Orah Lasko's guest appearances

Orah Lasko

Woman of Valor with Bari Mitzmann

The Jewish Living Podcast

Because We Are Strong

Estie Rose

Naomi Nachman

Rorie Weisberg

Melinda Strauss

Liz Shayne

Jay Buchsbaum

Kristen Manieri

Neil Cohen

Michael Cohen

Jessica Taylor

Eliyahu Prero

Eli Shapiro

Shimmy Feintuch

Mayer Davis

Talia Reese

OwlTail

Hey peeps! It was just Kristine this episode and I am back this week again hosting solo but we have another great episode for you today as I have the pleasure of sitting down with Orah Lasko who is the mother of Luke; Luke has a rare genetic disorder syndrome called Hao Fountain syndrome. As with to many of these rare genetic disorders Jake is among the ultra-rare with only 73 older cases known in the world. As you all know there is so much that goes into being a rare family so let's dive right in and hear from someone who knows bestI advocated for my son for over nine months before he finally got his rare disease diagnosis. I want to create awareness of his disease but also teach people how important it is to be your child’s advocate and always push for answers.Connect With Orah:@orahlasko and also the USP7 (Hao-Fountan Syndrome) foundation website usp7.orgThe CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.Support the show

Hey peeps! It was just Kristine this episode and I am back this week again hosting solo but we have another great episode for you today as I have the pleasure of sitting down with Orah Lasko who is the mother of Luke; Luke has a rare genetic disorder syndrome called Hao Fountain syndrome. As with to many of these rare genetic disorders Jake is among the ultra-rare with only 73 older cases known in the world. As you all know there is so much that goes into being a rare family so let's dive right in and hear from someone who knows best I advocated for my son for over nine months before he finally got his rare disease diagnosis. I want to create awareness of his disease but also teach people how important it is to be your child’s advocate and always push for answers. Connect With Orah: @orahlasko and also the USP7 (Hao-Fountan Syndrome) foundation website <a href="http://usp7.org/" rel="nofollow" target="_blank">usp7.org</a> The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to <a href="https://www.chilisleep.com/findyourrare20" rel="nofollow" target="_blank">Chilisleep.com/findyourrare20</a>, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.<a href="https://www.patron.com/findyourrare" rel="payment nofollow" target="_blank">Support the show</a>

INTERVIEW: Orah Lasko & Hao Fountain Syndrome

Shira Zwiren

We speak with Orah Lasko about her son's rare condition and her efforts to raise awareness for genetic diseases in the frum world. Then, we speak with Shira Zwiren about her experiences with her own daughter's rare disease. Our guests can be found at: https://www.instagram.com/orahlasko/ https://twitter.com/shirazwiren Other resources mentioned in this episode: https://www.usp7.org/ https://usp7.salsalabs.org/nightforusp7/index.html https://www.systemicjia.org/

We speak with Orah Lasko about her son's rare condition and her efforts to raise awareness for genetic diseases in the frum world. Then, we speak with Shira Zwiren about her experiences with her own daughter's rare disease. Our guests can be found at: <a href="https://www.instagram.com/orahlasko/" rel="noreferrer nofollow" target="_blank">https://www.instagram.com/orahlasko/</a> <a href="https://twitter.com/shirazwiren" rel="noreferrer nofollow" target="_blank">https://twitter.com/shirazwiren</a> Other resources mentioned in this episode: <a href="https://www.usp7.org/" rel="noreferrer nofollow" target="_blank">https://www.usp7.org/</a> <a href="https://usp7.salsalabs.org/nightforusp7/index.html" rel="noreferrer nofollow" target="_blank">https://usp7.salsalabs.org/nightforusp7/index.html</a> <a href="https://www.systemicjia.org/" rel="noreferrer nofollow" target="_blank">https://www.systemicjia.org/</a>

21. Raising a Child with Genetic and Chronic Conditions with Orah Lasko and Shira Zwiren

Orah is the mother of Jakey, a two year old boy with an incredibly rare genetic mutation. in this weeks episode, Orah and I discuss her uphill battle to identify what Jakey’s diagnosis was. Orah also discusses how being a mother of a son with special needs has impacted her and her family, as well as how she has grown and continues to grow through having Jakey in her life. The post Ep. 34: Mom on a Mission with Orah Lasko appeared first on The Woman of Valor Podcast with Bari Mitzmann.

Orah is the mother of Jakey, a two year old boy with an incredibly rare genetic mutation. in this weeks episode, Orah and I discuss her uphill battle to identify what Jakey’s diagnosis was. Orah also discusses how being a mother of a son with special needs has impacted her and her family, as well as how she has grown and continues to grow through having Jakey in her life. The post <a href="https://thewovlife.com/ep-34-mom-on-a-mission-with-orah-lasko/" rel="nofollow" target="_blank">Ep. 34: Mom on a Mission with Orah Lasko</a> appeared first on <a href="https://thewovlife.com" rel="nofollow" target="_blank">The Woman of Valor Podcast with Bari Mitzmann</a>.

Ep. 34: Mom on a Mission with Orah Lasko