Ep021: After Diagnosis of Narcolepsy -- with Julie Flygare from Project Sleep
Deep into Sleep
Within this episode of Deep into Sleep, Julie Flygare, the founder, president, and CEO of project sleep, shared her own story and community support resources for Narcolepsy with us, as well as how to deal with Narcolepsy after the diagnosis. Show Note: deepintosleep.co/episode/020Thank You For Listening!If you want to share your thoughts, I would love to hear from you!Leave a commentAsk a voice question at this linkIf you enjoyed today’s episode, and want to help out the show, please consider:Share it using the social media buttons on this pageLeave an honest rating and review for the podcastSubscribe on iTunes, Google Podcast, Spotify, Stitcher, iHeartRadio, etc.Find out more about Dr. Yishan Xu’s Insomnia Treatment Group (CBT for insomnia, CBT-I).Join Deep into Sleep Podcast group on Facebook for more discussions.You can also follow our Instagram account https://www.instagram.com/mind_body_garden/ to keep you posted on our new podcast episodes.If you want to find a certified CBTi provider in the United States, please visit our resource page for CBTi providers and sleep-related resources.
Ep020: Symptoms of Narcolepsy -- with Julie Flygare from Project Sleep
Deep into Sleep
Within this episode of Deep into Sleep, Julie Flygare, the founder, president, and CEO of project sleep shared her own experience with Narcolepsy, especially the common symptoms of it. Show note: deepintosleep.co/episode/020Thank You For Listening!If you want to share your thoughts, I would love to hear from you!Leave a commentAsk a voice question at this linkIf you enjoyed today’s episode, and want to help out the show, please consider:Share it using the social media buttons on this pageLeave an honest rating and review for the podcastSubscribe on iTunes, Google Podcast, Spotify, Stitcher, iHeartRadio, etc.Find out more about Dr. Yishan Xu’s Insomnia Treatment Group (CBT for insomnia, CBT-I).Join Deep into Sleep Podcast group on Facebook for more discussions.You can also follow our Instagram account https://www.instagram.com/mind_body_garden/ to keep you posted on our new podcast episodes.If you want to find a certified CBTi provider in the United States, please visit our resource page for CBTi providers and sleep-related resources.
#21 - Julie Flygare: Wide awake and dreaming: A memoir of narcolepsy
In todays episode I am talking with Julie Flygare who is the president and CEO of Project Sleep and the author of the book: Wide awake and dreaming: A Memoir of narcolepsy. She is talking with me how she is coping with narcolepsy and how she made out of her illness a really cool project which effects a lot people with and without narcolepsy all over the world.
4. Julie Flygare on World Narcolepsy Day and Wide Awake and Dreaming: A Memoir of Narcolepsy
Present Not Perfect
#4: Julie Flygare is a narcolepsy spokesperson and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. She lives in Los Angeles and speaks across the country and world to open people's hearts and minds to the real narcolepsy, a neurological disorder affecting 3 million people worldwide. Julie is also the founder of Project Sleep, which aims to improve public health by educating individuals about the importance of sleep health and sleep disorders. Project Sleep educates and empowers individuals using events, campaigns, and programs to bring people together and talk about sleep as a pillar of health. In this episode, you’ll learn about Julie and her own narcolepsy story, how she approaches being present, saying no, living life on her own terms, and how she went about getting an international day dedicated to narcolepsy! (September 22nd!) To connect with Julie Flygare, click HERE To connect with Leyla Sarper (host), click HERE To find out more about Project Sleep & World Narcolepsy Day check out: https://project-sleep.com/worldnarcolepsyday/ To learn more about Julie Flygare check out: http://julieflygare.com/ Don’t forget to subscribe to the show so you can see when the next episode is posted! If you enjoyed this episode, please share with a friend who may also get value from it. And finally, please leave a review and let us know what you liked or any valuable takeaways you left with. Thank you! XO Leyla
111: Making Sleep Cool Again With Julie Flygare, J.D.
More Happy Life with Andy Proctor
In this episode we talk about all things sleep and much more! How does sleep impact our energy, mood, and clarity? How much sleep do we need each night? How did you discover your Narcolepsy? How can we improve our sleep patterns? Should naps be allowed and supported at work? Let's talk about dreams and remembering dreams What would you tell people who just found out they have narcolepsy? Find your self affirming voice within all the voices in your head. This will make you happier. More about Julie: Julie Flygare, J.D. is an internationally recognized patient-perspective leader, an accomplished advocate, and the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy. Since receiving a diagnosis of narcolepsy with cataplexy in 2007, Flygare advanced her leadership in the sleep and healthcare space through speaking engagements, publications, earned media, collaborations, and advocacy and awareness initiatives. Currently, she serves as President & CEO of Project Sleep, a non-profit organization raising awareness about sleep health and sleep disorders. Prior to accepting this role, Flygare served as President of Project Sleep’s Board of Directors, while also gaining invaluable experience in marketing and philanthropy at the Pancreatic Cancer Action Network and City of Hope. Additionally, she served on the National Institutes of Health’s Sleep Disorders Research Advisory Board from 2012 – 2015. Flygare received her B.A. from Brown University in 2005 and her J.D. from Boston College Law School in 2009, focusing on health law, policy, and rare disease drug development. Where to find Julie: Instagram: https://www.instagram.com/remrunner/ Website: http://julieflygare.com/ Project Sleep: https://project-sleep.com/ Find her book here: Wide Awake And Dreaming --- Send in a voice message: https://anchor.fm/morehappylife/message Support this podcast: https://anchor.fm/morehappylife/support
Living w/ Narcolepsy (ft. Julie Flygare of Project Sleep)
The CALM & COZY Podcast
This episode is part of my sleep disorder series, and I’ve been looking forward to this interview for a while. I met Julie Flygare online, through our Instagram accounts and a mutual interest in sleep. Julie is the founder of Project Sleep and an advocate for people living with narcolepsy. Before meeting Julie and reading her book, I didn’t know anything about narcolepsy. I thought it was what most of us think - falling asleep suddenly without any control of where you are or what you’re doing. Narcolepsy is very misunderstood, and not all that rare, and that’s why I wanted to have Julie tell her story.You can find Julie on Instagram as @remrunner, Project Sleep's website at: https://project-sleep.com, and the Narcolepsy Not Alone campaign at: http://www.narcolepsynotalone.com/A HUGE Thank you to this episode's sponsor, Zenbev, a natural drink mix that promotes sleep by easing anxiety and racing thoughts. It contains only a small handful of natural ingredients and tastes great! Save 10% off your order with the coupon code, SLEEPCOACH10, at https://zenbev.com See acast.com/privacy for privacy and opt-out information.
Julie Flygare is an author, Founder, CEO & President of Project Sleep, an advocate and a person with narcolepsy. She started the Narcolepsy Not Alone Campaign, the Jack and Julie Scholarships for college-age students with narcolepsy and the Rising Voices of Narcolepsy Program. In this episode, Julie shares her diagnosis story which led her to change her career trajectory and embark on becoming a vocal advocate for people with narcolepsy. Her advocacy has allowed her to write a memoir, found a non-profit, work in the public policy space, create international social campaigns, and develop programs that empower other pwns to become advocates. She also shares the exciting upcoming World Narcolepsy Day launch which takes place September 22, 2019. This episode is jam-packed with information about the programs and support Project Sleep is currently offering. Julie and Claire discuss what is going on with federal funding for sleep and narcolepsy research. How to use social media as an advocate, and what it’s like to write a memoir! It was such a pleasure to hear Julie's story and work. You can follow Julie at @REMRunner on Instagram & Twitter and @JulieFlygareAuthor on Facebook. You can learn more about advocacy work at www.julieflygare.com. You can also follow Project Sleeps efforts at @project_sleep on Instagram & Twitter and @ProjectSleepAwareness on Facebook. You can learn more about the programs, initiatives, and support Project Sleep offers at www.project-sleep.com. You can follow us at @narcolepsy_360 on Instagram, @wakeupnarcolepsy on Instagram and Facebook and @wakenarcolepsy on Twitter. Let us know your thoughts about this episode by using the hashtag #narcolepsy360 and please rate and review us on iTunes.
This week I'm joined by Julie Flygare for a conversation about narcolepsy advocacy, running the Boston Marathon, a lesson in what it takes to write your own memoir, the growth of Project Sleep, the impact of Narcolepsy: Not Alone, The Simpsons, and funny ways to pronounce last names. Follow Julie on Twitter @RemRunner, julieflygare.com, and project-sleep.com. Run Time - 37:25 Send your feedback to firstname.lastname@example.org.