Jorge de la Riva's guest appearances

Jorge de la Riva

BloodStream

Ask The Expert - A BloodStream Media Podcast

Justin Levesque

Debbie de la Riva

Chris Bombardier

Robert Sidonio

Sharon Meyers

Steven Pipe

Len Valentino

Rich Pezzillo

Guy Young

Miriam Goldstein

Damian Washington

James Hunt

Michael Callaghan

Dana Francis

Jeremy Griffin

OwlTail

Are you considering board service with your local chapter or a national organization? Maybe you are currently serving on a board and know the unique struggle this volunteer position can face. Join us for a special Ask the Expert episode as we sit down with Jorge de la Riva, former board chair of The National Hemophilia Foundation. Jorge shares his personal views of the role of a board member and how serving your community in this way can be rewarding for you and your family. “The best way to find yourself is to lose yourself in the service of others” - Gandhi. Welcome to Episode 26 - or our The Value of Board Service Episode - of the Ask The Expert Podcast!     Follow the link below for continued resources on board service: https://boardsource.org/      “The best thing a new board member can do is listen.”   “The Board Chair/President is there to serve the community and staff, while execited the will of the board.”   “A solid working relationship between the CEO/executive director and the board chair is based on aligned values, transparency and clear directives from the board.”   Connect with BloodStream: BloodStream Facebook Page BloodStream Twitter Account Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Host Patrick James Lynch on Twitter and Instagram.

Are you considering board service with your local chapter or a national organization? Maybe you are currently serving on a board and know the unique struggle this volunteer position can face. Join us for a special Ask the Expert episode as we sit down with Jorge de la Riva, former board chair of The National Hemophilia Foundation. Jorge shares his personal views of the role of a board member and how serving your community in this way can be rewarding for you and your family. “The best way to find yourself is to lose yourself in the service of others” - Gandhi. Welcome to Episode 26 - or our The Value of Board Service Episode - of the Ask The Expert Podcast!   Follow the link below for continued resources on board service: <a href="https://boardsource.org/" rel="nofollow" target="_blank">https://boardsource.org/</a> <ul> <li> “The best thing a new board member can do is listen.” </li> <li> “The Board Chair/President is there to serve the community and staff, while execited the will of the board.” </li> <li> “A solid working relationship between the CEO/executive director and the board chair is based on aligned values, transparency and clear directives from the board.” </li> </ul> Connect with BloodStream: <a href="https://www.facebook.com/BloodStreamMedia" rel="noopener nofollow" target="_blank">BloodStream Facebook Page</a> <a href="https://twitter.com/BloodstreamInfo" rel="noopener nofollow" target="_blank">BloodStream Twitter Account</a> Email <a href="mailto:mailbag@bloodstreammedia.com" rel="noopener">mailbag@bloodstreammedia.com</a> Find all of our bleeding disorders podcasts on <a href="http://bloodstreammedia.com/" rel="noopener nofollow" target="_blank">BloodStreamMedia.com</a> BloodStream Host Patrick James Lynch on <a href="https://twitter.com/pjlynch" rel="noopener nofollow" target="_blank">Twitter</a> and <a href="https://www.instagram.com/patrickjameslynch/" rel="noopener nofollow" target="_blank">Instagram</a>.

Ep. 26: Value of Board Services w/  Jorge de la Riva - April 22, 2019

Description: In this episode, Patrick and Natalie review some advocacy best practices, take a look at the increasingly popular cryotherapy, share one mom's (anonymous) story of addiction, hemophilia and family, and during the Sit-Down segment, Patrick speaks with NHF board member Jorge de la Riva about how NHF's board works, his views on health and social advocacy, and his family's personal story of being introduced to hemophilia. All this and more on Episode 9 of BloodStream! Click "Episodes" above to stream or download.   Sponsors for Episode 8: Presenting Sponsor: Stop The Bleeding! (STB!) Link to STB! Website Supporting Sponsor: Shire Link to BleedingDisorders.com   Trending Topics: EMA Names Investigational Gene Therapy, BMN 270, a Priority Medicine for Hemophilia A (Link) FDA Gives Breakthrough Designation to Hemophilia Gene Therapy (Link) Daily Infusion of Low-dose Factor VIII Found to Benefit Some Hemophilia A Patients (Link) LA Kelley Launches a New Edition of Raising a Child With Hemophilia (Link) Learn more about all of LA Kelley’s offerings (Link) Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (Link) HFA 2017 Policy &amp; Government Relations Internship (Link) New and Improved Blood Brotherhood Forum from HFA (Link) Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (Link) Like Share Comment: Like: What is cryotherapy and is it effective/safe for people with chronic pain and/or joint problems?  Link to Article. Share: A community Mom shares her story on addiction, family, and bleeding disorders.  Link to Article from HFA: Opioids, Addiction, &amp; Bleeding Disorders (Jan 2016). Comment: Advocacy, Washington Days, and how to advocate an advocate community member:  Link to Article from NHF: How to Advocate to Protect Access to Health Insurance.  Link to NHF’s Share Your Story Campaign   Sit-Down Segment with NHF Board Member Jorge de la Riva Jorge on Twitter Link   Connect with BloodStream: Email mailbag@bloodstreammedia.com Find all of our bleeding disorders podcasts on BloodStreamMedia.com BloodStream Facebook Page BloodStream Twitter Account   Subscribe to BloodStream: iTunes: http://bit.ly/bloodstreamitunes Stitcher: http://bit.ly/bloodstreamstitcher LibSyn: http://bit.ly/bloodstreamlibsyn SoundCloud: http://bit.ly/bloodstreamSC TuneIn: http://bit.ly/bloodstreamtunein Google Play: http://bit.ly/bloodstreamPlay

Description: In this episode, Patrick and Natalie review some advocacy best practices, take a look at the increasingly popular cryotherapy, share one mom's (anonymous) story of addiction, hemophilia and family, and during the Sit-Down segment, Patrick speaks with NHF board member Jorge de la Riva about how NHF's board works, his views on health and social advocacy, and his family's personal story of being introduced to hemophilia. All this and more on Episode 9 of BloodStream! Click "Episodes" above to stream or download. Sponsors for Episode 8: Presenting Sponsor: Stop The Bleeding! (STB!) <a href="http://stbhemo.com" rel="nofollow" target="_blank">Link to STB! Website</a> Supporting Sponsor: Shire <a href="http://bleedingdisorders.com" rel="nofollow" target="_blank">Link to BleedingDisorders.com</a> Trending Topics: EMA Names Investigational Gene Therapy, BMN 270, a Priority Medicine for Hemophilia A (<a href="https://hemophilianewstoday.com/2017/02/03/biomarin-receives-priority-medicines-prime-regulatory-support-in-eu-for-bmn-270-gene-therapy-in-hemophilia-a/" rel="nofollow" target="_blank">Link</a>) FDA Gives Breakthrough Designation to Hemophilia Gene Therapy (<a href="https://www.hemophilia.org/Newsroom/Industry-News/uniQure-Investigational-Hemophilia-B-Gene-Therapy-Receives-Breakthrough-Designation-from-FDA" rel="nofollow" target="_blank">Link</a>) Daily Infusion of Low-dose Factor VIII Found to Benefit Some Hemophilia A Patients (<a href="https://hemophilianewstoday.com/2017/01/25/daily-infusion-of-low-dose-factor-viii-improves-trough-level-in-small-group-of-patients-with-severe-hemophilia-a-study-finds/" rel="nofollow" target="_blank">Link</a>) LA Kelley Launches a New Edition of Raising a Child With Hemophilia (<a href="http://www.prweb.com/releases/2017/01/prweb14011379.htm" rel="nofollow" target="_blank">Link</a>) Learn more about all of LA Kelley’s offerings (<a href="http://kelleycom.com" rel="nofollow" target="_blank">Link</a>) Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (<a href="http://www.hemophiliafed.org/news-stories/2017/02/bioverativ-officially-spins-off-of-biogens-hemophilia-business/" rel="nofollow" target="_blank">Link</a>) HFA 2017 Policy &amp; Government Relations Internship (<a href="http://www.hemophiliafed.org/advocacy/2017-policy-government-relations-internship/" rel="nofollow" target="_blank">Link</a>) New and Improved Blood Brotherhood Forum from HFA (<a href="http://community.bloodbrotherhood.org/login" rel="nofollow" target="_blank">Link</a>) Bioverativ Officially Spins-Off of Biogen’s Hemophilia Business (<a href="http://www.hemophiliafed.org/news-stories/2017/02/bioverativ-officially-spins-off-of-biogens-hemophilia-business/" rel="nofollow" target="_blank">Link</a>) Like Share Comment: Like: What is cryotherapy and is it effective/safe for people with chronic pain and/or joint problems? <a href="http://www.travelandleisure.com/trip-ideas/yoga-wellness/cryotherapy-session" rel="nofollow" target="_blank"> Link to Article</a>. Share: A community Mom shares her story on addiction, family, and bleeding disorders. <a href="http://www.hemophiliafed.org/news-stories/2016/01/opioids-addiction-bleeding-disorders/" rel="nofollow" target="_blank"> Link to Article</a> from HFA: Opioids, Addiction, &amp; Bleeding Disorders (Jan 2016). Comment: Advocacy, Washington Days, and how to advocate an advocate community member: <a href="https://www.hemophilia.org/Newsroom/Advocacy-Legislative-News/How-to-Advocate-to-Protect-Access-to-Health-Insurance" rel="nofollow" target="_blank"> Link to Article</a> from NHF: How to Advocate to Protect Access to Health Insurance. <a href="https://www.hemophilia.org/Advocacy-Healthcare-Coverage/Share-Your-Story" rel="nofollow" target="_blank"> Link to NHF’s Share Your Story Campaign</a> Sit-Down Segment with NHF Board Member Jorge de la Riva Jorge on Twitter <a href="https://twitter.com/jorgedelariva3" rel="nofollow" target="_blank">Link</a> Connect with BloodStream: Email <a href="mailto:mailbag@bloodstreammedia.com">mailbag@bloodstreammedia.com</a> Find all of our bleeding disorders podcasts on <a href="http://bloodstreammedia.com" rel="nofollow" target="_blank">BloodStreamMedia.com</a> <a href="https://www.facebook.com/BloodStreamMedia" rel="nofollow" target="_blank">BloodStream Facebook Page</a> <a href="https://twitter.com/BloodstreamInfo" rel="nofollow" target="_blank">BloodStream Twitter Account</a> Subscribe to BloodStream: iTunes: <a href="http://bit.ly/bloodstreamitunes" rel="nofollow" target="_blank">http://bit.ly/bloodstreamitunes</a> Stitcher: <a href="http://bit.ly/bloodstreamstitcher" rel="nofollow" target="_blank">http://bit.ly/bloodstreamstitcher</a> LibSyn: <a href="http://bit.ly/bloodstreamlibsyn" rel="nofollow" target="_blank">http://bit.ly/bloodstreamlibsyn</a> SoundCloud: <a href="http://bit.ly/bloodstreamSC" rel="nofollow" target="_blank">http://bit.ly/bloodstreamSC</a> TuneIn: <a href="http://bit.ly/bloodstreamtunein" rel="nofollow" target="_blank">http://bit.ly/bloodstreamtunein</a> Google Play: <a href="http://bit.ly/bloodstreamPlay" rel="nofollow" target="_blank">http://bit.ly/bloodstreamPlay</a>

Ep. 9: February 20th, 2017 - w/ Special Guest  Jorge de la Riva