musculoskeletal and neurological conditions.

Scott wore several different hats before joining NEOFECT, including as a management consultant and a product manager in the software industry. Scott worked for mobile gaming companies such as GREE, Z2Live (which was acquired by King.com, a "Candy Crush" maker that was later acquired by Activision Blizzard) and 505 Games, and founded a couple of startups. NEOFECT went on an IPO in November 2018, currently traded on the KOSDAQ.

Scott was born with spinal bifida and has undergone surgery and understands the long process of rehabilitation. Spina bifida is a birth defect that occurs when the spine and spinal cord don't form properly. It falls under the broader category of neural tube defects. His prior experience in the gaming software industry has also contributed to his ability to create the games and software.

May 03 2019

20mins

Play

Episode 89, Bob Mandell - Pillars of Successful Stroke Recovery

Podcast cover
Read more
Bob Mandell’s dedication to helping others stricken by stroke has led to a new career path as author, stroke coach, speaker and founder of the Stroke Recovery Foundation, whose mission is to improve post-stroke lifestyles through education, awareness, activism, advocacy, and knowledgeable resource navigation. In his prior life, he was a corporate marketing executive, partner in an international management consulting firm, an adjunct professor at Fairfield University, and an entrepreneur in the telecommunications field. He earned his M.S. in Business from Penn State and his B.B.A. from Pace University in New York.

Feb 03 2019

30mins

Play

Episode 88 - Kris Tucker, We Have A Lot To Share

Podcast cover
Read more
Kris Tucker is a 49 year old stroke survivor from Sydney, Australia.

Kris suffered a stroke 6 years ago at the age of 43. He was in a rain aneurysm surgery to clip the aneurysm when he suffered a stroke. Kris would like to share all the things he has learned in the last 6 years with other people affected by stroke. Kris believes that if someone had done this with him, his marathon journey would have been a lot easier. He is putting together a stroke survivor's guide to life after stroke. The guide touches mobility, balance, essential life skills and how to stimulate the cognitive thinking.

Jan 13 2019

18mins

Play

Episode 87 The Story of Emo

Podcast cover
Read more
Emory Moe or Emo is 67 years old. He had a stroke in 2014 at the age of 63.

Emo worked for decades as a computer engineer. Additionally, he had been a professional rock n' roll bass player with about 200 musical dates a year. Life was good and extremely busy.

In October 2014, Emo was working on a software project when he suddenly went completely blind. He was taken by ambulance to a hospital emergency room, where people completely misdiagnosed his stroke. They thought there was something wrong with Emo’s eyes, so they sent Emo home and told him to call his doctor in the next seven to ten days. Emo called his doctor right away who had him go to an ophthalmologist to get my eyes checked out. The ophthalmologist said my eyes were fine. So the doctor referred him to a neurologist. The neurologist immediately sent Emo for an MRI where they determined that Emo had had a stroke. They always say you should get stroke treatment immediately, but by this time it was four or five days later.

Emo is grateful that he does not have any paralysis or speech problems, although he has a little trouble keeping his balance sometimes. Over a few months, his eyesight gradually came back about 80%, but Emo still has peripheral blindness in the upper left quadrant of both eyes. The initial blindness was such a devastating problem that it took him several months to realize that he had also lost a lot of cognitive function. Emo’s wife has had to take over all the family finances, including paying all the bills.

Emo has been doing his best to utilize the exercises on Luminosity.com and BrainHQ.com, but the exercises that seem difficult with minimal results so far. Emo is blessed with a wonderful wife who is very sympathetic and understanding. He does not know what he'd do without her.

Listen to Emo as he shares his story with Cam, our host.

Dec 23 2018

18mins

Play

Episode 86 Bringing Access to Survivors in Ghana - 2nd Interview With Dr Jabuni

Podcast cover
Read more
Bringing stroke care to those who do not have access is the mission for Stroke Association Support network- Ghana, which is a non profit, non governmental organization established by a small group of Ghanaians on 16th March, 2012. In Ghana, there are only 4 hospitals in the south of the country who provides stroke care to survivors. Stroke Association Support network- Ghana is working hard to change that. With its successful experiment, Stroke Association Supportnetwork- Ghana was nominated for the African Youth SDGs Award in the* LEAVE NO ONE BEHIND *category. Today, Dr Ben Jabuni, the president of Stroke Association Support network- Ghana will share with you their exciting progress and big dreams they work hard to turn into reality.

Nov 25 2018

24mins

Play

Episode 85 2nd Interview With Manny Gigante - Never Stop Reinventing Himself

Podcast cover
Read more
This is our second interview with Manny Gigante.

As you recall, Manny was a hardworking young technologist whose dream was shattered by a stroke at the age of 29. He spent the next 2 years in a wheelchair.

In 2005, Manny lost his son due to a tragic accident.

None of this has kept Manny from reinventing himself. Now Manny enjoys his time coaching kids. He got out of his wheelchair. Manny is also working to start his new career

In today's episode, listen to Manny sharing his insights on topics including the plateau and how survivors could reinventing ourselves.

Nov 04 2018

23mins

Play

Episode 84 God is Good - Interview with survivor and young poet, Marty Zimmerman

Podcast cover
Read more
Marty Zimmerman is a survivor. Five years ago at the age of 25 he suffered a hemorrhagic stroke due to a brain AVM. His left side was weakened, but much has returned since March 7, 2013. Marty wrote a book about the incident and my recovery. It is entitled "Life Interrupted - The Story of a Young Stroke Survivor."

Marty lves in his hometown of Greencastle, PA. He graduated from Messiah College and earned a Master's degree in applied history from Shippensburg University in December 2017. Marty currently works as a part-time deli clerk at Kline's Grocery Store and as a part-time instructor for the Remfrew Institute. He is the oldest of three.

Besides working Marty spends his time going to the gym, taking day trips, spending time with family, writing faith based poetry, sharing his story with groups throughout the area, reading, and studying history. Life is sweet again.

Oct 21 2018

21mins

Play

iTunes Ratings

4 Ratings
Average Ratings
3
0
0
0
1