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HAE Speaks

HAE Speaks, a podcast series on important Hereditary Angioedema (HAE) topics. Listen to patients, caregivers, and medical professionals discuss strategies to manage stress, prepare for a visit with your HAE specialist, care for a loved one with HAE, what to expect when you are newly diagnosed, the road to treatment, and much more.

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Episode 14: Chaeli: HAE and Travel

Chaeli discusses traveling with HAE. She talks about how she prepares to travel by car and plane. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

12mins

28 May 2021

Rank #1

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Episode 13: Lisa: HAE events

In this episode of HAE Speaks, Lisa talks about how Team Jack started. Lisa also discusses all of the DIY HAE events Team Jack hosts and attends each year. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

19mins

4 May 2021

Rank #2

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Episode 12: Jess's HAE Journey

Episode 12 is hosted by Jess, an HAE patient and HAEA team member. She talks about her journey through diagnosis, her experience traveling abroad, and what she would tell her younger self when she was first diagnosed with HAE. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

25mins

6 Apr 2021

Rank #3

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Episode 11: HAE and Education

In this episode, Missy, Marti and Marna talk about speaking with your children’s school and teachers of their HAE diagnosis. As mothers of children with HAE, they emphasize the importance of  keeping the school up to date about HAE. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

25mins

1 Mar 2021

Rank #4

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Episode 10: Hannah's HAE Journey

Hannah C., an HAE patient, and HAEA team member, talks about her HAE journey, including growing up with an HAE diagnosis, attending school, and overall life while having HAE. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsors: BioCryst Pharmaceuticals Ionis Pharmaceuticals Takeda

9mins

1 Feb 2021

Rank #5

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Episode 9: HAE and pregnancy

Stephanie speaks with Missy about her HAE journey during her pregnancies. For more information about Hereditary Angioedema please visit HAEA.org Thank you to our sponsor Ionis Pharmaceuticals

6mins

4 Jan 2021

Rank #6

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Episode 8: 2020 Team HAEA

As you may already know, the HAEA has adapted to the uncertainty provoked by the COVID-19 pandemic by swiftly transitioning our 2020 scheduled programs and events to fun and engaging virtual platforms.  In just a few months, we have successfully developed and launched interactive contests, advocacy training modules, virtual Meet & Greet events, and more to fulfill the needs of the HAEA community. We have also increased the number of webinars and their content. Listen as HAEA staff discuss how together, we have adapted to this virtual world.

27mins

29 Nov 2020

Rank #7

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Episode 7: HAEA Support

In this episode of HAE Speaks we connect with Marna and Adina to learn more about the HAEA Support Groups.

12mins

2 Nov 2020

Rank #8

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Episode 6: Advocating for HAE

Linda P. provides insight to her HAE journey and tips about creating HAE awareness.

7mins

21 Sep 2020

Rank #9

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Episode 5: Road to Treatment

Michael G. shares his road to treatment and overcoming his fear of needles.

12mins

21 Aug 2020

Rank #10