Ellen Matloff on the Evolving Role of Genetic Counselors in Precision Medicine
PhenoTips Speaker Series: A Genetics Podcast
CEO and President of My Gene Counsel, decorated patient advocate, and thought leader, Ellen Matloff, discusses the evolving role genetic counselors play in precision medicine as genetic testing increases in frequency and accessibility. Hosted by DNA Today’s Kira Dineen. Watch the full episode at https://phenotips.com/speaker-series/evolving-role-of-genetic-counselors.html
COVID Series: Genetic Counseling with Ellen Matloff
This Week Health: Conference
June 10, 2020: We’ve all heard of direct to consumer genetic testing kits, from the like of 23andMe or ancestry.com, but how useful can certified genetic testing be? And how can genetic counselors assist you through that process? Today’s guest is Ellen Matloff, Founder and CEO of My Gene Counsel. Ellen am a certified genetic counselor, and My Gene Counsel is a company that specializes in scalable, updated, digital genetic counseling. My Gene Counsel’s mission is to make genetic test results easy to understand and use by both consumers and clinicians, and to provide ongoing updates tied to these results. In this episode, Ellen explains what genetic counseling is and why she formed My Gene Counsel. She shares with us the possibilities for genetics to advance healthcare and medicine, as well as the role that genetics may be playing in susceptibility during the COVID-19 pandemic. We discuss direct to consumer versus certified genetic testing, and the pros and cons of both, as well as the ethical issues around privacy. Ellen also describes her path towards becoming a CEO, which is a new element we’re adding to the show. Tune in today to find out more about genetic counseling!Key Points From This Episode:Ellen explains what genetic counseling is.How a genetic counselor can assist you with genetic testing.Why Ellen formed My Gene Counsel and what the company does.Ellen explains the shortage of genetic counselors in the US.The possibilities for genetics to advance healthcare and medicine within the next decade.The role that genetics may be playing in susceptibility during the COVID-19 pandemic.Geisinger as a leader in the field, using genetics on healthy people to predict illness.Ellen talks about direct to consumer genetic testing and why it’s better to get certified testing.Population screening for cancer by programs like All of Us (NIH).The ethical issues with genetic privacy and why it’s important.The pros and cons of direct to consumer genetic testing kits – not all data is helpful.Ellen describes her path to becoming a CEO!
Ellen Matloff has one of the most unique stories in genetic counseling today. She worked at Yale to found the cancer counseling program in the early days of that discipline and was an early and highly visible voice in the battle against gene patenting. Eventually, her experience with the expanding presence of cancer susceptibility testing led her to found a business that attempts to provide a low-cost, scalable option to fill in the informational gaps for individuals who’ve had genetic testing.
Ellen Matloff on a New Digital Genetic Counseling Product for DTC Customers
If Mendelspod had an annual Product of the Year award, we'd certainly be liking for 2018 the one featured today, a digital genetic counseling product for direct-to-consumer genetic testing.Hats are off to Ellen Matloff, a genetic counselor formerly at Yale who saw the DTC boom coming a few years ago, busted out of academia, started My Gene Counsel, and last month launched her first digital product.
#91 Ellen Matloff on Direct-To-Consumer Genetic Testing
DNA Today: A Genetics Podcast
Ellen Matloff is the President and CEO of My Gene Counsel. Ellen is the founder and former director of the Cancer Genetic Counseling Program at Yale School of Medicine.Ellen has authored more than 50 scientific publications in the field, is an established educator, lecturer and media spokesperson and has received national awards for her ongoing patient advocacy efforts. She is an outspoken patient advocate in many areas, most notably as a plaintiff in the 2013 BRCA gene patent case that went before the Supreme Court. This decision has led to drastically lower prices of genetic testing, making it possible for more patients to afford this technology. Ellen is a Forbes.com contributor in the area of genetic counseling, testing, and digital health.As genetic testing became more common and also more complex, she has served as the senior author on several publications since 2010, all documenting errors in the interpretation of genetic test results, from all over the US and Canada. From these experiences, Ellen created My Gene Counsel and its associated digital tools that can be used in parallel with genetic testing to help ensure that results are used accurately and effectively. These tools are scalable, affordable, are available to the consumer immediately, and on their own device, and - importantly - when your genetic test results are reclassified, or medical management recommendations change, you receive a text message or email.Disclaimer, I (host Kira Dineen) also work for Ellen at My Gene Counsel as the Communications Lead.On This Episode We Discuss:Defining direct-to-consumer (DTC) testsTypes are available to consumersDifference between medical grade and DTC genetic testsAccuracy of DTC genetic testsWhat to know before choosing a DTC testExamples of when a DTC test may be more appropriate than a medical grade test and vice versaWhy healthcare providers can’t afford to ignore DTC anymorePotential implications of sending a sample to a DTC companyBenefits of signing up for My Gene CounselCheck out My Gene Counsel’s website, Twitter, Facebook and LinkedIn pages for more information.Stay tuned for the next new episode of DNA Today on October 19th. New episodes are released on the first and third Fridays of the month. See what else I am up to on Twitter, Instagram, Facebook and iTunes. Questions/inquiries can be sent to Kira at info@DNApodcast.com.
Lynch Syndrome, and Genetic Testing and Counseling, With Georgia Hurst and Ellen Matloff
WE Have Cancer
Georgia Hurst is the founder of I Have Lynch Syndrome, Inc. As stated on her website Ellen Matloff is the President and CEO of My Gene Counsel. “My Gene Counsel will translate the jargon behind the latest breakthrough on the evening news and tell you what it really means for you and your family.” During […] The post Lynch Syndrome, and Genetic Testing and Counseling, With Georgia Hurst and Ellen Matloff appeared first on The Colon Cancer Podcast.