#05: Onno Faber: on treating his own rare disease with the help of AI and the future of healthcare
Humans in the Loop: the Frontiers of Data Science
Next guest of Humans in the Loop podcast is Onno Faber. Onno is a serial entrepreneur, speaker, investor and a possibility thinker. Onno is currently the founder two companies in the Health and BioTech space – Rarebase and AllStripes. To me, Onno’s superpower is his multidisciplinary approach to a passion his: drive to build things that solve problems. In his early teens, he even patented a solution to a problem that caused minor fallouts with his mom. Onno developed an app that attracted the attention of Sillicon Valley and even Ashton Kutcher, but his path was inadvertently affected by a rare disease called “Neurofibromatosis 2”, or NF2 for short. To Onno, this was yet another problem he could try to solve, which is why he started two companies on a mission to translate science into therapies for one or for many. Rarebase aligns the needs of the patients with therapeutic development, while Allstripe combats a common bottleneck of resource aggregation Onno believes that patients can’t be bystanders in drug development, and is on a mission to democratize drug discovery and development and make it work for everyone. In this episode, we talk about Onno’s inspirational life story and mission, how rare are rare diseases, what is the role of data science in drug discovery and disease therapeutics. Enjoy the episode.
When we aren’t patients, rare diseases may provoke different emotions in us when they pop up in our heads. On one hand, we may feel empathy and curiosity, and on the other hand, we may feel alienation and even indifference. It is important to know though, that we are all going to be patients at some point.Dr. Rosie Sendher and Makenna Rice sit down with Onno Faber, a patient advocate and NF2 patient. Onno Faber is the founder of RDMD, a medical data science company that accelerates drug research for all kinds of rare diseases. Go behind the scenes of the constant rare diseases’ research as Faber walks listeners through his own diagnosis, sampling, sequencing the tumor DNA and research on NF2, and the motivations behind the birth of his own company. ResourcesTEDxTalk: We'll all be patients one day: https://www.youtube.com/watch?v=FFtgzAZiv5sRDMD: https://www.rdmd.com/?modal=showJob&name=softwareEngineerRareMatter: https://rarematter.org/This show is being produced by StudioPod, a full-service podcast company based in San Francisco. If you want more details on how to fully record and produce your podcast with our services, you can reach us at http://studiopodsf.com, send us an email at email@example.com or contact us through our social media channels as @studiopodsf.
Season 1, EP. 3 Niksen: The Art of Doing Nothing (feat. Onno Faber)
Harmony Beats Balance
Season 1, Episode 3 This week's guest is Onno Faber: possibility thinker, problem solver, entrepreneur, public speaker, rare disease patient. Dana Look-Arimoto shares a half hour of deep insightful conversation with this fascinating human being! EPISODE LINKS: Today's Guest: Onno Faber Check out his TedX Talk Purchase Dana's latest book and everything else! Take the Quiz Settle Smarter Website Contact Dana Look-Arimoto: LinkedIn Instagram Twitter Settle Smarter is produced by Paul Godwin for NEWdOG Media Questions or comments: firstname.lastname@example.org
Interview: Onno Faber of Taptalk on Use Your Core Values to Differentiate Your App