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Spina Bifida

53 Podcast Episodes

Latest 23 Oct 2021 | Updated Daily

Weekly hand curated podcast episodes for learning

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Spina Bifida Awareness Month Part 2 w/ Joanna Frenz & Ryan Fromm

We're The Inspiration™

Spina Bifida Awareness Month continues as I speak with my friends Ryan From and his mother Joanna Frenz.  We talk about many aspects of spina bifida, as well as Joanna's reaction to Ryan's first episode.   Like us on Facebook: https://www.facebook.com/We.R.In.Pod Follow us on Twitter:  https://twitter.com/We_R_In_Pod Join us on Discord: https://discord.gg/MJf8eYhE3F Subscribe on Youtube:  https://www.youtube.com/channel/UCrzpCEit4LJ9ljYCQFTZhRQ


14 Oct 2021

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Spina Bifida vs Derrek Cooke

An Apple A Day

In this episode, Jimmy speaks with Derrek Cooke, founder and CEO of Derrek's Bags. Derrek was born with Spina Bifida but has not let that hold him back. He has a positive, can-do attitude and is destined for big things! Check out this funny story of positivity and inspiration. Websites in this podcast: www.famousapple.com, www.famousapple.com/group www.famousapple.com/guitar (#ad Amazon) https://www.etsy.com/shop/DerreksBagswww.facebook.com/DerreksBagswww.twitter.com/derreksbagswww.instagram.com/derreksbagswww.cdc.gov/spinabifida   Jim Gaven----www.keyofawesomemusic.com


13 Oct 2021

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S03| Episode 8 Spina Bifida Interview with Amanda kern

Tulips in Tuscany

On this episode we had the opportunity to chat with Amanda Kern, Mom of chance Kern, who has spina Bifida. Redefining Spina Bifida - www.redefiningspinabifida.org Redefining Spina Bifida Facebook - www.facebook.com/redefiningspinabifida Spina Bifida Association - https://www.spinabifidaassociation.org/ Amanda Kern Photography Facebook - www.facebook.com/amandakernphotography Super Chance - www.facebook.com/superchancekern Allison Lefebvre story shared on SBA's page (including Haiti story that relates to the popular Holland poem) – https://www.facebook.com/spina.bifida.learn/posts/10155598641067019 Allison Lefebvre - http://anupwardreckoning.com/ Something So Worth It (the org founded by Allison Lefebvre mentioned) - https://www.somethingsoworthit.org/  LINKS: Instagram- @Tulipsintuscany | Website- tulipsintuscany.com | Support Tulips & get awesome perks- Patreon | Tulips Merchandise- Shop | If you are interested in advertising with us on our podcast please fill out the contact form on our website.--- Support this podcast: https://anchor.fm/tulipsintuscany/support

1hr 15mins

7 Oct 2021

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Spina Bifida | a neural tube defect

You're Kidding, Right?

Spina bifida is a type of neural tube defect. It is caused by an incomplete closing of the embryonic neural tube. The vertebrae overlying the neural tube defect do not become fully formed and remain unfused and open. If the opening is large enough, this allows a portion of the spinal cord to herniate through the opening in the bones. Although the cause is not known, low folate levels during pregnancy increase risk. Some children are asymptomatic, and others have severe neurologic dysfunction below the lesion. It can be diagnosed prenatally by ultrasonography or suggested by elevated alpha-fetoprotein levels in maternal serum. Treatment is usually surgical although it is not curative. Follow us on Instagram @yourekiddingrightdoctors Facebook: https://www.facebook.com/yourekiddingrightpod-107273607638323/ Our email is yourekiddingrightpod@gmail.com Make sure you hit SUBSCRIBE/FOLLOW so you don’t miss out on any pearls of wisdom and RATE if you can to help other people find us! (This isn’t individual medical advice, please use your own clinical judgement and local guidelines when caring for your patients)


22 Aug 2021

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Spina Bifida

New Heights Show on Education

A discussion of Spina Bifida. Resources:Mayo Clinichttps://www.mayoclinic.org/diseases-conditions/spina-bifida/symptoms-causes/syc-20377860Spina Bifida Facts at the CDChttps://www.cdc.gov/ncbddd/spinabifida/facts.htmlThe Spina Bifida Associationhttps://www.spinabifidaassociation.org/Fact Sheet at the National Institute of Neurological Orders and Strokehttps://www.ninds.nih.gov/disorders/patient-caregiver-education/fact-sheets/spina-bifida-fact-sheetResources from Tiny Superheroeshttps://tinysuperheroes.com/spina-bifida-ultimate-resource-guide/


25 Mar 2021

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Walking Through The Trenches: Health Issues, Spina Bifida And More

Real Soulutions Podcast

Today we have Lexie Thiery. She has such a powerful story. From overcoming an eating disorder to having her baby diagnosed with spina bifida, to all the other trenches she had gone through in her life, find out her story in this podcast! In this episode of Real SOULutions: 03:00 - What is Lexie’s story? 05:50 - How did Lexie’s story start? What were the trenches she had been through? 12:00 - What is orthorexia? 22:00 - Lexie’s pregnancy and about how they discovered the spina bifida 37:00 - What happened after the birth of Lexie’s baby 43:00 - What did Lexie do to help her during her trying times? 49:00 - How did Lexie start living a healthy lifestyle and switching to non-toxic items? 56:00 - If you are going through a hard time now, here’s Lexie’s message for you You can find Lexie on: https://www.instagram.com/lexiethiery/ https://www.youtube.com/channel/UCIi52PO4nez88ufm8Z1ryYw

1hr 3mins

24 Mar 2021

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Spina Bifida and our Family: Conversation with Micah & Jillian Thomas


On today’s episode I welcome my guests Micah & Jillian Thomas. Join our conversation as we discuss their family dynamics of raising their daughter who has spina bifida in a family with other siblings who do not have disabilities, and find out what advice they have for parents raising children who have disabilities.    Follow OurView on Social Media for more disability related content: Facebook, Instagram, Twitter, and YouTube Visit our Website: https://linktr.ee/ourview4life Follow Micah on Twitter: @micahitceo


22 Mar 2021

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2. Spina Bifida, wheelchairs, and Burger King


This time my housemates are the hosts, as they ask me other people's anonymous questions about my physical disability. This is just the first part of the series though, so get ready for lots more juicy content about my disability in the next few weeks! 


17 Jan 2021

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EP44: Spina Bifida and a Positive Mindset With Tano Diaz

Dani Flo Podcast

Are you familiar with Spina Bifida? Why are people with Spina Bifida in a wheelchair? What are some of the challenges that come with Spina Bifida? What are some of the challenges that come with being in a wheelchair? Do people with Spina Bifida all have the same mindset about their condition? Or about being in a wheelchair? And is that mindset a choice? My friend of ten years, Tano Diaz from the Inspire Dayz, joins me on the Dani Flo Podcast to share what he knows about his condition Spina Bifida, his positive mindset about being in a wheelchair, and his brand he started to inspire others and be inspired. Tano discusses and answers: How long have you been in a wheelchair? What age did you start noticing that not everyone is in a wheelchair? How did they explain to you why you were in a wheelchair? Have you always had the mindset you have now about your condition? Where do you think your positive mindset comes from? Do you think it’s a choice to have a positive mindset? What is your condition? What do you mean by “the first kind of spina bifida is hidden”? Is it possible to develop spina bifida later in life? Is spina bifida inherited or genetic? What kind of research on spina bifida have you done on your own? Did you learn more about yourself? What are some examples of things that are harder for you because of spina bifida? What’s the number one thing able bodied people take for granted? What’s the most common reason people end up in a wheelchair? How did you get introduced to wheelchair basketball? Do most kids in wheelchairs get a social worker? Do most kids in wheelchairs get introduced to wheelchair sports? What’s the coolest wheelchair sport? Why is the gym important to you? What’s the number one misconception about spina bifida? What is the focus of Spina Bifida month (October)? When was the first time you connected with someone else with Spina Bifida? Is it important to be around other people with Spina Bifida? What’s it like having Spina Bifida and being Hispanic? How long have you been thinking about starting a brand? What's the meaning of your brand for you? What’s the long-term goal with the brand? You’re going to enjoy this episode if: you want to learn something new, if you’re curious about Spina Bifida and what it’s like to be in a wheelchair, if you’re interested in having a positive mindset, perspective, outlook, and philosophy of life, and if you want to learn about Tano’s brand and why he decided to start it and why inspiring others is important to him. Please listen, subscribe, leave a review, and share with everybody you know. Enjoy! Follow Tano on Instagram: @tanodiazz Follow his brand: @the_inspire_dayz Watch his mini-documentary: The Wheel Documentary Subscribe to his YouTube channel: The Inspire Dayz Follow me on Instagram: @dani_flo Subscribe to my YouTube channel to watch the podcast video: Dani Flo Podcast Video Connect or follow me on LinkedIn to read my blogs about podcasting and philosophy: Dani Flo  Follow me on TikTok for TikToks on Faith: @daniflopodcast --- This episode is sponsored by · Anchor: The easiest way to make a podcast. https://anchor.fm/app --- Send in a voice message: https://anchor.fm/dani-flo/message Support this podcast: https://anchor.fm/dani-flo/support


12 Jan 2021

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Episode 53 | Teresa's Story - A daugther with Spina Bifida and Tethered Cord

Child Life On Call: Parents of children with an illness or medical condition share their stories with a child life specialist

Katie, Certified Child Life Specialist interviews Teresa, a mom of a teenage daughter with Spina Bifida.  With no signs of abnormalities during her pregnancy, Teresa was shocked to learn that a fatty lump on her daughter's skin at the base of her spine would lead to a diagnosis of spina bifida occult with a tethered spinal cord. Teresa walks us through the shock of the diagnosis and the power that a one-on-one discussion with an empathetic doctor had on their ability to cope. Motivated by their story to help kids like her daughter be able to disguise some of the necessary medical equipment she must wear every day, they created www.hiddenunderwear.com Follow along with Teresa on Instagram and Facebook.  Child Life On Call | Instagram | Facebook | Twitter


6 Jan 2021