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Talk Fragile X

Talk Fragile X Podcast consists of a group of Mom's of FX Children, Self-Advocates, and Full-Mutation carriers from the Northwest Region! We’re all on a mission to use this podcast platform to reach as many FX families as possible, create more awareness of FX, and provide helpful resources and support. Even if you don’t know what Fragile X Syndrome is, this Podcast is still for you! We want everyone to know what Fragile X is and understand it’s genetic prevalence in individuals lives.

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World Fragile X Day

We’re excited to be back with a new episode of Talk FX, after taking a pause. What better way to kick things off then to have special guest Katie Clapp, Founder of FRAXA Research Foundation on with us to share about the launch of World Fragile X Day. She shares how this idea came about, how others can get involved, and how other organizations across the nation have joined World Fragile X Day. You don’t want to miss this episode!

26mins

3 Jun 2021

Rank #1

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Special Guest: Brandy - Two boys with Full-Mutation Fragile X Syndrome

In this weeks episode, we chat with our Instagram Giveaway winner Brandy! Her and her husband have two boys (ages 3 & 6) with Fragile X. She shares how they navigate life, how much support they’ve found in their tight nit community, and talk about what being a Fragile X Parent is all about - the joys and the struggles!

38mins

25 Feb 2021

Rank #2

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Special Guest: Katie Clapp (President & Co-Founder of FRAXA Research Foundation)

We’re back with another episode of Talk FX! What better way to kick things off after a short break from our weekly episodes then to have Katie Clapp, President & Co-Founder of FRAXA Research Foundation join us! She shares with us the history of FRAXA, the motivation behind starting the foundation, how they choose Fragile X related research to fund, and much more!

30mins

13 Feb 2021

Rank #3

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ADVOCACY DAY 2021!

It’s a new year, that means another Advocacy Day is upon us! We are excited about what 2021 holds for the Fragile X Community, and gaining more awareness and support for FX! Even though this year’s Advocacy Day will be virtual, we know it’s going to be just as impactful of a day, if not more! So on today’s episode, we go into details on what this year’s Advocacy Day is going to look like, why it’s so important to participate, and more!

10mins

14 Jan 2021

Rank #4

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Approaches to Handling Aggressive Behavior & Discipline

In this weeks episode we’re joined with Debbie! She has a 13 year old son with Full-Mutation Fragile X and she shares with us her experiences with aggressive behavior & discipline as a Mother, and as a Paraeducator! We talk about the importance of patience and communication! As well as helpful resources like PEC’s if your child is non verbal. We also talk about physical approaches to relieving your FX Child of anxiety or hyperarousal. Such as a weighted blanket, a swing, or beanbag chair! We hope you are encouraged by today’s discussion!

44mins

9 Jan 2021

Rank #5

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What Has Fragile X Taught You??

In our first episode of 2021, I’m joined with Talk FX Podcast Team Member and FX Mom Kelsie! We wanted to start off the new year by talking about what Fragile X has taught us! We also talk about how to make the most of socializing our kids during this Pandemic, as well as successful and non-successful medications for things like anxiety and sleep aid! You don’t want to miss this encouraging episode!

35mins

3 Jan 2021

Rank #6

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2020 Wrap Up!

In our last episode of Talk FX of 2020, we go over our top 5 most listened to episodes!! You don’t want to miss it! Thank you to each and every one of our listeners for your support since starting Talk FX in May of this year! This podcast wouldn’t be possible if it weren’t for you tuning in every week! We hope you’ve been encouraged by this podcast, and we look forward to continuing to encourage, and create more awareness of Fragile X in 2021! Happy Holidays and we’ll see you in the New Year!!

13mins

20 Dec 2020

Rank #7

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Perspective From a Single Mom of Fragile X Full Mutation Carrier Jaxon

It’s our 20th episode of Talk FX and we’re joined with Amy, Mom to 10 Year old son Jaxon with Fragile X Syndrome! We talk about his diagnosis story, education, potty training, milestones, bullying, and more!! You don’t want to miss this episode!

47mins

12 Dec 2020

Rank #8

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Navigating Distance Learning

In this weeks episode of Talk FX, we wanted to discuss a current topic that we’ve been seeing a lot of Fragile X Families needing some support with, and that’s navigating distance learning! Is your child currently participating in distance learning? Or are they doing half distance learning and half in person? Tune into this weeks episode as we chat with Debbie, Mom of Skyler with full-mutation FX! She shares with us what her son’s journey with distance learning has looked like, some encouragement for other parents, and some tips we hope will be helpful to our FX Community!

33mins

26 Sep 2020

Rank #9

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Fragile X Author Series: Jayne Dixon Weber

Jayne Dixon Weber is no stranger to the Fragile X Community! She has been a member of the National Fragile X Foundation since 2007! She has authored and edited multiple books on Fragile X. She is also a Mother to an adult son with Fragile X Syndrome. On this weeks episode of our Fragile X Author series, Jayne talks with us about what moved her to write her books on Fragile X, her experience as a mother to a son with FX, and her impactful work with NFXF! Don’t miss this amazing interview with the one and only Jayne Dixon Weber!

39mins

10 Sep 2020

Rank #10